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Sat, Jul 27 5:31pm · New Patient appt in Minn soon for a Meniangioma (possibly 2) and RCC in Brain Tumor

Colleen, Does Mayo still have a special # for the airline reservation that makes it easy to change if your stay needs to be extended or shortened? That was always such a benefit to me…..is it part of the concierge service? IF so, that may be helpful to @cacoon6

Sun, May 26 5:09pm · Olfactory groove meningioma in Brain Tumor

Congrats…all of us on watch and wait LOVE stable tumors! I have been on watch and wait so long, I am down to an MRI every 3 years to avoid any more contrast than needed. Haven't gotten my results back yet, but I hope I am as lucky as you! Check back in with us next year and let us know how your 2020 one goes….we LOVE to cheer each other on 🙂

Oct 31, 2018 · multiple meningioma brain tumors in Brain Tumor

@jodyfreeman , I also developed a second left frontal lobe meningioma and my Neurologist didn't remark about it being unusual, just that I have another to watch on surveillance MRI's.

Oct 12, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

@ees1 , Let us know how your 1st annual Watch and wait MRI went, we are all crossing our fingers and toes for you that there is NO growth!!!!

Oct 5, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

I have flown all over the world with my 2 left frontal lobe tumors. I live in Hawaii and have a daughter and her family who live in London….so every time I visit them I am basically going halfway around the world. We used to travel a LOT and I never had any problem nor noticed any growth at my next scans. @wendyah

Feb 18, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

Hi, I have been on watch and wait for many years. Diagnosed even younger than you. Dr. Oneil at Mayo explained at my initial workup that since the risk could be high for surgery in my location of left frontal lobe, and because I was not having damaging symptoms, that I may NEVER need surgery….not that I would HAVE to have it down the road, just depended on growth and symptoms that could happen. Many people have meningioma's and never even know they have them. I have become very comfortable with my watch and wait. With the rapid advances in less damaging and more precise techniques every year, I am GLAD I have had 12 or so years of avoiding such a tramatic surgery and know every year of research is a "gift" in my pocket IF IF IF I ever do need to have surgery. It is very scary when first diagnosed, but at least for me, watch and wait is not much different than going in for my routine health checkups…just part of my "new normal"-ha!

Dec 9, 2017 · multiple meningioma brain tumors in Brain Tumor

Ha! Can tell you have a great sense of humor! That is a GOOD thing when you have to go through all these medical challenges 🙂

Dec 9, 2017 · multiple meningioma brain tumors in Brain Tumor

Congrats for being DONE and kicking a$$ !!!!