About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (97)

Aug 18, 2018 · Untreated MAC in MAC & Bronchiectasis

I have mac and live in Milwaukee. I have a good doc at froedtert and I will not tolerate with any doctor treating me bad. I already feel bad enough sometimes and I don't need the pile on.

Jul 11, 2018 · Extreme fatigue with MAC in MAC & Bronchiectasis

Good morning – try eating Activia. It works for me. I eat one every morning, and it helps with digestion. When I was on the Big 3, my stomach hurt all the time. Once I started eating Activia, my stomach problems went away. Good luck to you. Also, I don't suffer from headaches…..

Jun 27, 2018 · The psychological aspect of dealing with bronchiectasis and MAC. in MAC & Bronchiectasis

So true Megan. I have a lot of supportI've friends who check in constantly, and my husband, WOW!!! He is so loving and understanding. So just keep going, don't give up. Feel free to ask me any questions you have. I have been to the bottom, and now I'm on top!!!!

Jun 21, 2018 · The psychological aspect of dealing with bronchiectasis and MAC. in MAC & Bronchiectasis

Such eloquent words and all are so true. I was very depressed at first, was diagnosed in 2016, but through prayer and supplication, I am doing very well. I do not take any antibiotics anymore, my pulmonary doctor is just watching me now and I feel great!!!!!

Jun 2, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Doc was excellent. I was on antibiotics for 1 1/2years, then on an iv drip from October of 2017 until march of this year. I have no symptoms and was taken off med even though I still have a very, very small amount. Hang in there. Things will get better, I promise…..

May 14, 2018 · Pulmonary Fibrosis* in Lung Health

Hi kiera, I too, have pf, was diagnosed ten years ago, and now I have mac. I was on the big 3, also on an iv drip, but now I'm not on any of those meds. The pulmonary doc states that after taking all those meds, I still have a small cavity of mac. I work everyday, walk everyday and pray every day.

May 2, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

No I still have a very small cavity in my upper left lobe. The pulmonary doc said he would keep a check on the cavity, and since I feel good, walk everyday, he would give my body a rest. I was also on an iv drip, three times a day. The med was called imipemem, or something like that. No side effects whatsoever. So far, so good. He gave me a prescription of predisone, just in case I start feeling bad. That stuff works very good for me. A 20 MG tab for 5 days. When I take the very first one, it seems to knock out whatever is trying to creep up. He then told me to call him asap, and get in to see him if I start to feel terrible and the predisone don't work…. pray for me as I do for others in this forum…