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Posts (9)

Jul 27, 2016 · Autoimmune diagnosing problem in Autoimmune Diseases

I feel your pain, I wish that there was something I could say or do to make you feel better, but I can’t. I currently am going to six different doctors. Last week I was taking ten pills a day. Bye the end of the week I never felt worse. I have been to two rheumatologist and there still not sure what is wrong. I have several good doctors at this time. One thing I found out is if they don’t take the time to listen to you, let them go and look for someone else. Always keep copies of your lab work to show your next doc. Also have you seen an endocrinologist for your low cortisol. I have been through that. It took about six months to get my levels back to normal. Not sure I said anything that you didn’t already know. Hope you start feeling better.

Jul 27, 2016 · Plaquenil eye problems in Autoimmune Diseases

Thanks for the replys

Jul 25, 2016 · Plaquenil eye problems in Autoimmune Diseases

I was wondering if anyone experienced blurry vision on Plaquenil. I have been on Plaquenil for about a month. Every now and then I notice some of the words on the television are blurry, then there are other times my eyes are fine. Should this be a big concern? I just saw an optomologist right before starting.

Jul 22, 2016 · Turmeric in Autoimmune Diseases

So does diet, play any part in autoimmune disease. My wife wants me to see a nutritionist who uses Leap (lifestyle , eating and performance. They use a MRT (mediator release test which is blood work. The whole deal will cost me close to 1000.00 this includes three meetings with a nutritionist to go over results and set up a plan. Good idea or not

Jul 22, 2016 · Autoimmune diagnosing problem in Autoimmune Diseases

Here is the whole story. I have had sinus allergies and mild asthma my entire life. I have gone through 5 sinus surgeries. I have been tested by multiple allergist who said all test come up negative, diagnosis is nonallergic rhianitis. About 5 years ago my dentist notice white lesions on my gums. I saw a specialist and he said it was not cancer but a autoimmune disease. It is mostly there all the time ,but it seems like if I get a bad cold it flares up. 3 years ago I started to lose hearing in right ear along with some dizzyness and ringing. My ENT put me on 50 mg. of prednisone for two weeks. Things got worse and was making me loose weight and not helping the problem. He then reduced the dosage to 30 mgs. for three more weeks. This didn’t help either. I then went to UT Southwestern where I was given 10 mgs. of decodron shot directly through my ear drum once a week. Within a month I was cured. The doctor thought it was a virus.
I started to notice a lack of energy, so I got my adrenal glands tested. It showed I had secondary adrenal insufficiency. It took close to a year, but an endocrinologist got them back and working. I noticed while on this long tapper of prednisone that at 7.5 mgs. I felt great. I have since had my adrenal glands test and the test come up normal.
I have also had L5 lamentomy, got bit by a neighbors dog ,had arm infected, ended up. in hospital 3 days for around the clock antibiotics. I then had rotator cuff surgery due to dog bit.
I have diverticulitis at this time an on Levanquin and flaghl. All my joints ache and I am fatigued all the time. If I am out in the sun I get tired pretty quickly which last the entire day.
No rash but burn easily.
Did I mention I have Hasimotes disease
(Autoimmune panel):Showed borderline positive ANA (nonspecific autoimmune marker),panel results is in moderate positive for lupus range although all lupus specific markers are negative.
Celiac panel negative
Did I tell you I worked on the Fire Dept. for 28 years as a captain. A friend of mine use to work for the military thought I might have PTSD syndrome. I thought she was nuts, but it turns out police and fire are subject to it.
That’s all folks

Thanks for all your thoughts

Jul 21, 2016 · Autoimmune diagnosing problem in Autoimmune Diseases

Thanks again for your reply. I have been on prednisone several times and each time my condition clears up. I am feeling very frustrated right now. I am dealing with some diverticulitis, a mild case, but I have had Levanquin and flaghl added on to the pills I take. I take 10 pills throughout the day. This assures that I have an upset stomach all day. Sorry for the wining.

Jul 20, 2016 · Autoimmune diagnosing problem in Autoimmune Diseases

Thanks for your help.

Jul 20, 2016 · Autoimmune diagnosing problem in Autoimmune Diseases

Thanks for your reply. I have been tested and carry HLA B27 . ANA is low positive , moderate range for lupus although all makers were negative. Not quite sure where that puts me. I am new to all this.