In 2015, Joslynn wrote the first book in a series inspired by her daughter, Charlie, titled Charlie the Courageous . The story is about a courageous, young girl given super powers to help support her special HLHS heart. Joslynn will be joining us at this year’s Feel the Beat event to lead a very special story time featuring Charlie the Courageous. Copyright Joslynn Jarrett-Skelton
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Questions? Feel free to contact our HLHS team at HLHS@mayo.edu.
Can’t make it to Rochester, MN on October 17? Head on over to Twitter that day to stay updated on the events and even ask our physicians and researchers any questions you may have using #feelthebeat2015. We will also have a webcast the day of the event for viewers to follow along. Stay tuned for more details!
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.
Send an email to invite people you know to join the HLHS page.