contentandwell

@contentandwell

Activity by @contentandwell

contentandwell

@gailb, I apologize if you took my comments personally, they were not intended that way. When I prepare dinner I generally prepare something that we both can eat but then additional things for my husband. I usually have some meat or fish and a salad, but I make a starch for him also. Some nights I do cook a different meal for him, generally I will try to do something where the two meals can be somewhat coordinated so they are not totally different, for instance I will have fish and prepare a steak for him, or if he wants pizza or something that I do not want to eat I will have a salad with something on it like chicken, or shrimp.
This was not to "protect" @noreenf, it was simply a statement that we cannot all do as you suggest.
I do not want my husband to sound unkind for not wanting to prepare his own meals. In other ways, particularly in the last month and a half prior to transplant, he was a saint, doing basically everything. He was good through the whole thing but for most of the waiting time I felt well and was pretty self-sufficient.

contentandwell

@gailb, every couple has it's quirks. If I expected my husband to cook for himself he would be very hostile and either eat out of just unhealthily graze.

contentandwell

@amberpep sorry for the confusion. I am six months post-transplant. I had non-alcoholic cirrhosis, apparently from NASH. The transplant was wonderful, I have felt great from around the second month. I will be forever grateful for this gift.
JK

contentandwell

@noreenf, myfitnesspal basic, which is what I use, is free and connects with your smart phone -- Iphone and androids I believe. I personally shy away from meetings.
Myfitnesspal is what you make of it. Initially I was sooooo good. I would not grab some little snack on the way by simply because it was there, I realized if I did I would HAVE to put it into myfitnesspal. Some days I would try so hard to be good that my caloric input was not what they deemed was healthy in which case they would chide me and not give the end of day assessment! The end of day assessment tells you calories, fat, carbs, sodium and a couple of other things, if you have a fitness monitor that connects with your phone it also connects with that data and subtracts the number of calories it calculates you burned. Then it tells you if you keep that up what you will weigh in five weeks.
I am pretty much where I want to be, I would like to lose a few more pounds as a "cushion" so I have less incentive now and am cheating a bit. I had my calorie goal set at 1200 but now I have upped it to 1300. They add how many additional calories you can have based on that day's activities. You can manually input activities too if you can estimate what you have done.
Get back on your treadmill. I know it's tough. I hadn't done the treadmill at my club in many, many months but I did it yesterday and overdid it. I was on it for more than a half hour and did three miles. My legs are very tired today but I did still go to my morning water aerobics. I swear, if I don't exercise I gain a pound!
If you know other people using myfitnesspal, you can connect with them and encourage each other. My daughter told me about this app and she is my friend on it but she very rarely uses it. Occasionally she puts on a couple of pounds and then she does it until she loses that.

contentandwell

@noreenf, as I said in my prior post, I lost so much weight on myfitnesspal.com that I am a huge advocate of it. I have lost weight in the past, like you, but not this well. That, my fitness tracker, and pool exercises have really kept me going. At my highest I was about 90 pounds more than I am now. On my fitness tracker you set a goal and if I don't reach my goal I get so mad at myself. I keep upping it by small amounts but more often than not I go beyond my goal by quite a bit. If evening rolls around and I am not at my goal I jump on my recumbent bike and pedal away -- BORING. My son's boss recently bought the same fitness tracker and he tells me I would crush his boss. My son is so proud of me for having done so well. He is a real fitness addict, food and exercise.
JK

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@amberpep Abby, thank goodness it's behind you now. There are a few different topics I participate in, one being about liver transplant. I presume you are not on that one and not either waiting for a transplant or post-transplant. I am and cannot take anything non-rx other than tylenol for pain. I think I can still take oxycodone, which for some weird reason keeps me awake at night so I do not like to take it.
Tylenol is so worthless.
JK

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@rosemarya I did mention it at my appointment and they did say the immunosuppressants can cause these but they also suggested I have a thyroid check with my PCP. I am on the lowest dosage of levothyroxine, thyroid medication, so I doubt it is that though unless a transplant can also cause your thyroid to function better. I have an appointment with my PCP in May so I will probably wait until then. I have gotten to a point of avoiding him. This may sound odd, but whereas he was incredibly caring and great when I first started going to him a couple of years ago, he now seems to not like me. I have no idea what could have caused that except for the fact that I have asked some questions, but so be it. Go figure.
JK

contentandwell

@amberpep, good luck with your surgery and just think of how good it will be when it is all done and you are able to eat normally again. I too have dentures, with implants, and it was extremely expensive but I am so glad I was able to scrimp and go that route. Funny note, when I told my son I was getting implants he took it the wrong way and after he got over the shock he said "WHY MOM?".
JK

contentandwell

@minda77 I noticed your post was back in October so I hope things are going better for you now. I too am a food addict. I find if I have something that I really like it's hard not to take additional helpings of it, whether it be sweets, cheezits, or anything along that line. I have lost about 50 pounds in the last year or so, more before that. The two biggest aids for me were using myfitnesspal.com to track my food, it really makes you accountable and helps you resist grabbing that cookie that you may walk by or whatever else. The other was using a fitness tracker. I use Misfit because it's one of the few you can use in the water and the biggest part of my exercise is in the water due to two bad knees. Water exercises do not have the impact on your knees that other exercises do, but they really can be a good workout. I find that it is what you make it to be. Some people in the class do things more leisurely, and let's face it, that's not helping much. You really have to put out an effort. I wanted to lose weight because I was waiting for a liver transplant and just in case I wanted to double list I know that some transplant centers, not mine, require a BMI under 30 which mine of course was not, so I was just making sure that would not be a problem.
I highly water exercise for anyone overweight trying to lose. It helps a lot, and at the health club I go to all the other people in the exercises are really nice, it's like being with a group of friends. I brought some sheets to my PCP and said I figured he must have other overweight patients who could be helped by using myfitnesspal. He said he did but none were as committed as I was. Hmmm, did he mean I should be committed? 😉 My husband says I'm an addict now.
Good luck with this.
JK

contentandwell

@granny998, I think I responded to the wrong poster, so thank you for the info and pictures. As I said in that post, I have a great deal of confidence in the ortho I am using. When I first went to see him, in the waiting room there were people from a number of other states there to see him. That scheduled surgery fizzled when I was on the table ready to be wheeled in to the OR, IV in arm and everything, due to a low platelet count, which was diagnosed at the time but turned out to be from my liver.
It is miserable to not be able to take many painkillers. I think, maybe, that some of the stronger ones are OK! Not sure about that but before transplant at various points I had both oxycodone and oxycontin, plus something else and I can't remember the name. Oddly, they kept me awake all night, staring at the ceiling! I had these pharmaceuticals before and they did not bother so I assume my malfunctioning liver was the reason why. Even with the new liver though I cannot take ibuprofen or aspirin, except for one baby aspirin a day.

contentandwell

@amberpep, thanks for the info. You sure had a bunch of things happening to you, thank goodness your knee is good now. Interesting about forecasting weather, could you do that with the first knee too? I will have to pay more attention to when my bothers me.
We are due for snow tonight too, where are you? I am in NH. Not looking forward to more, the reports say up to 20". I'm ready for winter to end. I never could understand people moving to FL, but now I can, although I still would not.
JK

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@pkindrom, thanks for the info and photos. I presume your response was to my message. This whole thing, despite having a renowned ortho surgeon, is scary because if it ends up as bad as the first is, from a different ortho, then I will be miserable. Plus, as I said right now I am not ready for yet another recuperation after the two months of recuperation from my transplant. I try to be very active doing pool exercises and my recumbent bike and I know those will have to go by the wayside for a while.
JK

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@amberpep, your post interests me because of your knee replacement. I had my right one done about five years and am way overdo to have my left one done. My right one hurts very frequently and it really has poor flexibility. My ortho (a different one than the last one who botched it) is hoping that after the left one is done it will take some pressure off my right and help it. I'm not so sure but I will give it a try.
What do you mean when you say they put in longer posts, is that what they generally do for a revision? I think that would make my knee even worse. I am very interested in your experience.
I agree, people downplay your pain. Because right now, thanks to lots of exercise strengthening my supporting muscles, I am not visibly limping, but it still does hurt frequently, yet people say I'm walking fine, why would I do a knee replacement? I am scared of a second one since the first one has not been great but I rushed into that one since i was in pain 24/7. This time the doctor who I am seeing is very highly thought of, a top-notch doctor. Having had a liver replacement I cannot have a lot of medications, and Advil is out of the question. Of the non-prescriptions pain killers I can only have a limited amount of tylenol.

contentandwell

Sat, Mar 11 at 10:37am CDT by @contentandwell re: Relentless bile reflux / pain in Digestive Health · View  

@stephieisabella I am not familiar with gastroscopy, I did google it, but not sure from the results if this is like an endoscopy and more. I had an endoscopy which showed Barrett's Esophagus. Is that possible for you?
You are young but my husband's granddaughter went through similar at about the same age. She does have to take antacids before eating but seems to be doing well. I hope you are able to diagnose the problem and get some help with it.
JK

contentandwell

Fri, Mar 10 at 9:38pm CDT by @contentandwell re: Changes after Transplant in Transplants · View  

@linmarie, I am so sorry for what you are going through. I cannot imagine having to deal with both simultaneously.
I hope the path gets a bit easier for you as time goes on and that you are able to move forward. I know it can be so hard.
Again, I am truly sorry.

I have some fatigue recently too, more than I did when I first started feeling better. I had reached a point where I didn't feel the need for a nap but recently I find I frequently do. I'm not sure if it's because of lots of activity or if it's a reaction to my transplant, but it's there.
JK

contentandwell

@amberpep, No, I am in New England and for us in New England MGH is Massachusetts General Hospital in Boston. It just never occurred to me that there might be other MGHs! I live in NH and so many people up here assume that the big city hospitals like MGH are cold and uncaring but I have found just the opposite. They have been positively wonderful there. If I lived closer I would go there for my PCP too, but during the day the commute can take two hours with traffic. As it is I go there for my Barrett's Esophagus, and I go to a doctor at a "partner hospital" for ortho.

JK

contentandwell

@amberpep, Hmm, the fluid draw is very probably (very probably? is that a proper expression?) the reason for the synvisc. Synvisc has to be redone every 6 months or so but if they withdrew too much fluid I wonder if it would regenerate. Probably not, just like when the synovial fluid gets worn away, it's gone for good.

I had an appointment for surgery on my left knee on May 2 but I cancelled it today. I just cannot stand the thought of another recuperation after my liver transplant less than six months ago, plus all the exercise I am doing has really helped my knee by helping my surrounding muscles. I had a pronounced limp but do not anymore. I guess I am gunshy too since my right knee, the one already replaced, is more of a problem now than the left knee.

I can totally understand wanting to return to the same doctor with whom you are so happy, I would do the same I think. I have such good luck with the doctors at MGH that I am even considering changing my PCP to one down there -- it's an hour away with no traffic but during the day we give the drive two hours.

That's an interesting question, about why the swelling started after the surgery. I hope you find an answer to that and let us know. I am curious too.

So happy to hear that your knee is great though, that must be such a relief.

contentandwell

Sun, Mar 5 at 9:50pm CDT by @contentandwell re: ~ skin problems at 72? ~ in Skin Health · View  

@amberpep, could the bumps possibly be rosacea? It's probably far-fetched because generally rosacea is considered to be a younger person's problem, but I suspect it can still happen as you get older. I had it pretty bad and saw a dermatologist regularly for it but thankfully it cleared up when I went through menopause.
JK

contentandwell

@amberpep I know sometimes I just accept what the doctor says and then after I get out of the office I wish I had asked more. I hope your doctor would have given you a more complete explanation if you did ask, and I'm glad to hear you have another appointment with her to get more information. I am the same, "There are advantages to getting older .... I've found my voice!", in that. My PCP may not like that but too bad.
Also, it does sound like that ankle is retaining fluid. Is the lymphatic responsible for fluid and it's retention? If so maybe that's what she was saying.

It intrigued me that you are getting synvisc in a knee that has been replaced, I didn't think they ever did that with an artificial knee. I have the shots numerous times in my left knee, but not in my right knee which has been replaced. The irony there is that the replaced one hurts more than the one needing to be replaced. I have an appointment for that surgery in the beginning of May, with a different doctor for the left knee, but I may postpone it. I just do not feel ready for another surgery yet, after having had my liver transplant in the end of September, and right now my left knee is doing pretty well thanks to exercising a lot. As I understand if you exercise the supporting muscles in your thigh help a bad knee function better and it sure has with me. I was visibly limping last year but am not anymore.

contentandwell

Sun, Mar 5 at 12:42pm CDT by @contentandwell re: Changes after Transplant in Transplants · View  

@metallicpean, congratulations on all, life is good. I am so happy for you to be experiencing so many wondrous things. There is nothing like a new baby, and of course also nothing like the second chance to live that transplants provide.

JK

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