Living with Mild Cognitive Impairment (MCI)

HABIT Healthy Action to Benefit Independence & Thinking

Welcome to the HABIT page for people living with Mild Cognitive Impairment (MCI) and program participants.  The HABIT Program is for individuals with MCI and their loved ones to learn the best strategies for adapting, coping, and living their best lives with MCI.

Follow the HABIT page to receive updates and information about adjusting to MCI and combating dementia. Our goal is to connect you with others and provide you with information and support.

PUBLIC PAGE
Nov 3, 2020

Repost: Getting Tough on False Claims About Supplements

By Dr. Melanie Chandler, HABIT FL Director, @drmelaniechandler

FDA

After a another article questioning the safety and efficacy of supplements for memory loss was published recently https://www.wired.com/story/prevagen-made-millions-fda-questioned-safety/, I thought I'd repost this blog from a couple of years ago as a reminder to fully read and understand the research behind any supplements you may take for your memory or cognition.

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On February 11, 2017 the FDA issued warning and advisory letters on 17 different companies claiming dietary supplements or unapproved new drugs helped treat or even cure Alzheimer's disease.  Read the full press announcement here.

It seems as long as there has been an ailment, there has been someone there willing to sell you something for it. When there is no strong medical treatment or no cure for a disease, the allure of buying (and potential profit to be gained from selling) only seems to worsen.

Snake Oil Salesman

We've posted before about evaluating research.  While we currently do not know the ultimate usefulness of any of the supplements and dietary aids whose company's have been reprimanded in these FDA warnings, we'd like to help our readers educate themselves further about the latest supplement or product for sale that may help their memory loss.

First, look for research on the supplement or product outside what the company advertises, emails, or prints themselves.  Sometimes big claims get based on little to no scientific backing.  There may be a claim that "research shows" or "scientists have proven", but you find no scientist outside the one they hired at the company (or no one at all) has actually proven anything.  Google the product and go to sites other than the seller's site.  Try searchable websites for research studies such as Google Scholar or PubMed to read research articles first hand.

Second, see if the supplement you are considering or already taking is a subject of an FDA warning. If you explore the FDA link above, you will find they have search engines to help you look and see if a supplement or device you are interested in has been given a warning or an advisory letter has been posted.

Finally, if you want to know the latest in new medicines, supplements, or treatments for memory loss, go to a trusted site such as the MCI page on www.mayoclinic.org.  Also, search the Alzheimer's Association's website. They regularly post about advances in research and the latest findings on alternative treatments.

Caveat emptor holds true in many aspects of life, and definitely when it comes to the latest craze in supplements to treat memory loss.

 

You may also be interested in this blog post: When medicines and supplements don’t mix

That's a great article. Every couple is different, but for us, when I quit searching for that "magic pill" that would make the MCI go away, it was an important milestone in our journey. We so want to find a "fix" for the problem and it's so tempting when they advertise so convincingly.

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It is best to be very careful. I'm not interested in anything that has not been at the very least FDA approved and then only under a Dr's supervision.

COMMENT

I appreciate the websites that you provided to check on the safety and research of meds and supplements. It is great to know where to go to find this kind of information! Thank you, Dr. Chandler.

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