Results for search term "#sclerosing".

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Reply on Autoimmune hepatitis*

@gering69341, You are absolutely correct that we learn as we go along. I was diagnosed with a rare liver disease, myself, (Primary Sclerosing Cholangitis, PSC). Early on, my doctors also told me that every one is different with the symptoms and responses to the medications and treatment. [...]

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Reply on Primary Biliary Cholangitis and Autoimmune Hepatitis

Hi @jacinta, if you are seeing a hemotologist at Mayo Clinic, I encourage you to contact the Office of Patient Experience to discuss your situation. They can help mediate. Find out more here as well as contact information for all Mayo Clinic locations: https://www.mayoclinic.org/about-mayo-clinic/patient-experience Some patients really appreciate [...]

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Reply on Primary Biliary Cholangitis and Autoimmune Hepatitis

@jacinta, I have no wisdom to share with you, however I completely understand your current itching misery. My itching became almost unbearable for a period of time. My GI prescribed a bile binder cholestyramine that helped me somewhat. I also used any kind of anti itch lotion [...]

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Reply on Post Transplant Symptoms

@dcbrenek, I am happy to add my welcome to Connect. I just returned home from my 10 year annual evaluation for liver/kidney transplant due to PSC (Primary Sclerosing Cholangitis). I have not seen the term cryptogenic cirrhosis, so I had to look it up. And I read [...]

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Rituximab Maintenance Therapy for Autoimmune Pancreatitis

IgG4-RD or immunoglobulin G4-related disease can affect almost any organ in the body. It’s manifestation is most often seen in the pancreas – autoimmune pancreatitis – or in the bile ducts and liver, where it is known as IgG4-related sclerosing cholangitis or IgG4-associated cholangitis. The dramatic response [...]

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Reply on Primary Biliary Cholangitis and Autoimmune Hepatitis

@cinnamon215, I am sorry to hear of your suffering with several autoimmune conditions. I have vitiligo, an autoimmune skin condition, and that is what caused my doctors to look at possibility of my liver disease also being autoimmune related. I was eventually diagnosed with a different disease [...]

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Reply on Liver transplant support group

Hi, @calikellyw. I am happy to meet you and I offer you my support as you move forward to whatever lies ahead. I received my liver and kidney at Mayp in Rochester in 2009. My liver failure and subsequent kidney failure were caused by a rare disease, [...]

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15th annual conference for PSC patients and caregivers in Rochester, MN

We are privileged to host in Rochester, Minnesota the 15th annual conference for PSC patients and their caregivers (June 20-23, 2019). In a partnership with the PSC Partners Seeking a Cure we have created an exciting and informative program (please see the attached agenda). During this conference, we will highlight our current state of-the-art research efforts, and [...]

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Reply on Constipation after FMT

@sandyabbey I would call your doctor right away. You could have a blockage. Last June my son was in the hospital, part of his testing was a Colonoscopy. He had been on complete bed rest could only get up to sit on the commode beside his bed [...]