Thanks so much for the reply. Regards the nf1.
With regards to further tests we have carried out the following and obtained the following results: –
EGG – Sibclinical seizure
MRI – Negative
CT Scan – negative
Blood test – Negative
ECG – OK
URINE – ok
Just these weeks, we have notice a few form of minor and subtle seizures.
Would like to seek advice on the following: –
1) was told that if stay seizure free for 2 years, she van slowly tail off her medication. How as parents can we help her grow our off seizure
2) will she grow out of it?
3) as nf1 is a progressive disorder, is this linked with her epilepsy?