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Posts (6)

Aug 2, 2016 · Bone Loss Drug Reclast in Bones, Joints & Muscles

I had no side effects at all from taking the Forteo. As to any improvement – only slightly. Can’t give you the exact numbers. The reports I have I can’t understand. Only the radiologists comments of slight improvement. Sorry I can’t be more specific.

Aug 2, 2016 · Bone Loss Drug Reclast in Bones, Joints & Muscles

I injected myself with the Forteo for 2 years, the time that it wa allowed. It has not been tested for longer than that. That was the case when I stopped in 2011, that is.

Jul 31, 2016 · Bone Loss Drug Reclast in Bones, Joints & Muscles

Colleen, since my insurance will pay for a DEXA once every 2 years, I have not had once since my first Reclast infusion. I will have another DEXA in December and then decide if Reclast is helping and whether to have a third one.

Jul 31, 2016 · Autoimmune Diseases and Fatigue in Autoimmune Diseases

About 7 years ago I was diagnosed with Celiac disease and 2 years ago I was told I have Sjogren’s. Apparently it is not unusual for the 2 to go together. I have had these 2 problems for many years but the doctors just didn’t figure it out. Long before Celiac was diagnosed, I had horrible bloating, cramps and tummy pain so bad that at times I couldn’t stand up straight. Soon after I went gluten free that problem went away. John, have you tried that for your belly bloat? I also have chronic back pain which is another unrelated problem but not an insignificant one, and with dry mouth and eyes from the Sjogren’s and then add in the back pain I would say I have “fatigue”. There are days when I don’t feel like doing anything but sitting. I am a dedicated quilter and when I get together with my quilting friends or when I am working on a project at home I feel so much better. My sewing room is my “therapy room”. I think having a good hobby you enjoy and get together with friends is the best treatment anyone can have. Just my 2 cents.

Jul 25, 2016 · Bone Loss Drug Reclast in Bones, Joints & Muscles

I have had 2 reclast infusions and have had no side effects. That is, I have not felt badly after the infusion. Who knows what it does to you body. I have read all the literature on it and have decided that not having it might be worse than having it. My doctor agrees. I have another DEXA in November so we shall see if it has done any good or not then I will decide if I will have another. I have been on all the other osteoporsis drugs, including Forteo, and I’m still fighting it.

Meemer

Jul 22, 2016 · Turmeric in Autoimmune Diseases

I have Sjogren’s and Celiac and I was using turmeric with bioprine for awhile as I was told it was good for autoimmune diseases. I thought it was affecting my bowels: diarrhea,etc. Anyone else have this problem? Maybe I should to back to it to prove one way or another.
Meemer