HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Tue, Apr 12, 2016 1:55am

Camp Odayin – Connecting children with heart disease

By Suzanne R. Ferguson, @suzannerferguson

We think it is important to highlight the other work being done in the field of congenital heart disease as well as provide information about other programs and resources that might be helpful to families. One of our team members recently informed us about a camp right in our own backyard. We would like to share this camp in the hopes it may help others looking for a way to within the CHD community. Camp-Odayin Camp Odayin provides fun, safe and supportive camp experiences and community building opportunities for young people with heart disease and their families. Founded in 2002, Camp Odayin welcomed 53 campers from 6 different states during a week of Residential Camp. In 2015, they served over 700 people through Residential Camp, Day Camp, Winter Camp, Family Camps and a Young Adult Retreat. Participants pay a minimal $25 registration fee per person to attend any camp program, and Camp Odayin raises funds to cover the remaining costs. Visit www.campodayin.org to learn more!

 


The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science, to diagnostic imaging to regenerative therapies.
Please login or register to post a reply.

Invite Others

Send an email to invite people you know to join the HLHS page.

We'll include this text in the user's invitation.