lina2017

@lina2017

Activity by @lina2017

lina2017

Thank you so much Cynaburst..

lina2017

Thank you ...

lina2017

Thank you mbcube ..

lina2017

Thanks Ronald ..That is so great .i have now the appoinment with dr Ommen and Schaff on April 17th.hope i can meet you in person.

lina2017

I am in Austin texas ..I got an appointment with dr oommen and schaff in April. Did you also have a SAM hypertrophie ?

lina2017

Thank you so much !!

lina2017

please help.I went with my husband today to see a local surgeon just for consultation.My husband has Hcm with SAM septal.He told us he has the thickness all over and if he do the septal myectomy he will ended up for transplantaion in 5 yrs .That freaked me out .
Is it extended myectomy for those who having this type of thickness?
i saw from your post that you had an extended myectomy .

lina2017

Hi Ipadelford , My husband has HOCM and now mitral valve 3+insuffiecy .We are planing to have a surgery in may .did you wait couple of months for the surgery after you diagnosed with Mitral problem? Did you get a new valve or it was repaired?
how are you doing after the surgery ?

lina2017

Hi Barbara , My husband has HOCM and now mitral valve 3+insuffiecy .We are planing to have a surgery in may .did you wait couple of months for the surgery after you diagnosed with Mitral problem? Did they repair the valve or is it a new one ?
how are you doing after the surgery ?

lina2017

Thank you so much !! I checked with the clinic today regarding the surgeon .There is one Dr Said who is doing this surgery ..But i am not confident ,so i might be doing the surgery with Dr schaff in May ..

lina2017

Did you get a pacemaker or defibrillator after the surgery ?

lina2017

Rochester MN .i think it is DR Said .I asked for dr Scaff ..Do you thibk we have to go for a consultation first and then for surgery? .Beacuse they asked us we can do both in one trip.

lina2017

we got an appointment with dr Zayed at mayo clinic .but i coudnt find any reviews about him .who was your surgeon ?

lina2017

Thanks a lot !!We send the reports to clevland too..we havnt seen a surgeon yet .The cardiologist told us that my husband needs a valve surgery not about the septal myectomy .he has symptoms related to thickness .i am really confused and worried ..

lina2017

yes..We would like to travel to Mayo .

lina2017

Thank you so much ! how long was the wait to get an appointment for surgery ?

lina2017

Thu, Feb 2 at 9:07pm CDT by @lina2017 in Hypertrophic Cardiomyopathy (HCM) · View  

septal myectomy and mitral valve repair

My husband is diagnosed with hypertrophic cardiomyopathy in 2007 .He is on toprol all these years.but now having some syptoms like shortness of breath and moderate mitral insufficency .He needs to get a valve repair.we are fro texas and i coudnt find a good hospital for these two procedures .Any recommendation about the hospitals ?Is there any complication after the myectomy .

cynaburst

Cynaburst, Volunteer Mentor responded Wed, Mar 8 at 9:05pm CDT · View

@lina2017 so glad to hear that you are on the right path now. You will be so happy you traveled to Mayo. Here are some myectomy resources that you might find helpful from a blog I write about HCM: https://hcmbeat.com/resources/resources-for-patients-about-myectomy/

lina2017

lina2017 responded Thu, Mar 9 at 11:18pm CDT · View

Thank you so much Cynaburst..

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