lina2017

@lina2017

Activity by @lina2017

lina2017

please help.I went with my husband today to see a local surgeon just for consultation.My husband has Hcm with SAM septal.He told us he has the thickness all over and if he do the septal myectomy he will ended up for transplantaion in 5 yrs .That freaked me out .
Is it extended myectomy for those who having this type of thickness?
i saw from your post that you had an extended myectomy .

lina2017

Hi Ipadelford , My husband has HOCM and now mitral valve 3+insuffiecy .We are planing to have a surgery in may .did you wait couple of months for the surgery after you diagnosed with Mitral problem? Did you get a new valve or it was repaired?
how are you doing after the surgery ?

lina2017

Hi Barbara , My husband has HOCM and now mitral valve 3+insuffiecy .We are planing to have a surgery in may .did you wait couple of months for the surgery after you diagnosed with Mitral problem? Did they repair the valve or is it a new one ?
how are you doing after the surgery ?

lina2017

Thank you so much !! I checked with the clinic today regarding the surgeon .There is one Dr Said who is doing this surgery ..But i am not confident ,so i might be doing the surgery with Dr schaff in May ..

lina2017

Did you get a pacemaker or defibrillator after the surgery ?

lina2017

Rochester MN .i think it is DR Said .I asked for dr Scaff ..Do you thibk we have to go for a consultation first and then for surgery? .Beacuse they asked us we can do both in one trip.

lina2017

we got an appointment with dr Zayed at mayo clinic .but i coudnt find any reviews about him .who was your surgeon ?

lina2017

Thanks a lot !!We send the reports to clevland too..we havnt seen a surgeon yet .The cardiologist told us that my husband needs a valve surgery not about the septal myectomy .he has symptoms related to thickness .i am really confused and worried ..

lina2017

yes..We would like to travel to Mayo .

lina2017

Thank you so much ! how long was the wait to get an appointment for surgery ?

lina2017

Recently active
Thu, Feb 2 at 9:07pm CST by @lina2017 in Hypertrophic Cardiomyopathy (HCM) · View  

septal myectomy and mitral valve repair

My husband is diagnosed with hypertrophic cardiomyopathy in 2007 .He is on toprol all these years.but now having some syptoms like shortness of breath and moderate mitral insufficency .He needs to get a valve repair.we are fro texas and i coudnt find a good hospital for these two procedures .Any recommendation about the hospitals ?Is there any complication after the myectomy .

cynaburst

Cynaburst, Volunteer Mentor responded 1 day ago · View

I had an extended myectomy 10 1/2 years ago and am doing great. Best advice is to go with a very experienced surgeon. I also have concentric hypertrophy (the thickness all over) and the surgery helped me tremendously and I am nowhere close to transplant. Mayo Clinic and Cleveland Clinic are top two in U.S. Where are you located?

mbcube

mbcube responded 14 hours ago · View

Often when a doctor's knowledge is limited on HCM, they say things that may not be based on fact. (similar to a certain president I know). Just because he's a doctor in a big hospital does not mean he's up to date on HCM. During my pre AICD, Pre myectomy days with a lousy HMO, Thy had me see 12 doctors. Some of LA County's finest and the limited experience with HCM was shocking. It [...]

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