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Thank you , @ericvnelson, ur experience aligns mine. But it gets worse. They r hooking a...
disorder polyneuropathy with hATTR amyloidosis
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@ssandy Sandy, my dose of simvastatin was raised by half, and I was on it for...
I have Light Chain Amyloidosis.
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Hello. Old Karl here. Lots of issues. Probably AL amyloidosis, systemic, hereditary. Constant headache pain for...
Probably AL amyloidosis, systemic, hereditary
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@houbrem Well,yes, 8 years of constant right side pain, but the docs said I had a...
neurocognitive changes in hereditary gelsolin amyloidosis ... (AGel) amyloidosis.
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Yes, Joyce, I had testing over the summer for amyloidosis before I started on mavacamten (Camzyos)...
I had testing over the summer for amyloidosis ... Amyloidosis is no doubt serious, but