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Oct 31, 2018 · multiple meningioma brain tumors in Brain Tumor

@jodyfreeman , I also developed a second left frontal lobe meningioma and my Neurologist didn't remark about it being unusual, just that I have another to watch on surveillance MRI's.

Oct 12, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

@ees1 , Let us know how your 1st annual Watch and wait MRI went, we are all crossing our fingers and toes for you that there is NO growth!!!!

Oct 5, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

I have flown all over the world with my 2 left frontal lobe tumors. I live in Hawaii and have a daughter and her family who live in London….so every time I visit them I am basically going halfway around the world. We used to travel a LOT and I never had any problem nor noticed any growth at my next scans. @wendyah

Feb 18, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

Hi, I have been on watch and wait for many years. Diagnosed even younger than you. Dr. Oneil at Mayo explained at my initial workup that since the risk could be high for surgery in my location of left frontal lobe, and because I was not having damaging symptoms, that I may NEVER need surgery….not that I would HAVE to have it down the road, just depended on growth and symptoms that could happen. Many people have meningioma's and never even know they have them. I have become very comfortable with my watch and wait. With the rapid advances in less damaging and more precise techniques every year, I am GLAD I have had 12 or so years of avoiding such a tramatic surgery and know every year of research is a "gift" in my pocket IF IF IF I ever do need to have surgery. It is very scary when first diagnosed, but at least for me, watch and wait is not much different than going in for my routine health checkups…just part of my "new normal"-ha!

Dec 9, 2017 · multiple meningioma brain tumors in Brain Tumor

Ha! Can tell you have a great sense of humor! That is a GOOD thing when you have to go through all these medical challenges 🙂

Dec 9, 2017 · multiple meningioma brain tumors in Brain Tumor

Congrats for being DONE and kicking a$$ !!!!

Dec 9, 2017 · multiple meningioma brain tumors in Brain Tumor

I had all the genetic tests and it was determined mine was a mutation. I have no family history of any brain tumors, though my father got prostate cancer when elderly. Did you have lots of xrays when you had your accident?

Dec 8, 2017 · Meningioma & ovarian cysts and infertility in Brain Tumor

Well, the good news with family history is you have a heads up to be watchful! We have to find the bright side to our paths when we live with chronic conditions! I have 2 meningioma’s, both left frontal lobe. Had one for a LONG time…second one found after all my chemo and radiation ended for my breast cancer. Main thing I get is headache/pain in the area on occassion, but not bad. I broke my neck when I was in my early 30’s( all those 30 + years) ago and all the head xrays I had in the “old days” may have contributed to tumors. I have a LOT of pain from that bad surgery. I have been under watch and wait as it is too risky to go after the tumors in their location unless worse symptoms. You’ll find in the group we each have individual issues and then there are the commonalities which are always educational PLUS it is GREAT to know we are not alone!