ronaldpetrovich

Ronald Petrovich @ronaldpetrovich

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Blood Donor ProgramBones, Joints & MusclesCancerDigestive HealthHypertrophic Cardiomyopathy (HCM)Men's HealthTransplants

Activity by Ronald Petrovich @ronaldpetrovich

ronaldpetrovich

Hi @rushtonrocks

I cannot advise you on your particular case and recommend that you ask your surgeon about that. In my experience, I had a septal myetcomy and double bypass on a Tuesday and was released from the hospital on a Saturday. This was in December of 2015 and today, I feel great. The following week at home was tough and thankfully my wife helped me through it.

I currently work in Rochester in the Public Affairs department at Mayo and if you would ever like to talk about my situation and recovery and if our schedules could work, I'd be glad to say hello to you in person while you are visiting. My experience was very positive, but there were some challenges. If you want to connect, just send me a message with your contact information and I'll follow up. Thanks Ron

ronaldpetrovich

Hi Maysa, I'm OK sharing things but something very important to mention. When I met with the physicians, they said very simply, it's a matter of how you feel and that's the main barometer. I too had run marathon's and when I couldn't walk just one house away or up a few stairs, I knew I was having problems. Please connect with me via a private message over this forum and let's talk. Thanks

ronaldpetrovich

Hi Maysa, Here is how I was diagnosed http://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-the-flu-a-grocery-store-clinic-and-a-mayo-clinic-nurse-may-have-saved-my-life/ .

Following this, several months later I had the surgery. Here is what my physician and I had to say on the Mayo Clinic Radio Show a few months after the surgery. http://newsnetwork.mayoclinic.org/discussion/mayo-clinic-radio-hypertrophic-cardiomyopathysacroiliac-joint-painhot-tubs-and-health/

And then during recovery, here is what rehab was like for me http://newsnetwork.mayoclinic.org/discussion/cardiac-rehab-smart-for-healing-hearts/

Hope this helps a little more.

ronaldpetrovich

Hey Tom,
I'm in Rochester, work at Mayo in Communications and had a septal myectomy last year. If you would like to talk in person, and if you have any time on Thursday, maybe we can get together if our schedules work. Feel free to private message me.

ronaldpetrovich

Absolutely, I'll share whatever you feel you need. Let's set up time to talk. How does Thur or Fri look? Feel free to private message me with your availability and contact information.

ronaldpetrovich

Welcome to the group Maysa. As Cynthia mentioned you have come to the right place. Under Colleen's direction, The Connect Team is very helpful as well as the Facebook group that Cynthia runs. I have worked at Mayo the past six years in Public Affairs, in Rochester, and had a septal myectomy last year. It was worth it from my personal standpoint. If you decide to come to Rochester for treatment and have interest, I would love to meet with you, in person, and I can share our experience. Just reach out to me on Connect or through the Mayo HCM Patients Facebook group. The care I received was outstanding and the procedure changed my life. These social media groups helped my family and me a great deal in making informed decisions about what was right for us.

ronaldpetrovich

Cynthia, this group is so fortunate to have you and all your dedicated efforts to educate and help people with HCM. I was diagnosed with HCM about 1.5 years ago while visiting a NP for the flu. She heard a murmur and a few hours later after an echocardiogram they said I had HCM. I tried medicine for several months and still felt rotten, so last December I underwent a septal myectomy at Mayo and now feel wonderful. It's changed my life and I have not felt this good in 30 years. (I'm 55 now) The care here has been outstanding from diagnosis to rehab. I look forward to contributing when I can to the group and offering the patient perspective.

ronaldpetrovich

thank you for the invitation, yes, I look forward to being a member of this group.

ronaldpetrovich

Hi Barbara, I think your concerns about something happening are normal and every patient has those thoughts before surgery. They are shutting your heart down and putting it on a machine for at least 30 minutes, slightly scary. I had a septal myectomy and a double bypass two months ago today. I'm now back at work full-time, working out 5 days a week and feel better than I have in 20 years. I reached a point where I just felt so bad I opted for the procedure because my quality of life was not where I wanted it. The team at Mayo was unbelievable and every day I improved after surgery. They do so many heart surgeries here, (I also work at Mayo) they have it down and have seen so many scenarios, that they are prepared for anything. I can't say the first two weeks after surgery was giggles and grins, but two days after surgery, I could tell that my heart was working better. Yes, there was pain, but with proper rehab, you'll get past that. I'm still a little sore, but functioning really well. I had been following many of the conversations on the HCM Mayo Patients from people who had this procedure, and it's got a very low complication rate and most people were pleased with their outcomes. To me, it was a life changer and it is working out beautifully.

ronaldpetrovich

I recently underwent surgery for HCM with a septal myectomy. Last April, my tests began immediately after a nurse practitioner discovered a heart murmur. It began with an echocardiogram, where my hypertrophic cardiomyopathy with obstruction was discovered. After that, I was scheduled for a chest X-Ray, MRI, electrocardiogram, extensive blood tests and had to wear a holter monitor for several days. I also had a stress test on a treadmill. Prior to surgery several months later, I had more blood work, a chest X-Ray, another echocardiogram, and an angiogram which was all standard. Full-disclosure, I am a Mayo employee and I am lucky that it was discovered here. Somebody was looking over my shoulder. That alone says something about this outstanding center of excellence for cardiovascular issues and in my case, HCM.

ronaldpetrovich

May 25, 2012 by @ronaldpetrovich in Just Want to Talk · View  

HI Roxie, thank you for participating in this discussion. It was not flagged but please watch the language. Even p...o might be offensive to people and we want to keep it clean so everyone feels comfortable in this forum. @roxie43

roxie43

Roxie43 responded May 25, 2012 · View

Can you tell me where po is so I can edit?

roxie43

Roxie43 responded May 25, 2012 · View

It was edited. Just don't understand how enduring cruelty and finally becoming assertive can be offensive. Nonetheless, the comment was edited. Thanks.. If you look at the increased activity since Piglit, Momentum and I started posting discussions you will note that a lot of people can identify and the discussions are growing in numbers l.

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