Are there any programs for pituitary tumor patients, who are not insured? I also have a pineal cyst, and haven’t had a brain scan in over a year, because I can’t afford the procedure.
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
A little over two years now. Yes the watch and wait is not good, because I don’t have medical insurance, and can’t afford to use obama care, based on the tests I need, and the expense. I can’t afford 20% of an MRI cost, so I haven’t had any scans in over a year. I’m more on a wait and see. Wait, and hope is I guess better to describe it…. I just hope something doesn’t happen. I can’t afford to have anything major go wrong, but I can’t afford to keep checking it either. I have lost faith in the disability system, I have been denied 3 times now. It’s just so discouraging, I don’t even think about it. When I bump into walls, I just laugh at myself, because there’s nothing I can do about it now. Just waiting for death I guess. Sorry for being negative, but I don’t have anything positive to say about my health right now. I also have a pineal cyst (in my brain) occipital neuralgia, Fibro, and a list of diagnoses, so it’s all most too much to keep up with even for me. I get nauseated, and vomit out of nowhere sometimes. But I have so many problems, my symptoms overlap, and it’s hard to distinguish, what came from where. I just get through the day, and whatever happens, is gonna happen I guess. My main message, was written back when I lived in California, on my husband’s insurance, and had care. But things have drastically changed, and not for the better.
Thank you for your comment. I do have symptoms, such as nausea, vomiting, and dizziness. I fall down sometimes, and bump into everything. I had all those doctors, (neurologist, neurosurgeon, rheumatologist, endocrinologist, and pain management because I have a list of issues, including occipital neuralgia, and fibromyalgia, chronic Achilles Tendonitis, just to hit the most important ones)when I lived in California, but we recently moved to Texas, and the premium for insurance for me is $800 a month, so I have been going without care for the past 6 months. Hoping I will be approved and finally get eligible for care. I’m a case study.
Hello, I also have a pituitary tumor, AND a pineal cyst. They are just monitoring it. Not sure what is next. I moved to a new state, and don’t have any doctors. Waiting for my disability court date in August. (already been denied twice) this time I go in front of the judge. Then I can start seeing doctors. Otherwise, I just sit here with them, not knowing what’s going on in there.