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for @micheledeville When I went to to Mayo-AZ, things were very different. I went there having...
to learn as much as I could about amyloidosis ... We cannot rule out AL (light chain) amyloidosis ... other systemic, primary, familiar" amyloidosis
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Yes, Joyce, I had testing over the summer for amyloidosis before I started on mavacamten (Camzyos)...
I had testing over the summer for amyloidosis ... Amyloidosis is no doubt serious, but
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@kanaazpereira Thank you for asking me to join in. I was diagnosed with a very rare...
pathologist there was hoping that it was not amyloidosis ... any information I can give you on amyloidosis
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Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...
what Mayo Clinic shares about Cardiac Amyloidosis ... www.mayoclinic.org/departments-centers/cardiac-amyloidosis-clinic ... The first link is regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis
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@beckyoutlaw1115 Hi, Becky. Yes, it's a tough road to get a diagnosis in the Amy wilderness....
Read their RED ALERT Amyloidosis Warnings ... Do an Internet search for Amyloidosis ... Center sites and put in a search for Amyloidosis ... patient or doctor) needs to know about Amyloidosis