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Posts (7)

Aug 30, 2016 · Several Issues: Early onset Alzheimer's, neuropathy & RLS in Brain & Nervous System

You are not alone. I have a seizure disorder and neuropathic pain. A support group really has helped me. I hope you are able to find one. Good luck to you

Aug 24, 2016 · Neuropathic Pain in upper midriff area in Neuropathy


Aug 22, 2016 · Neuropathic Pain in upper midriff area in Neuropathy

Thank you so much for your considerate and detailed reply. I, too, have found stress feeding the pain. I retired, took up meditation, and joined a support group. I have had many lifestyle changes as well. The unusual aspect of my condition is that it did not follow a surgery. Years ago it felt like a gnawing sensation and gradually, over years, became a very severe pain. I am on an antispasmodic drug (Bentyl), Ativan at bedtime and an occasional Vicodin. I have to be very strict in my regimen of medication times and what I eat, when I eat, and how much I eat. I was curious as to how my case compared with others as I know no one here who has this pain. There are some commonalities with your condition. I appreciate your taking the time to write.

Aug 15, 2016 · Neuropathic Pain in upper midriff area in Neuropathy

How well is the treatment working?

Aug 14, 2016 · Neuropathic Pain in upper midriff area in Neuropathy

Is there anyone out there who has been diagnosed with neuropathic pain? If so, in what part of the body do you experience this pain and what treatment are you given? Mine is in the high central area of my midriff. The pain worsens toward evening and is treated with Bentyl. I’ve also met one woman who has this type of pain in the jaw area/ My gastroenterologist tells me very little is known about it. I also have a seizure disorder. I would appreciate hearing from anyone out there who has this disorder. Carol94

Aug 6, 2016 · Trigeminal Neuralgia* in Brain & Nervous System

Pain makes people very tired. So does the anxiety of a medical issue that isn’t completely diagnosed or you don’t feel the security of good medical care being available….. Still looking for that website for you. I have to rest midday everyday even though I am now on
medications that help me a great deal. I’m currently reading, “Chronic Pain: A Way Out by Stephen Colameco, MD. Our local hospital also offered a completely free class about Chronic Pain/Illness. We met once a week for 14 weeks. There were presentations from specialists…….amongst the group we had a lot of sharing about our experiences and doctors.

Aug 5, 2016 · Trigeminal Neuralgia* in Brain & Nervous System

I understand your feelings completely. I was in a 2 year evaluation period with 3 consecutive gastroenterologists before I was accurately diagnosed. What helped me the most was joining a chronic pain/chronic illness support group. There is a National Website on this group. I will try to find the URL and send the web address to you.