contentandwell

@contentandwell

Activity by @contentandwell

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@hopeful33250 Thanks Teresa. I'm not worried, I tend not to be so when something bad does happens I'm always surprised! I guess I was borderline 11 months ago in the tests so they just want to check again. According to what I read on the link the only possible symptom I have is my BP is currently running from the high 130s to about 170. I am sort of hyper recently so I don't know if there is a connection. I feel like I'm on speed or something! Prior to transplant my systolic was in the 115 range prior to transplant and my diastolic in the 60s which it still is.
JK

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@2011panc Since I hate bugs I don't enjoy the outdoors much, I love sitting out or napping on our screened in porch though. To me that's heaven. I did it a lot last summer.
JK

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@hopeful33250 Thank you Teresa, I am looking forward to checking this out later, right now I am about to leave for water exercise. I had an ECHO on Tuesday for that condition and my appointment with the doctor is on Tuesday. Hopefully all is OK.
JK

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@rosemarya I guess this is something I will be hearing about then. Another doctor visit, just what I want. Next week I have to see a pulmonary doctor to hear the results of an ECHO I had on Monday. When last done I was bordering on pulmonary hypertension. I also have to see my medical oncologist following the MRI I had yesterday; they are following that because of the malignant lesions I had. Malignant lesions sounds so much less frightening than cancer.
JK

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@rosemarya I just recently discovered when I asked about an error on my record of whom was listed as my surgeon that he was the primary surgeon but two other transplant surgeons were in there too! No wonder it costs so much. I had met one of the other surgeons during the initial intro day and she visited me two times but I had no idea she was in there also.
JK

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@2011panc I have been told too to use high SPF lotions and wear a wide brimmed hat, and try to avoid the sun when it is high. I just discovered you can buy SPF 100 and 110 for face! I have always been careful of the sun because I was a fair-skinned red-head, but now of course I will need to be even more careful. They have not mentioned regular dermatology appointments though, at least not yet.
JK

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@jimhd thanks for the explanation. It sounds like it nothing like my liver ablation then, where they basically burned out the malignancies. I'm getting to learn all kinds of new medical things on these boards.
JK

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@jimhd It sounds like a lot is happening for you, who wouldn't be overwhelmed?
I had a liver ablation due to malignant lesions in my liver but what is a cardiac ablation?
JK

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@chattykathy Dermatologist? I had a check up during all those exams and tests prior to being listed as a candidate but I don't believe anyone has said I should be seeing one now>
Why does your transplant center suggest seeing dermatologist after transplant?
JK

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@rosemarya, @lcamino I am sure my good recovery had a lot to do with the fact that up until the very end when things went downhill quickly I was doing a lot of exercise and watching my diet. I think my recovery owes a lot to that AND to the skill of my transplant surgeon, to whom I will forever be grateful.
JK

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@kathyec I too was on a preventative for a while a very, very long time ago. It really did not help me. My migraines were definitely hormone related, as I think most women's migraines are. It took me a while to realize this, but then it was so obvious suddenly that I felt really stupid to not have recognized that sooner. I think my daughter's are also probably but she is not ready to accept that. Taking birth control pills exacerbate them.
JK

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@lcamino I am so sorry about your daughter. I can't even begin to imagine how painful that must have been. I think death, particularly does make people uncomfortable -- no one knows what to say and they know that no matter they do say it cannot possibly be of much comfort to the grieving family.
Hoping for a donor is a different thing in some ways but in some ways the same because there also people don't know what to do. On the one hand they would probably like to reach out and help, but on the other hand that is a huge thing to do.
JK

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@lcamino I, and most of the other people in the water aerobics, wear water shoes. If you plan to get any try to get ones that are not too enclosed. When I first started this, probably about six years ago, I had water shoes that were like Mary Janes (from Lands End). I found that because they were more enclosed they got really musty smelling. I have some now that I bought in The Walking Store, but you can buy them in many places for many prices. If I walk vigorously in the pool I sometimes slip if I don't have the shoes on for traction. I don't want to slip and fall in because I wear hearing aids -- they can withstand a brief immersion and have but I hate to chance it. If your crocs have a back they would probably work for you too.
JK

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@blindeyepug and @kathyec As I mentioned earlier, I too got some relief from antihistamines. I just bought a generic. It wasn't great relief but a little is better than nothing.
JK

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@icamino, thanks, I will check out myplate and see how it compares to myfitnesspal.
10 miles! Wooohooo, that's great! I did five miles the other day and was exhausted. I don't think I could do more than that. My pool walking really helps, diminishing the impact.
JK

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5 days ago by @contentandwell re: Weight loss in Transplants · View  

@eileenheart I am not much of a swimmer either -- I hate putting my face into the water (I have to hold my nose!) and swimming with my head lifted hurts my neck. I walk/jog/march laps for 45 minutes to an hour. I also do sort of a walking breast stroke, and backwards walking. At the health club I go to there are many pool walkers. There is a branch of a PT group within my club and they prescribe pool walking. Those people always include backward walking and sideways walking! The pool is great because if you have issues with knees or whatever like I do, doing these things in the water is lower impact. It also burns more calories because of the water resistance.
I would like to get into lifting light weights.
Amusing story -- my son "lifts" and I idly asked him how much he lifts. He beat around the bush and then finally said "about the same as you Mom, probably". He will never say anything that he thinks could be construed as bragging. That did peak my curiosity even more though so I asked his friend and he said they both lift around 300.
JK

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@daybyday Thanks. It never occurred to see a pain specialist, I would not have thought they would deal with that type of pain. Most of the time it is bearable but it does hurt more than the knee that needs a replacement so when I finally do go I think I will talk to the orthopedist about a revision on that knee prior to replacing the other knee.

For me, the recuperation from the liver transplant was not that bad. I was pretty much 100% at two months and then gradually worked back into exercising. I do a lot of water exercise because it is so low impact and of course if I have a knee done I am land-bound again for a while due to the incision.

Needing the liver transplant definitely was scary but thankfully I felt better most of the time than many people do so I was able to put it out of mind most days and continue on normally. When I felt miserable though it was tough, and when that happened the statistic would be there in the back of my mind of how many people do not make it to transplant. That's what's really scary.
JK

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Sun, Apr 16 at 8:55am CDT by @contentandwell re: Weight loss in Transplants · View  

@linda59 "just do t eat as much. Annoying but true.xx" That right there is basically the crux of losing weight. I have lost a lot and kept most of it off (battling 4 pounds right now). My doctor told me I should cut down on my portions -- I have no idea what made him realize I was actually eating healthily except for that, but he seemed to. It's not easy to walk past a cookie on the counter and not idly eat it but it's a must, plus I'm a pretty good cook so having seconds at dinner is tempting. I rarely bake anymore since I will eat it if I do.

As I have said before, and I hate sounding like a broken record, myfitnesspal.com really helps because it makes you accountable for everything you put in your month, assuming you are honest. If you are not honest you are only deceiving yourself.

Good luck to anyone who is trying hard to lose weight. I know how difficult it is -- been there, done that. Part of it is incentive and just plain being ready to make that change. I really wanted to improve my BMI so that gave me incentive.

Exercise really does help too. I go to my health club about 5 times a week, and try to ride my recumbent bike on the other days. I honestly find that on the days I don't go I gain about a pound. I think lack of exercise is part of that, and the other part is that if I am around the house I am more apt to snack so even just getting out helps.

I want to get that four pounds back off before a doctor appointment in a month.
JK

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@ihatediabetes You constantly amaze me! I love your gung-ho attitude. Good luck with catching fish.
JK

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@daybyday, thanks for your response. I am quite sure that the knee that has been replaced just hurts because of other factors, as I said in my original posting. I discovered that the surgeon had used the same knee he has been using for 30 years! I am quite sure that in that amount of time there have been advances. The knee just hurts, pretty much always, but it is not excruciating. Its flexibility is really poor too.
I was just curious about RSD because I will be having the other knee replaced, probably within the next six months. It was scheduled for May but I postponed it because that knee has become bearable most of the time, thanks to exercise, and I just could not think of another lengthy period of inactivity again, so soon after my liver transplant.
JK

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