About Connect: Who, What & Why

Mayo Clinic Connect is an online community that connects people. In the About Connect page, find out more about Mayo Clinic Connect mentors, members and the community. Meet the team of Mayo Clinic moderators and how the community is managed.  Review the community guidelines and learn how you can get the most from your Connect experience.

Each week a Member Spotlight features a members of your Connect community. Follow the About Connect page to get updates about members and the community. 

PUBLIC PAGE
Fri, Apr 27, 2018 9:15am

Searching for Answers With Others: Meet @johnbishop

By Jen, Volunteer Mentor, @sandytoes14

Member Spotlights feature interviews with fellow Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

John Bishop

 

JEN: What brought you to Mayo Clinic Connect?

@johnbishop: My Mayo Clinic neurologist diagnosed me with idiopathic small-fiber polyneuropathy (SFPN) and confirmed my worst fear: there are no available treatments that help with the numbness associated with polyneuropathy, just drugs to mask the pain.

After a nanosecond of being depressed, I decided to do my own research to find something that worked for me. During one of my late evening Internet search fests, I ran across a Connect discussion thread and had to join before I could post. The rest, as they say, is history.  

P.S. I am glad I found Connect!

JEN: What about Connect makes you feel comfortable to share and to be open with the community?

@johnbishopConnect makes me feel comfortable to share and be open because its members are all looking for answers for their health concerns, which means that we can, hopefully, learn from each other.

JEN: What groups do you participate in?

@johnbishop: I participate mostly in the Autoimmune Diseases and Neuropathy Groups, but I have been known to lurk in other groups and discussions because I want to learn more. It also helps me with my daily goal: learn at least one new thing per day.

JEN: Who has been a special connection for you on Connect?

@johnbishop: To be honest, anytime I am able to provide a member of Connect something that is helpful or helps them be a better advocate for themselves, that gives me the feeling of a special connection.

JEN: What surprised you the most about Connect?

@johnbishop: The Connect community itself: I admire how members reach out to find out about their own health concerns and share what they have learned with others — the support and strength they give each other to be better advocates for themselves.

JEN: What energizes you, or how do you find balance in your life?

@johnbishop: My wife, and primary caregiver, energizes me — or rather, gives me attitude adjustments when needed. Fortunately for me, this doesn’t happen too often. She helps me keep my priorities straight and offers encouragement when I need it.

JEN: Tell us about your favorite pastime or activity.

@johnbishop: Looking out my computer room window at the bird feeder and daydreaming, and taking photos of birds and other creatures from my window are some of my favorites. I also love going out for coffee with the guys, Saturday morning breakfast with my daughter and cuddling with my wife.

JEN: Do you have a favorite quote, life motto, personal mantra?

@johnbishop: To the question, “How are you?”

I’d say, “Finer than frog’s hair split three ways!”

JEN: What do you love about where you live or vacation?

@johnbishop: I love living in a small Minnesota town where everyone knows me as “Lavon’s husband.” It’s a quaint little town with a nice restaurant, two coffee shops, a courthouse, two antique stores, and, most importantly, The Chocolate Shoppe.

See more Member Spotlights.

@johnbishop, Thank you for sharing your story. I have already met you in several discussion groups on Connect, and I have learned much from you about how to be the best advocate for my own health. I know that you are helping many members along with me by your example and your willingness to help others.
Keep on doing what you are doing!
Rosemary

@rosemarya

@johnbishop, Thank you for sharing your story. I have already met you in several discussion groups on Connect, and I have learned much from you about how to be the best advocate for my own health. I know that you are helping many members along with me by your example and your willingness to help others.
Keep on doing what you are doing!
Rosemary

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Thank you for the kind words Rosemary @rosemarya! You all are my heroes and I have learned much from you and others here on Connect also.

@rosemarya

@johnbishop, Thank you for sharing your story. I have already met you in several discussion groups on Connect, and I have learned much from you about how to be the best advocate for my own health. I know that you are helping many members along with me by your example and your willingness to help others.
Keep on doing what you are doing!
Rosemary

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@johnbishop John:

I always enjoy your down to earth approach to everything – must be that small town atmosphere where you are known as "Lavon's husband."

@rosemarya

@johnbishop, Thank you for sharing your story. I have already met you in several discussion groups on Connect, and I have learned much from you about how to be the best advocate for my own health. I know that you are helping many members along with me by your example and your willingness to help others.
Keep on doing what you are doing!
Rosemary

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Thanks Teresa @hopeful33250, it is a great place to live. There are times when I miss the warm weather though. You should see the town the weekend after Labor Day when the Marigold Days celebration is on. Seems like the town explodes to a gazillion people, or at least that's what it seems like when I'm trying to make a left turn onto the highway out of town.

http://www.marigolddays.com/

@rosemarya

@johnbishop, Thank you for sharing your story. I have already met you in several discussion groups on Connect, and I have learned much from you about how to be the best advocate for my own health. I know that you are helping many members along with me by your example and your willingness to help others.
Keep on doing what you are doing!
Rosemary

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Marigold days looks like a beautiful event!

Thanks, John, for your candid and heart-warming answers to our interrogating comrade! As I read your spotlight, I had an unusual feeling that I wasn't learning very much from your answers; then I realized that was not so odd, because you are so out-and-about every day when you weigh in with your helpful, humorous, and handy suggestions for Connect members who look to you for counsel. Glad to have this added chance to align with you on Connect! Martin

@predictable

Thanks, John, for your candid and heart-warming answers to our interrogating comrade! As I read your spotlight, I had an unusual feeling that I wasn't learning very much from your answers; then I realized that was not so odd, because you are so out-and-about every day when you weigh in with your helpful, humorous, and handy suggestions for Connect members who look to you for counsel. Glad to have this added chance to align with you on Connect! Martin

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Thanks Martin! Volunteering on Connect has been one of the most rewarding opportunities I've had.

Martin said it so well!

Teresa

@johnbishop– John, yoor posts I found early on that I felt I could relate to and understand. Lots of great commomsense and friendlyness! Your ways of encouraging I find myself being so receptive to and always appreciate reading through them. Thank you for what you bring to all the Connect Groups nearly every day! God bless you & Lavon.

@thankful – Thank you for the kind words! I really appreciate your feedback.

Great thoughts, and such a positive attitude.

You sound like a great guy, John. I like your description of your town. And birds!

John thanks for your efforts, I think I know what keeps you doing what you do & that is a positive attitude which is what you pass on to people that not only have PMR but other autoimmune problems. Now I have not shaken my PMR I am still on 5mg/day would like to decrease but I still have effects of PMR mainly in all my finger knuckle joints. The rest of my joints in my body are doing well. It now has been 14 months since I came down with PMR started with 20mg now down to 5 mg & again with no side effects that I can tell but then who knows what is lingering inside my body. Am still active riding my bicycle, motorcycle, gym work 4 days a week & spending a lot of time at the police dept. as a volunteer police. The secrete with this PMR is keep active & busy. Again John thanks for your inputs.

@rolandhp

John thanks for your efforts, I think I know what keeps you doing what you do & that is a positive attitude which is what you pass on to people that not only have PMR but other autoimmune problems. Now I have not shaken my PMR I am still on 5mg/day would like to decrease but I still have effects of PMR mainly in all my finger knuckle joints. The rest of my joints in my body are doing well. It now has been 14 months since I came down with PMR started with 20mg now down to 5 mg & again with no side effects that I can tell but then who knows what is lingering inside my body. Am still active riding my bicycle, motorcycle, gym work 4 days a week & spending a lot of time at the police dept. as a volunteer police. The secrete with this PMR is keep active & busy. Again John thanks for your inputs.

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Hi Roland, I think you broke the code about staying active as much as you can without overdoing it. It’s good to hear you are doing OK and I wouldn’t give up hope about the PMR going into remission. My first bout with PMR lasted 3 years. This second time was about a year and a half. Have you tried using the 2.5 mg and 1 mg tablets when tapering down? That way you don’t have to drop from 5 mg to 0. When I got close I went to 2.5 for a week and then 2 mg, then 1 mg. If it hurts too much I would go back up to the next dose for a few days to see if the pain subsided. Kudos for volunteering at the police dept….that’s great.

John, I again wish to thank you for getting directed to the correct area for health concerns and actually making it simple for me to connect on this website.. You seem to really care about others and have a well-balanced home life. So glad to have met you on this website. You mentioned in one of your posts that you have a neurological issue, polyneuropathy, and I wish you well with it.

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