Ronald Petrovich @ronaldpetrovich
Groups I FollowBlood Donor ProgramBones, Joints & MusclesCancerDigestive HealthHypertrophic Cardiomyopathy (HCM)Men's HealthTransplants
Activity by Ronald Petrovich @ronaldpetrovich
Cynthia, this group is so fortunate to have you and all your dedicated efforts to educate and help people with HCM. I was diagnosed with HCM about 1.5 years ago while visiting a NP for the flu. She heard a murmur and a few hours later after an echocardiogram they said I had HCM. I tried medicine for several months and still felt rotten, so last December I underwent a septal myectomy at Mayo and now feel wonderful. It's changed my life and I have not felt this good in 30 years. (I'm 55 now) The care here has been outstanding from diagnosis to rehab. I look forward to contributing when I can to the group and offering the patient perspective.
Hi Barbara, I think your concerns about something happening are normal and every patient has those thoughts before surgery. They are shutting your heart down and putting it on a machine for at least 30 minutes, slightly scary. I had a septal myectomy and a double bypass two months ago today. I'm now back at work full-time, working out 5 days a week and feel better than I have in 20 years. I reached a point where I just felt so bad I opted for the procedure because my quality of life was not where I wanted it. The team at Mayo was unbelievable and every day I improved after surgery. They do so many heart surgeries here, (I also work at Mayo) they have it down and have seen so many scenarios, that they are prepared for anything. I can't say the first two weeks after surgery was giggles and grins, but two days after surgery, I could tell that my heart was working better. Yes, there was pain, but with proper rehab, you'll get past that. I'm still a little sore, but functioning really well. I had been following many of the conversations on the HCM Mayo Patients from people who had this procedure, and it's got a very low complication rate and most people were pleased with their outcomes. To me, it was a life changer and it is working out beautifully.
I recently underwent surgery for HCM with a septal myectomy. Last April, my tests began immediately after a nurse practitioner discovered a heart murmur. It began with an echocardiogram, where my hypertrophic cardiomyopathy with obstruction was discovered. After that, I was scheduled for a chest X-Ray, MRI, electrocardiogram, extensive blood tests and had to wear a holter monitor for several days. I also had a stress test on a treadmill. Prior to surgery several months later, I had more blood work, a chest X-Ray, another echocardiogram, and an angiogram which was all standard. Full-disclosure, I am a Mayo employee and I am lucky that it was discovered here. Somebody was looking over my shoulder. That alone says something about this outstanding center of excellence for cardiovascular issues and in my case, HCM.