HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Nov 13, 2019

New Long-Term Guidelines for Patients after Fontan

By Brianna N. Tranby @briannatranby
“Evaluation and Management of the Child and Adult with Fontan Circulation: A Scientific Statement from the American Heart Association.” Circulation.2019; 140:e234-e284 The American Heart Association (AHA) recently proposed new guidelines for how patients with Fontan circulation should be monitored for potential complications. The article also proposed a “Fontan [...]
New Long-Term Guidelines for Patients after Fontan
Oct 31, 2019

Interview with Kate Praska, RDMS – Obstetrics Sonographer (Part 2/2)

By Brianna N. Tranby @briannatranby
  October is Ultrasound Awareness Month. Because 60-70% of HLHS cases are diagnosed in utero by ultrasound, the ultrasound sonographer often plays a crucial role in a family’s HLHS journey.  Earlier this month, we shared Part 1 of our interview with Kate Praska, RDMS, an obstetrics (OB) sonographer [...]
Interview with Kate Praska, RDMS – Obstetrics Sonographer (Part 2/2)
Oct 29, 2019

Interview with Kate Praska, RDMS – Obstetrics Sonographer (Part I)

By Brianna N. Tranby @briannatranby
  October is Ultrasound Awareness Month. Because 60-70% of HLHS cases are diagnosed in utero by ultrasound, the ultrasound sonographer often plays a crucial role in a family’s HLHS journey. I sat down with Kate Praska, RDMS, an obstetrics (OB) sonographer at Mayo Clinic who has 30 [...]
Interview with Kate Praska, RDMS – Obstetrics Sonographer (Part I)
Oct 7, 2019

#ResearchRecap – Good Health Behaviors in Adults with CHD

By Brianna N. Tranby @briannatranby
  Good health behaviors are defined as “actions that individuals take to maintain or enhance their health and reduce health risks” and are especially important for individuals with congenital heart disease (CHD), including hypoplastic left heart syndrome (HLHS).  But how likely are adults with CHD to actually maintain [...]
#ResearchRecap – Good Health Behaviors in Adults with CHD
Oct 7, 2019

This Year’s Agenda for Feel the Beat!

By Brianna N. Tranby @briannatranby
  We’re in the home stretch – only five more days until Feel the Beat 2019! Be sure to RSVP if you haven’t already. The agenda for the day is below.  And for those of you who can’t make it in person, we’re excited to share that [...]
This Year’s Agenda for Feel the Beat!

Invite Others

Send an email to invite people you know to join the HLHS page.

Please login or register to send an invite.