I have ulcerative colitis but have not had any experience with kidney stones. I have had UC for about 33 years. Good luck to you with your treatment. I hope you are feeling better soon.
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
I know – it can be really confusing! The reason my doctor has me on a high-fiber diet is due to my constipation issues. As long as I am not constipated, everything is fine. But, as soon as that starts, it causes all my problems. But, I know a lot of people are on the low-fiber diet for UC, as it helps to give the colon time to heal. Sometimes I wonder why there isn’t a simple cure for this. It is very frustrating, but I know a lot of people have it worse. At least prednisone is not expensive.
My gastroenterologist prescribes it for short-term use when I have a flare up, as the Rowasa enemas and Corti-foam did not work. During the flare, I was having bleeding, pain, bloating, constipation, etc. The prednisone reduces the inflammation. Once the inflammation is reduced, it seems to allow my colon to heal, so it stops bleeding, and the pain goes away and the bloating and constipation are reduced. I don’t take anything else for pain. But, I take Colazal for the ulcerative colitis and Linzess for IBS-C regularly. My doctor gave me a sample of Trulance to try for my IBS, as I still have constipation issues, even though I eat a lot of fiber, drink a lot of water and exercise a lot. I have not tried it yet. I am not familiar with Lialda. Does it work well for you?
Hi @uconn, I have never taken Entiviyo for UC. I have had UC for about 30 years. Currently, I am having a flare up, so I am taking Prednisone. In addition, regularly, I take Balsalazide. I also take Linzess for IBS-C. Prednisone works for me when I start having problems with the UC. Good luck to you in finding the best medication for your UC.
I am so sorry to hear about your son’s suffering from ulcerative colitis. I was diagnosed with it about 30 years ago and have been on medications since then. I am not located in NYC, so I can’t recommend any doctors there. I wish I had an answer to help your son, as I am looking for a successful treatment myself. What does his doctor have to say? I know this must be very hard for you to see your son suffering.
Thanks for your reply, Colleen. I would say the biggest stressor now is dealing with my husband who has a business and needs to find more work. So, I am the main breadwinner, and this causes me a lot of stress, as we have an expensive mortgage. I dance ballet, and that helps me to cope with my stress. My gastroenterologist recommends fiber, drinking lots of water, exercise, probiotics and the medications he has prescribed. When I have a flare, the only thing that seems to help is to take prednisone, but he is hesitant to prescribe, as he is concerned it will weaken my bones. However, I take it only as long as necessary to reduce swelling of my colon and stop the bleeding and mucus secretions. The Rowasa enemas don’t help much, since most of the time, I can’t empty the entire bottle, as I may have impacted stool. My doctor does not seem to understand that even if I have a bowel movement once a day, I am still constipated if I have to strain and cannot empty fully.
Hi, I am new to this forum. I have been diagnosed with ulcerative colitis and IBS-C and have suffered from this for 31 years. I am currently on Colazal and Linzess and use Rowasa enemas sometimes. When I am not having a flare up of UC, Linzess works pretty well for me. But, I am now having a flare, and am suffering from constipation, pain, bloating, gas and rectal bleeding. I eat lots of fiber, eat a healthy diet, drink lots of water and exercise regularly, but I tend to be stressed, and my gastroenterologist’s recommendations don’t really work for me. I have also take probiotics, but I don’t think they helped much. Does anyone have any suggestions as to something that might help me?