EDITORIAL

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EVENT

Neuroendocrine Cancer Support Group Meeting FL

The Neuroendocrine Cancer Zebras meet monthly on the first Thursday every month from 5:30 to 6:30 p.m. Eastern time on the Florida campus of Mayo Clinic. You can join the meeting in person or by phone. Each meeting features an invited guest speaker. Topics include symptom and disease management as [...]

EVENT

Harmony for Mayo-Choral Arts Ensemble

MEMBER

Jackie Barr (@jackiebarr)

Profile for Jackie Barr

REPLY

Reply on Linx procedure

Hello,I have had all the test run ph, upper GI, barium X-ray. All it showed that I was hvin spams in the esophagus and I’m hvin spams in vocal cords..can the Fundoplication look like it’s working good in the upper GI? But not be. Because I know this isn’t wright [...]

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Reply on Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Yes, one of the many unpleasant side effects of Prednisone. I'm at 10mg now and I don't bleed so bad anymore but just a little scratch will cause the skin tissue from the wound outward to turn a nasty red and it takes a week or two to go away. [...]

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Reply on Weaning off Metoprolol

Just saying there are more holistic ways to deal if you haven't had a heart attack, stoke or have a serious heart condition..I just had high blood pressure which was mostly due to my my 16hr work days and not enough rest. A lifestyle change can be a miracle. [...]

DISCUSSION

Lyme Disease and its Co-Infections, Morgellons Disease and Parasites

UPDATED 6/16/2019 Hi, I am Elizabeth Bass and I live in Southeast Texas very close to Galveston and Houston Texas with my companion Millie, a Yorkie. I moved here in March 2018 from Northeast Texas (Longview/Tyler) with a scalp condition that keeps morphing into something else, each time getting worse. It began [...]

REPLY

Reply on VITAMIN B12 and Neuropathy

Hopefully adding B12 helps you Lori! When initial neuropathy symptoms presented I was told my level was low and added the METHYLCOBALAMIN form of B12. Don’t use the other one, cyanide LOL something similar. Well my level went too high so I reduced it to 1000mcg. a day and now [...]

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Reply on Has anyone had a tight band feeling after total knee replacement?

I have considered trying Astym but my PT doesn’t feel it will work for several reasons, many as he doesn’t think scar tissue is the root cause of my pain. However, I have used it on my hip but minimal relief. My biggest issue with this that you can’t do [...]

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Reply on VITAMIN B12 and Neuropathy

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Reply on Living with Neuropathy - Welcome to the group

CBD:THC 19:1 has stayed consistent at 0.3ml 3x day THC:CBD 20:1 9.5 mg is now .10ml (1 full dropper) 3x day I'm on a steady climb of THC waiting to find my potential sweet spot. Yes, I believe its more than you mentioned. If I find my effective [...]

DISCUSSION

Small bowel obstruction diet

I’ve just had my 3rd rodeo of SBO and am looking for real food advice to possibly prevent this from reoccurring. Of coarse, this is happening d/t appendectomy surgery in 1983 during my first pregnancy....so what could possibly be worse?! I’m looking for serious food advice please. Thanks in advance! [...]

REPLY

Reply on My dad has a mass on bladder and kidney not functioning

They are testing the liquid in his abdomen they ended up getting out 1100ccs! 😵poor dad. Nurse says looks like urine to her they are keeping him for cultures to make sure no infection - mom reating at my aunts tonight. Will go back up tomorrow.. [...]

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Reply on HF 10 Spinal Cord Stimulation Device (Relieves back and leg pain)

I went through the 7-day trial with the HF10 Spinal Cord Stimulator mid-October. I have had back issues since 1976, and spinal fusion (L2-S1) in 2009, and 2 compression fractures following the fusion. I have dealt with chronic nerve pain (neuropathy and radiculopathy) ever since. The CF10 trial was a [...]

MEMBER

1200church (@1200church)

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MEMBER

lizzy102 (@lizzy102)

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REPLY

Reply on Living with Neuropathy - Welcome to the group

I have been living with peripheral neuropathy off and on for 20 years after a bout with transverse myelitis which was diagnosed at John Hopkins. Ten years ago and five years ago redid MRIs and was diagnosed with idiopathic neuropathy but luckily no further lesions. Have done pretty well with [...]

DISCUSSION

Complications with pedicule screws in thoracic spine

Last year i had my 13th & 14th spinal surgeries due to screws coming loose. The top 4 screws now have bone cement. I have been slowly gaining back the use of my legs and arms and walking without aids. One month ago I began to have a squeaking/rubbing sensation [...]