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Comment
Hi Cynthia, I too am newly diagnosed (May 8). Rheumatologist started me on 20 mg of...
Rheumatologist started me on 20 mg of prednisone ... upped dosage to 30mg for a week then tapered ... will want to continue the taper. ... understand the need to reduce/get off ... of prednisone with minimum issues.
Comment
Hi Cynthia @juju1, Welcome to Connect. You are not alone with not wishing PMR on anyone....
coming back when you reduce to 6 mg prednisone ... starting dose, it may be that you are tapering ... I started at 20 mg prednisone and the ... time it took me 3 and half years to taper ... off.
Comment
If you see Dr Stone tell him that someone in Iowa said thank-you. The GiACTA study...
After failing for 12 years to taper ... off prednisone, I was able to taper ... off in less than a year after Actemra ... I have been off prednisone for 2 years ... thinks Actemra is better than long term prednisone
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It is sad there aren't more treatment options for PMR/GCA. I was told many times that...
I was told many times that prednisone ... the "best option." I took prednisone ... Actemra worked for me and I was able to taper ... off prednisone in a year. ... rheumatologist thinks I'm better off
Posted: May 29, 2023
Comment
Welcome @amak23, It can be a struggle tapering off of prednisone while trying to get into...
Welcome @amak23, It can be a struggle tapering ... off of prednisone while trying to get ... with PMR took me 3 and half years to taper ... off and it stayed gone for 6 years. ... off in 1 and half years.