Results for search term "#sclerosing".

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Reply on Liver transplant support group

@michaelswaim,, Hi, Michael and welcome to Mayo Connect. As fellow transplant recipient, I am thrilled to meet you. Congratulations on your transplant. I read on your profile that you are a liver and kidney recipient; so am I. I transplanted at Mayo Rochester in 2009, and my [...]

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Reply on Liver transplant support group

@frmike, Good Morning, and welcome to this discussion. You are welcome to join in anytime and anywhere on Connect, and I invite you to continue to do so. I had my transplant in 2009 at Mayo Rochester due to PSC. I did not have UC, however I [...]

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A Randomized, Placebo-controlled, Phase II Study of Obeticholic Acid for Primary Sclerosing Cholangitis

In a recent paper, published in the Journal of Hepatology, Kowdley, et al., reported a randomized, placebo-controlled, dose-finding study of Obeticholic acid (OCA), which has been approved for the therapy of Primary Biliary Cholangitis (PBC). OCA is a potent farnesoid X receptor (FXR) and the study included 76 patients [...]

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Effects of Tumor Necrosis Factor Antagonists in Patients on Primary Sclerosing

In a recent study, published in the journal Clinical Gastroenterology and Hepatology, Hedin, et al., reported the effects of tumor necrosis factor (TNF) antagonists on liver function and efficacy in therapy of inflammatory bowel disease (IBD) among patients with Primary Sclerosing Cholangitis (PSC). This was retrospective study of 141 [...]

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Reply on Liver transplant support group

@msgtrebholtz, Jason, Welcome to Connect. I am happy to extend a virtual handshake to you. I am a PSCer. I am thrilled to meet you, because there are not many of "us". I actually joined Connect in 2011 to meet other PSCers after my transplant on 2009 [...]

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Reply on PSC: Are IgG and IgG4 the same thing? Do they test different things?

Hi @sandyjr, I'd like to bring @rosemarya @sandyblair @monty49 @jacinta @jenchavez into this conversation as they have experience living with primary sclerosing cholangitis (PSC) and probably know more first-hand about the relevance [...]

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Reply on Liver transplant support group

@brianna, I understand what you are going through. Where are you being evaluated? Because right now there is another member who is undergoing evaluation for a liver transplant in Jacksonville. I was diagnosed with PSC (Primary Sclerosing Cholangitis) that made me nauseous, jaundices, fatigued, with ascites,..and eventually [...]

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Reply on Does autoimmune disease = immunocompromised?

@ddwilliams, PSC is a rare disease, and you are fortunate that your son was able to get a diagnosis early. Unfortunately there is no cure for PSC, and some patients progress to liver failure while others do not. My PSC was discovered when I was an adult. [...]

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Reply on Does autoimmune disease = immunocompromised?

@ddwilliams, Welcome to Connect. I was diagnosed with Primary Sclerosing Cholangitis (PSC) that progressed to to end stage liver disease, and the need for a liver transplant. There is some research that indicates that there may be some autoimmune connection and that a person with PSC might [...]

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PSC Epidemiology and Outcomes in a Population-based Cohort

In a recent paper published in the Journal of Gastroenterology, Bakhshi et al., reported an update on the epidemiology and outcomes of Primary Sclerosing Cholangitis (PSC) in a population-based cohort. The authors found that the incidence (i.e., the occurrence of new cases per year) of PSC almost doubled from 2001 [...]

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Reply on PBC Symptoms and dealing with extreme fatigue

@pjkb1health, I am familiar with fatigue caused by liver disease. I had PSC (Primary Sclerosing Cholangitis) which also affects the bile ducts. I also was told that exercise might help, and in the beginning I used to walk with a couple of fellow teachers after school. We [...]