The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

Aug 6, 2018

What is Feel the Beat and why should you attend?

By Stephen Rowley, @sjrowley



The HLHS Feel the Beat event is a family-friendly event for anyone and everyone interested in learning more about hypoplastic left heart syndrome (HLHS) and the work the Todd and Karen Wanek Family Program for HLHS is doing.


Feel the Beat was created in 2013 as team members from the HLHS program were looking for ways to bring together HLHS families and a way to thank research participants for all that they’ve done for the program. Without support and participation from families, none of the program’s research work would be possible.


The sixth annual HLHS Feel the Beat event will take place this year on Saturday, September 8 at Mayo Clinic. This year’s theme is “evolution” of the program so you will get a chance to see how far the HLHS program has come and what has been accomplished. We hope you can join us and make sure you register for the event!


The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of finding solutions for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies. Email the program at HLHS@mayo.edu to learn more.


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