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Posts (34)

Jun 20, 2017 · After knee replacement surgery in Joint Replacements

I am sorry but I don’t understand why you would assume more is better. Pain is the body’s way of telling you to knock it off. Please don’t be offended, but do have other compulsive tendencies? What you are doing is harming yourself.

Mar 1, 2017 · What's your colorectal cancer screening story? in Colorectal Cancer

The year I turned 50, 2003, I had my first screening colonoscopy. My paternal grandmother died of colon cancer at the age of 72 years, so I was relieved when the results were normal. Later that same year I was diagnosed with Stage 1B Endometrial Adenocarcinoma. I had a total abdominal hysterectomy and that was the only treatment I required.
Early in 2006 I started noticing blood IN my stools. I am an RN, so in describing my stool I was careful to point out to my primary physician and Gynecological Oncologist that the blood was IN my stool. They were quick to point out that I had a normal colonoscopy less than three years ago.
I was persistent and in September I demanded a referral to a Colorectal Surgeon. Again I carefully and accurately described my stools, but upon initial examination the surgeon found hemorrhoids that she banded and declared that would take care of my symptoms. When I returned to her 6 weeks later for a follow-up visit I explained that I was still having blood IN my stools. She said that some bleeding would still be normal after the hemorrhoidectomy.
By now the holidays were upon us, so I decided to put my pursuit of a colonoscopy on hold until the first of the year. I contacted the colorectal surgeon and set up an appointment. Since my words seemed insufficient, I took a photograph of my stool, printed the photo on my home printer and took the photo with me to the appointment. I handed the photo to the colorectal surgeon and said, “This is what I have been trying to tell you since September.” She took one look at the photo, and said, “We need to do a colonoscopy!”. Eureka!
She biopsied a growth that came back as Adenocarcinoma. On Valentine’s Day 2007, 11 months after my first symptoms, I had a laparoscopic colon resection for Stage 1 Recto-Sigmoid Adenocarcinoma. Fortunately, despite the delay in diagnosis and treatment, surgery was the only treatment I required.
I am now 10 years cancer free. The example I hope to share is that each person must be their own advocate and use whatever means necessary to have your voice heard.

Feb 20, 2017 · Horrible Hives in Skin Health

I have had Chronic Pressure Urtcaria for almost two decades. My clothes aren’t an issue. The worst trigger is carrying plastic bags or a pile of boxes or where the seatbelt hits my neck. When I had an epidural for pain relief after a total knee, you could see where the tubing had been coiled on my back for more than 6 months. I take Ranitidine 300mg and Hydroxyzine Pamoate 25mg every night before bed. I still get breakthrough hives on this. I have assumed it is autoimmune. I would not recommend long term use of Benadryl especially since it seems ineffective. It’s very difficult for me not to know the cause and just mask the symptoms with medication long term. I have been reading about Low Dose Naltrexone for my Fibromyalgia which is also autoimmune, so I’ve been wondering if it might also ‘cure’ the hives. You’ve come to the right place for support!

Jan 31, 2017 · scar tissue after knee replacement in Joint Replacements

I had my first knee replacement at the age of 47 years in 2001. I was plagued by spasms on the outer aspect of my calf caused by scar tissue. After a closed manipulation and traditional PT I got relief with acupuncture and osteopathic manipulation. I know many physical therapists practice under the theory that you have to push through the pain, but when you are a prolific scar tissue creator, I feel a more gradual, alternative approach is better.

Dec 1, 2016 · Trigeminal Neuralgia* in Brain & Nervous System

@trigeminalwoman38; I can’t say welcome to this group b/c I wouldn’t wish this condition on anyone. But I am glad you have found the others who suffer and understand your pain. Feel free to ask specific questions if you have them.

Nov 21, 2016 · Trigeminal Neuralgia* in Brain & Nervous System

@bigred80 I don’t know who your comment is directed to or what it is in reference to, but this link might help explain the procedure my father and others have had. It isn’t really a surgical procedure, but a neurosurgeon and radiologic interventionist usually collaborate on the procedure. http://www.mayoclinic.org/tests-procedures/stereotactic-radiosurgery/home/ovc-20130212. The surgery your physician might have been referring to is Microvascular Decompression https://www.urmc.rochester.edu/neurosurgery/for-patients/treatments/microvascular-decompression.aspx. Either procedure can result in loss of sensation of movement of some facial muscles (similar to Bell’s Palsy) but a lot of people choose to chance these complications rather than live with the pain of Trigeminal Neuralgia. I hope this helps explain things.

Nov 20, 2016 · Trigeminal Neuralgia* in Brain & Nervous System

The sleep deprivation is what bothers my dad the most. I did find a pillow for him that is shaped like a C; I think it is designed to avoid wrinkles! But it also avoids pressure on the cheek while he is sleeping. Many nights he resorts to his recliner.

Nov 20, 2016 · Trigeminal Neuralgia* in Brain & Nervous System

I’m so thankful this procedure has brought you relief.