Transplant

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PUBLIC PAGE
Mar 26, 2020

Specific Information about COVID-19 for Transplant Patients

By Kristin Eggebraaten, @keggebraaten

As COVID-19 spreads across the country, we know that this time is more stressful for transplant recipients than others. After all, your transplant centers have been telling you for years that you are at a higher risk for illness and infection and you should avoid contact with anyone who is ill. Now the entire world is learning what you’ve already become an expert at doing – social distancing. At every Mayo Clinic we have staff working around the clock to help stop the spread and to treat those who’ve become ill. We will continue to do everything we can for our patients and for those around the world that need our expertise and resources.03-26-20 COVID19 Post

As you can imagine, our inboxes and phone lines are filling every day with our patients wondering how to stay safe. Mayo Clinic’s providers, even those in transplant, are following CDC guidelines for protections for our patients. This article, posted on the Mayo Clinic web page, can help you learn and share the correct information for patients who are at high risk at this time. Some of the bullet points from this article are:

  • Take precautions to keep space between yourself and others.
  • Make sure you have enough supplies.
  • Have a plan in case you get sick or your caregiver gets sick.

Details about these topics and more can be found on our web page. Other trusted sources of information include:

Mayo Clinic COVID-19 Q&A Podcast with Dr. Gregory Poland

Mayo Clinic Appointment Guidance during COVID-19

COVID-19 News and Resources – Mayo Clinic News Network

CDC Coronavirus (COVID-19) Web Page

Mayo Clinic’s priority right now is the health of you and your family. The changes we and other hospitals are making are temporary to protect our patients and our staff so that we can continue to offer the best care. We hope that you understand the changes happening around you, and we want you to know that you can look to us for guidance in the coming weeks.

If you have any specific tips for others during this time about how to stay busy and content at home, please share below!

@rosemarya

@ebrahim, My intention was to inform you about the active discussion groups that are occuring on Mayo Connect. Mayo Clinic Connect is an online community that connects people.. Where they can ask questions, get answers, connect with other who are like themselves. In the discussions we, the patients share our experiences to support and encourage others along the way. On Connect we are not doctors or medical profesionals – although we have medical professionals who do participate as patients themselves. We do not give medical advice, or offer diagnosis ot treatment. I apologize if I mislead you in my response.

I would like to share with you a 10 minute video interview that will give you a picture of what Connect is all about. Our goal was to capture the importance of the community and how it is valued by the members.
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/watch-party-connect-featured-on-mayo-clinic-radio/
Here is the main page for Connect – https://connect.mayoclinic.org/
Here is where you can read about Connect –
https://connect.mayoclinic.org/page/about-connect/

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@rosemarya oh thank you such a helpful video …I was just concerning about the Accuracy of information that members tell each others …cause in practicing medicine every patient is a unique case ..what Suits one not necessarily suit everyone 😁

COMMENT
@rosemarya

@ebrahim, Welcome to Mayo Connect. I am a liver and kidney transplant recipient with no medical background. I commend you on your successful transplant and your desire for a medical degree and career. Being so near to your goal, I am sorry that you are faced with this difficult decision.
Might I be so bold as to remind you that you are and always will be a kidney transplant patient. And that is a good thing because of the valuable experience that you will bring from the patient's point of view.
My first thought is for you to have a conversation with your own transplant provider(s) about this.
My second thought is that I wonder if you could investigate whether you can be a doctor who works behind the scene and does not require face-to-face contact.

Here is a link. And I invite you to post your question there. Some other medical providers have similar questions related to their own current situations. They might be able to provide their thoughts.
COVID-19 and Transplant Patients
https://connect.mayoclinic.org/discussion/covid-19-in-transplant-patients/
Keep in touch. I look forward to addressing you as "Doctor" someday.

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I'm finding it challenging to navigate "Connect" I'm trying to post a question, Are kidney transplants / evaluations considered 'Elective Surgery' and put on hold for a while?

COMMENT

I was suppose to have a kidney transplant on March 26th, living donor. It has been postponed not sure when it will take place.

COMMENT
@dhelmstetter

I'm finding it challenging to navigate "Connect" I'm trying to post a question, Are kidney transplants / evaluations considered 'Elective Surgery' and put on hold for a while?

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Welcome to Connect, @dhelmstetter. Congratulations on being considered for transplant evaluation. Do you already have a scheduled appointment? Have you heard from your transplant center regarding this?
Here is Mayo's current policy: "Mayo Clinic's response to the COVID-19 pandemic is rapidly evolving, with significant potential for travel restrictions and advisories. Depending on your circumstances, your care team may recommend that you delay your appointment at Mayo Clinic or seek care closer to home. Alternatively, phone call assessments or video visits may be able to replace face-to-face visits during this time. You may be contacted by your care team to discuss options that are best for you."
from- https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/transplant

I would like to share this link. You can click on the blue text and you will go directly to the information for getting started on Connect. Let me know if you want more assistance.
About Connect: Who, What & WhyTips for Participating in an Online Community
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/tips-for-participating-in-an-online-community/

COMMENT
@melabel

I was suppose to have a kidney transplant on March 26th, living donor. It has been postponed not sure when it will take place.

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@melabel, Welcome to Connect. Golly, that has to be a disappointment for you. However during this current coronavirus pandemic, things have to be handled differently. I hope you find some comfort in knowing it is for you and for your donor to get the best possible outcome.
I want to invite you to the following discussion and meet another member with an approaching kidney transplant date. You two might be able to help each other.
Living Donor Kidney surgery next Tuesday: Any advice?
https://connect.mayoclinic.org/discussion/living-donor-kidney-surgery-next-tuesday/

COMMENT
@rosemarya

Welcome to Connect, @dhelmstetter. Congratulations on being considered for transplant evaluation. Do you already have a scheduled appointment? Have you heard from your transplant center regarding this?
Here is Mayo's current policy: "Mayo Clinic's response to the COVID-19 pandemic is rapidly evolving, with significant potential for travel restrictions and advisories. Depending on your circumstances, your care team may recommend that you delay your appointment at Mayo Clinic or seek care closer to home. Alternatively, phone call assessments or video visits may be able to replace face-to-face visits during this time. You may be contacted by your care team to discuss options that are best for you."
from- https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/transplant

I would like to share this link. You can click on the blue text and you will go directly to the information for getting started on Connect. Let me know if you want more assistance.
About Connect: Who, What & WhyTips for Participating in an Online Community
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/tips-for-participating-in-an-online-community/

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Thank you Rosemary. No appointment has been set up but I heard from May Phoenix that they received my referral along with a list of what the evaluation would entail. When I contacted Mayo's transplant department, I was informed that 'elective' surgeries were being postponed – unless life and death.

COMMENT
@dhelmstetter

Thank you Rosemary. No appointment has been set up but I heard from May Phoenix that they received my referral along with a list of what the evaluation would entail. When I contacted Mayo's transplant department, I was informed that 'elective' surgeries were being postponed – unless life and death.

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@dhelmstetter, I imagine that you are a little disappointed that you don't have a date, yet. I am a liver and kidney transplant recipient. I received my transplant in 2009 at Mayo Rochester and I am here if you have any questions as you wait and prepare for your evaluation.
Are you on dialysis? What is a question you have about the evaluation process?

COMMENT
@rosemarya

@dhelmstetter, I imagine that you are a little disappointed that you don't have a date, yet. I am a liver and kidney transplant recipient. I received my transplant in 2009 at Mayo Rochester and I am here if you have any questions as you wait and prepare for your evaluation.
Are you on dialysis? What is a question you have about the evaluation process?

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I appreciate your communication Rosemary. Yes, I am on dialysis and have been for nearly a year now. I received a list from Mayo AZ as to what to expect in evaluation but no date has been set. I have a Living Donor who has yet to be evaluated as well.

COMMENT
@dhelmstetter

I appreciate your communication Rosemary. Yes, I am on dialysis and have been for nearly a year now. I received a list from Mayo AZ as to what to expect in evaluation but no date has been set. I have a Living Donor who has yet to be evaluated as well.

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@dhelmstetter, Here are some links where you can meet some members who are like you because of living kidney donation. All you need to do is to click on the blue text and you will be taken directly to the active discussion on Connect. As a member you can – read – make a short introduction or just say "Hi" – or ask a question. It's that simple. I will look for you there as you and help you to connect with others.

Here is the source of the best information that you will need as you and your potential donor move along. Take time to read the Transplant Newsfeed. And tutilize the information in the Living Donor and Recipient Toolkits
https://connect.mayoclinic.org/page/transplant/Kidney transplant

Meet other living donor recipients amd doners here:
Living Donor Kidney surgery next Tuesday: Any advice?
https://connect.mayoclinic.org/discussion/living-donor-kidney-surgery-next-tuesday/
Be sure to share this one with your potential donor:
The Journey from the Donor's Side
https://connect.mayoclinic.org/discussion/kidney-transplant-from-the-donor-side/
Need help? Let me know. Hope to meet you there soon.

COMMENT

@dhelmstetter Hay.. It's all about hope my friend ..I've waited three years for a kidney donor ..and Guess where ? in Syria ..one of the worst places in the world to be an end stage kidney failure patient …only tow dialysis rounds per week … Creatinine never went down 7 mg/dl …we don't have any kind of arrangement for organ transplantation and no one of my family match with me …the day before surgery I knew that the last two kidney transplant surgeries had failed …you know what I said ?? I said okay .. this one will succeed ..

COMMENT
@ebrahim

@dhelmstetter Hay.. It's all about hope my friend ..I've waited three years for a kidney donor ..and Guess where ? in Syria ..one of the worst places in the world to be an end stage kidney failure patient …only tow dialysis rounds per week … Creatinine never went down 7 mg/dl …we don't have any kind of arrangement for organ transplantation and no one of my family match with me …the day before surgery I knew that the last two kidney transplant surgeries had failed …you know what I said ?? I said okay .. this one will succeed ..

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I truly HOPE this one took for you Ebrahim!

COMMENT
@melabel

I was suppose to have a kidney transplant on March 26th, living donor. It has been postponed not sure when it will take place.

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@melabel – It has been a while since we heard from you, and I'm wondering how you are doing? You mentioned that your March 26 kidney transplant surgery has been postponed, and that has to have been extremely disappointing for both you and your donor.

It is my understanding that transplant surgeries have resumed in many areas, with added safety protocol.
How are you getting along? Have you heard from your transplant team or been rescheduled for your surgery?

COMMENT
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