About Connect: Who, What & Why

Mayo Clinic Connect is an online community that connects people. In the About Connect page, find out more about members, mentors and the community. Meet the team of Mayo Clinic moderators and how the community is managed.  Review the community guidelines and learn how you can get the most from your Connect experience.

Twice a month, a member of your Connect community is featured in the Member Spotlights. Follow the About Connect page to get updates about members and the community.

PUBLIC PAGE
Fri, Jul 26 9:00am

Transforming stigma to acceptance: Meet @jakedduck1

By John, Volunteer Mentor, @johnbishop

Member Spotlights feature interviews with fellow Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

2019.7.19. @jakedduck1 Leonard Connect member spotlight image

JOHN: What brought you to Connect? What motivates you to take part in the community?

@jakedduck1: I’ve always known about Mayo Clinic, but a few years back I was going to have shoulder replacement surgery in New York City, and the doctor wanted me to go to Mayo for a neurological evaluation for seizures. Ultimately, the doctor felt I was high-risk and refused to operate. So, I never went to Mayo, but I saw Connect when looking up Mayo Clinic. Later, I was looking for something about epilepsy and noticed an epilepsy question. So I joined and gave my 2 cents worth of advice. 

JOHN: What about Connect makes you feel comfortable to share, to be open with the community?

@jakedduck1: The acceptance by other members on Connect is very important and is what makes me feel most comfortable. In the ‘60s when I developed epilepsy, there were no support groups or forums available. I didn’t know anyone who had epilepsy. The stigma was bad then, and people didn’t talk so openly about it. When you see how open others are now about their illnesses and problems, I believe it makes everyone more at ease and feel better about sharing, knowing people want to help. I feel motivated to try and help if I can, and by me being open, I hope it helps others to see there is no shame or reason to be embarrassed. My main goal here is to help get rid of the stigma, shame, embarrassment, rejection and fears associated with epilepsy, but other illnesses, as well, and try to help people to be all that they can be. 

JOHN: What groups do you participate in?

@jakedduck1:

About Kids & Teens
Autoimmune Diseases
Bones, Joints & Muscles
Brain & Nervous System
Brain Tumor
Caregivers
Depression & Anxiety
Ear, Nose & Throat (ENT)
Epilepsy & Seizures
Healthy Living
Men’s Health

I also follow the About Connect: Who, What & Why, Blood Donor Program and Mayo Clinic Champions pages on Connect.

JOHN: Who has been a special connection for you on Connect?

@jakedduck1: The Epilepsy & Seizures group and all the members there having had epilepsy for 52 years I can relate to many of their problems. 

@brightwings sent me a private message early on and welcomed me. @becsbuddy has been a rock to me in the Caregivers group. However, I don’t mean to diminish anyone’s contribution. I’m eternally grateful for everything everyone has said. You “kids” have truly kept me going. 

I enjoy communicating with @lioness  — we can tease each other — and @imallears, one of my cooking coaches. Although she has excellent suggestions, I’m afraid I’m a lost cause in the kitchen and as a domestic engineer. I like what Phyllis Diller said, “Housework won’t kill you, but why take the chance?”  

I agree. Better safe than sorry, and I’m very safe!

JOHN: What surprised you the most about Connect?

@jakedduck1: The kindness and helpfulness of Connect director Colleen Young. I like that she is such an active participant, and the fact that she and the team are open to suggestions from members on ways that may improve Connect even more. I had a few rough spots; she helped guide me through. I thought she might kick me off Connect, but instead she supported me, giving welcome guidance. 

JOHN: What energizes you, or how do you find balance in your life?

@jakedduck1: Most important would be my faith. Also, I believe it’s necessary to give of yourself to family, friends and the community. I volunteered at the YMCA, at the county hospital in billing, did crime analysis at the police department, and worked in a homeless shelter and other places. 

Although difficult at times, it makes me feel good caring for my mother and being able to give a little back, except when I have to go through the drudgery of cooking or being in the kitchen for whatever reason. I helped care for my Dad, who was paralyzed, until he passed away in 1987. My parents were awesome and gave up so much taking care of me. I donate platelets at the Red Cross every two weeks, and most of mine go to cancer patients.

JOHN: Tell us about your favorite pastime or activity.

@jakedduck1: Travel in the U.S. I love Mt. Shasta. It’s my favorite mountain. I sit and admire it for hours. I want to visit the East Coast, starting in New England. I usually stay close to home, as California has so much to see and do, and the ocean, mountains and desert are relatively close. I’m not much of a gambler, but I enjoy Las Vegas, about seven hours away. I love zoos. Visiting the San Diego Zoo is on my to-do list.

JOHN: Do you have a favorite quote, life motto or personal mantra?

@jakedduck1: There are so many, it’s impossible to choose, except for the first one:

“Do unto others as you would have them do unto you.”
“The only person we need to be better than is the person we were yesterday.”
“We need to make someone happy today, and we need to start with ourselves.”

JOHN: What do you appreciate the most in your friends?

@jakedduck1: Most of them are gone now, but unquestionably that they feed me, which comes in handy since I find my kitchen so abhorrent. They are honest, loyal, kind and overly generous. They always include me in their family functions. They come to my rescue whenever I need them.

JOHN: What food can you simply not resist?

@jakedduck1: Candy, although Reese’s is a favorite. I seldom have them anymore, since eating one full of almond moth larvae (check bottom before eating). See’s candies are my favorite, especially See’s Bordeaux.

See more Member Spotlights.

@jakedduck1 — Thank you for sharing and letting us get to know you a little better!! You are not alone when it comes to eating candy without checking it ☺
Hope you have a great Friday!

COMMENT

@jakedduck1, Leonard

It is great to get to know you a bit better. Candy works well for me and See's is a favorite of mine until I learned of a Canadian candy company called Purdy's Chocolatier. Since I live in SE Michigan, the Canadian border is not that far if I need a Purdy's fix. (You can also order off their website.) I appreciate your helpful remarks in the epilepsy group. I hear your compassion through your posts. By the way, how did you pick the name jakedduck1? Are ducks a favorite of yours?

@johnbishop, Thanks for bringing Leonard to the Spotlight for us to meet!

COMMENT

@jakedduck1 That was a good spotlight and nice to get to know more about you Leonard.YEs I enjoy sparring with you . Keep your kitchen clean

COMMENT

@jaked
Thank you so much for sharing. The spotlight was very informative. Your kind heart comes through!
I appreciate all your input!
It was nice to meet your and get to know you!
Happy Friday,
Ronnie (GRANDMAr)

COMMENT

@jakedduck1 I love the Spotlight! And your humor really adds to my day! Your volunteering at a homeless shelter is also what I did befor I got sick. I combined that with your favorite pastime—cooking! Once a month, I cooked enough dinner to feed 100 at the homeless overflow shelter. Lots of work but I loved it! Take care, Leonard, and say hi to your mom.

COMMENT

Thank you for sharing more of yourself with us!

COMMENT
@johnbishop

@jakedduck1 — Thank you for sharing and letting us get to know you a little better!! You are not alone when it comes to eating candy without checking it ☺
Hope you have a great Friday!

Jump to this post

@johnbishop
Hi John,
Not sure if you thought up the title or not but I like it. That’s my purpose, to help rid the world of stigmas. I hope I can get a few people to be a little kinder and a bit more strict understanding. No medical condition should have a stigma but sadly many still do. I dream of the day when they will be a thing of the past. My first and most hurtful stigma experience happened 48 years ago and unfortunately it’s as clear today as it was then. I have forgotten so much, why must I remember that?
@hopeful33250
I’ve already checked out Prudy’s and will be ordering some, our little secret.
My username, I use to mow a friends lawn and every week there would be a duck beanie baby on the patio. The ducks name is Jake. I was going for
Jaketheduck but that wasn’t available so jakedduck. Yes I love 🦆 duckies, to watch and feed. My brother said we each had a duck but I don’t remember those days. I love dogs and cats but would love to have a duck.
@Erinmfs
Thanks for your kind words.
@lioness
So, what’s on the New Year’s Day menu Linda, besides sauerkraut and sausage(?) I forgot what kind of meat.
@johnbishop
Be sure to check your candy. Almond moth larvae is awful.
Jake

COMMENT
@jakedduck1

@johnbishop
Hi John,
Not sure if you thought up the title or not but I like it. That’s my purpose, to help rid the world of stigmas. I hope I can get a few people to be a little kinder and a bit more strict understanding. No medical condition should have a stigma but sadly many still do. I dream of the day when they will be a thing of the past. My first and most hurtful stigma experience happened 48 years ago and unfortunately it’s as clear today as it was then. I have forgotten so much, why must I remember that?
@hopeful33250
I’ve already checked out Prudy’s and will be ordering some, our little secret.
My username, I use to mow a friends lawn and every week there would be a duck beanie baby on the patio. The ducks name is Jake. I was going for
Jaketheduck but that wasn’t available so jakedduck. Yes I love 🦆 duckies, to watch and feed. My brother said we each had a duck but I don’t remember those days. I love dogs and cats but would love to have a duck.
@Erinmfs
Thanks for your kind words.
@lioness
So, what’s on the New Year’s Day menu Linda, besides sauerkraut and sausage(?) I forgot what kind of meat.
@johnbishop
Be sure to check your candy. Almond moth larvae is awful.
Jake

Jump to this post

Hi @jakedduck1 I'm looking forward to hearing your opinion on Purdy's chocolate. I'm sure @colleenyoung will agree that the Canadians do chocolate better than we do!

COMMENT
@jakedduck1

@johnbishop
Hi John,
Not sure if you thought up the title or not but I like it. That’s my purpose, to help rid the world of stigmas. I hope I can get a few people to be a little kinder and a bit more strict understanding. No medical condition should have a stigma but sadly many still do. I dream of the day when they will be a thing of the past. My first and most hurtful stigma experience happened 48 years ago and unfortunately it’s as clear today as it was then. I have forgotten so much, why must I remember that?
@hopeful33250
I’ve already checked out Prudy’s and will be ordering some, our little secret.
My username, I use to mow a friends lawn and every week there would be a duck beanie baby on the patio. The ducks name is Jake. I was going for
Jaketheduck but that wasn’t available so jakedduck. Yes I love 🦆 duckies, to watch and feed. My brother said we each had a duck but I don’t remember those days. I love dogs and cats but would love to have a duck.
@Erinmfs
Thanks for your kind words.
@lioness
So, what’s on the New Year’s Day menu Linda, besides sauerkraut and sausage(?) I forgot what kind of meat.
@johnbishop
Be sure to check your candy. Almond moth larvae is awful.
Jake

Jump to this post

Hi Jake! @jakedduck1 — I think the credit for the title goes to @colleenyoung and @lisalucier. I like it much better than the one I had thought might be good.

Never had candy with almond moth larvae but my wife did buy a Snickers in a small country tavern we visited. I was playing pool with my step father and I saw that my wife had purchased my favorite candy and I gently took the candy bar from her hand and took a big bite and gave it back to her. She was so mad that she wrapped it up and put it back in her purse. I told her it tasted really bad like the peanuts were rotten and went ahead and swallowed it anyway. When we got home she took the candy out of her purse and started laughing. Then she showed me and said look what you ate…it was wiggling! I made myself a promise to never buy candy in a tavern/bar again.

COMMENT
@becsbuddy

@jakedduck1 I love the Spotlight! And your humor really adds to my day! Your volunteering at a homeless shelter is also what I did befor I got sick. I combined that with your favorite pastime—cooking! Once a month, I cooked enough dinner to feed 100 at the homeless overflow shelter. Lots of work but I loved it! Take care, Leonard, and say hi to your mom.

Jump to this post

@becsbuddy
My favorite pastime Cooking, yeah right, now that’s funny! Thanks for cheering me up today. I’m out of food too. Maybe if I whine and snivel one of my friends will take pity on me. To bad your not still cooking, I could become homeless, a bit drastic I suppose but anything is better than cooking or attempting to cook.

COMMENT
@hopeful33250

Hi @jakedduck1 I'm looking forward to hearing your opinion on Purdy's chocolate. I'm sure @colleenyoung will agree that the Canadians do chocolate better than we do!

Jump to this post

@hopeful33250
Placed my Prudy’s order. That stuff don’t come cheap. My order will ship Wed and should arrive the following Friday. Wish they had a list and explanation of every piece they make. I didn’t see it on the site. Thank you for mentioning it.
In Santa Cruz, Ca there is an excellent candy store.

https://mariniscandies.com/

http://m.donnellychocolates.com/#2913

Ever been there Erin?
The chocolate covered bacon is scrumptious as are the chocolate covered apricots and Carmel’s and fudge and taffy and and and, I’m losing control.
I’ll order some from here when I reach my goal of 145 pounds, 17 more to go. Then a bunch of candy and a root beer float and a cheesecake with a Dr. Pepper. I may not be skinny long but I’ll sure be happy, at least temporarily.
Jake

COMMENT

@jakedduck1 – Great article. Thanks for sharing. It was nice to get to know you better. Stay on the Recipes & Food thread… you are getting there. You make us happy.

COMMENT

Great profile, @jakedduck1 So nice to know you a little better.

It seems as if chocolate is a downfall for many of us. Ever heard of Burdick’s? It started in NH and one year was named the best chocolates in the country by Consumer Reports. They really are wonderful, served in many 5 star restaurants, with shops now in NYC and Boston. Harbor Sweets in MA is very good too, but not as special as Burdicks.

It sounds as if you’ve done a lot of “giving back”. Your caring nature does shine through. If you lived closer I would definitely be having you over for dinner. I bet if you could get over your abhorrence of the kitchen, that you would actually be able to cook!
JK

COMMENT
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