Our Feel the Beat event is a fun-filled day featuring new and exciting research taking place at the Todd and Karen Wanek Family Program for HLHS, connecting HLHS families to others in the HLHS community and an opportunity to listen to and meet special guest speakers. This year we will be joined by Dr. Chris Moir, Mayo Clinic pediatric surgeon who led the team to successfully separate 5-month-old conjoined twins, Ethan Bortnick, a 14-year-old piano prodigy, and Joslynn Jarrett-Skelton, author of Charlie the Courageous. The day also highlights how our HLHS program is making a difference for the future of HLHS and how we can all come together to increase awareness and support for our HLHS warriors.
Come for the food, the fun, the opportunity to meet other HLHS families, and to learn how we’re changing the future.
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.
Send an email to invite people you know to join the HLHS page.