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Posts (7)

Feb 19, 2017 · Endometrial Carcinoma: Rare, aggressive, hard to treat but don't worry in Gynecologic Cancers

You sound like a great caregiver. I’ve had endometrial cancer for almost nine years and have heard lots of comments about how cancer is no big deal because anyone could get hit by a truck tomorrow, to very sympathetic and helpful comments. The helpful comments recognize that I have a good attitude but a hard battle to fight. My cancer has changed my life completely. The newest problem is the result of surgery for a metastatic brain tumor that has left me with constant vertigo, nausea, vomiting and ringing in my ears. I have to lie down all the time to avoid dizziness and nausea. My husband does everything he can to make life better but I feel for him because there’s so little he can do besides provide comfort and support. He certainly doesn’t have the wife he married, but he never complains.

Nov 20, 2016 · Constant vertigo for almost 2 years in Brain & Nervous System

Thanks. I tried that and it didn’t work for some reason. Do they know anything else to try?

Nov 19, 2016 · Constant vertigo for almost 2 years in Brain & Nervous System

These symptoms all sound familiar to me, too. I haven’t been able to drive for years but I have family who very kindly provide me with all the transportation I need. Still, constant dizziness does take the fun out of things. My husband and I used to love going to the movies. Now we have several home TV movie services like Netflix and have learned to enjoy our date nights that way. Medication for dizziness would be a nice find. I keep thinking there must be something out there.

Nov 19, 2016 · Uterine Cancer with brain metastasis in Gynecologic Cancers

Thanks. My vertigo symptoms start as soon as I get up and never let up all day. I can get around with a cane or a walker but I haven’t found a way to do much that requires even sitting up for very long. I’m an artist and I don’t have the stamina to deal with constant vertigo and produce artwork. I guess what I’m hoping to find is how to do any kind of work while coping with constant vertigo, if anyone has found a way to do that. I also have a vision problem where my eyes don’t”track” as the ophthalmologist put it, but I am learning to cope with that even though I read more slowly and really have to concentrate to avoid slipping into double vision. Most days, if I am too active, I get nausea and often vomit, just like seasickness. I’ve tried medications and bracelets and they are somewhat helpful but some days even brushing my teeth causes so much head movement that I have nausea from it. If anyone else has these symptoms and is coping better than I am, I would like to hear about how you do it.

Nov 18, 2016 · Uterine Cancer with brain metastasis in Gynecologic Cancers

I’ve talked with my neurosurgeon. The type of vertigo I have is not vestibular, It is directly a result of cerebellar cancer. I had radiation both before and after the actual brain surgery and she thinks the necrosis from that is causing irritation that leads to vertigo. As the scar tissue is being reabsorbed into my system the vertigo is improving very slowly. I’ve been to physical therapy to learn techniques for balance but the fact is that every day when I get up I am immediately feeling as if I’m on a ship in a storm at sea. It is exhausting to live with. It may continue to improve but right now I find myself unable to live a “normal” life and do the things I’m used to. My hope is that there are others with a similar experience to share my feelings with. Maybe I can learn something about coping with this that I haven’t thought of before.

Nov 18, 2016 · Uterine Cancer with brain metastasis in Gynecologic Cancers

I had uterine cancer in 2008 and the metastasis is from that. (I also previously had métastases in a lung, my bladder, my ribs)

Nov 17, 2016 · Uterine Cancer with brain metastasis in Gynecologic Cancers

I have had two metastatic brain tumors. Surgery for the second one was in January. Due to extreme vertigo, I have not been able to resume much of my normal life. My neurosurgeon says eventually this may correct itself but meanwhile I have to live with it. This is getting harder the longer it goes on. I would like to hear from others with similar issues and know how you are coping with it.