So stepping through
•B6 deficiciency was found by colleague in practice with my Primary care. I
was having nerve pain every where-pins and needles, burning, bad leg pain,
back pain, plus my falls. That is when I was prescribed the walker,
lidocaine pain patches, and she ran blood work on my B vitamins. Only B6
was low-15 nanomoles and 20 is lower bound. I mentioned that to Neurologist
and he cautioned watch out as you can get neuro symptoms from too much too.
The PCP prescribed 100 Mg/day.
•With both Calcium channel blocker and Beta blocker and Lasix, along with
Prednisone, my heart is getting conflicting signals. Calcium blocked should
trump all, addressing my bad Raynauds. Beta for headache prevention. Lasix
for foot/ankle edema and prednisone for inflammation and now my adrenals
too. Generally my BP stays low, like 100/60. Bit if I am in bad pain or
with infection, it shoots up.
The combination of all has to be impacting my balance, and maybe that’s why
it isn’t explored more-but something has changed where I have now become
•yes, I have to get down to 1 owner of my meds…and less (but the right
•Dysautonomia was diagnosed by a pain management doc in 2005. He ordered a
tilt table study. My BP change was 30. When the change happened it felt
like I had a huge volume pf knives stabbing my body. The pain doc shared
his daughter had the illness so he knew the illness. So he told me get all
the books I could, wear compression host and take salt tablets. Then he
dismissed me as a patient…not anything else he could do. So there I
was-no plan, told with exercise and good diet, literature said I would have
7 years to live. Later docs were skeptically/ignored.
•the irony I saw was that mineralocorticoids help in balancing out the
endocrine issues when there is ACTH depletion and ACTH helps in signaling
adrenals to produce cortisol. To me it seems ironic and maybe that old
diagnosis needs revisiting. I told my PCP and she didn’t want to explore
because a positive result could happen just with meds I am on…but doesn’t
that say we need meds reviewed, period? I am going to raise this with
Thanks for talking through this, I appreciate.