My journey at Mayo Clinic began when I was born with a rare genetic bleeding disorder called hemophilia. I love being a moderator on Connect because I have a connection to the majority of the groups I cover. I was born with a rare disease that led to severe joint damage and multiple surgeries. I am happy to have gone from patient to employee at Mayo Clinic. My personal interests include: Adaptive sled hockey, weight-lifting, guitar, golf, and spending time with my supportive wife and son.
“Patients are their own best advocates,” says Gita Thanarajasingam, M.D.. “They know what is, or isn’t, tolerable for them and we are harnessing technology to collect information from patients directly.”
Chemotherapy for lymphoma, and other cancers, can have many side-effects that affect each patient differently. Dr. Thanarajasingam’s research focuses on how patients can work with their provider to help make treatments more tolerable for the patient. Patients can help report things such as:
What side-effects they are experiencing
Is that side-effect tolerable
When did the side-effect occur after treatment
Using this information, Mayo Clinic providers can create a better treatment plan or alter what therapies are used in order to make treatment more tolerable for the patient.
“One of the reasons I’m most proud to work at Mayo Clinic is our focus on the patient as the center of the treatment experience,” says Dr. Thanarajasingam. “Not only do we care about the newest and most effective treatments, but the impact those treatments have on our patients as people.”
Meet other people living with lymphoma, a blood cancer, or other types of cancers here on Mayo Clinic Connect. Check out the following member groups and discussions:
I would like to invite a few members who have talked about pinched nerves on Connect, although not always in the same spot below the collarbone that you have mentioned. @cathy514 and @wawryk01 who have talked about dealing with pinched nerves (in their spine) but may be able to offer some of the symptoms they felt before being diagnosed. @jt5369, here is what Mayo Clinic has to say about a pinched nerve, https://www.mayoclinic.org/diseases-conditions/pinched-nerve/symptoms-causes/syc-20354746. The important part is, "See your doctor if the signs and symptoms of a pinched nerve last for several days and don't respond to self-care measures, such as rest and over-the-counter pain relievers."
@kneeproblem, you may notice I merged this discussion back in to your original discussion on partial knee replacements from September, 2018. I did this so all of the members sharing their experience with partial knee replacements would see your new message.
@sparklegram, I'd like to invite @leslie324, @jenniferhunter, @baxtersmom, and @grandmar to this discussion as they have all talked about spinal stenosis and may have some insight on comfortable chair that has helped them in the past. @sparklegram, are you looking for a chair that helps with support for while you are working, or lounging, or both?
Hello @jt5369. Good question. I am not a medical professional, but had a similar experience with my shoulder blade area. Certain movements would trigger a pain in my rotator area and then occasionally send a tingling sensation down my arm. It got to the point where I opted for what was supposed to be a simple nerve release procedure. Unfortunately, they also found a partially torn rotator cuff so my recovery has been long and slow as a result. But the initial diagnosis was also there, it was an entrapped nerve that had a ligament pinching it off.
I dealt with the pain/annoyance for a long time and it turned out to be something more severe than I had anticipated. Unfortunately, it is hard to know without seeking medical advice, and even then my surgeon was unaware of the extent of my injury until he went in to release the nerve. @jt5369, how uncomfortable are you with the pain and sensation? Do certain activities or movements make it worse?
Hello @marthajean. Your instinct to consult with your physician before trying any new supplement or medication is wise. Here is an excerpt from Mayo Clinic on dimethyl sulfoxide for arthritis pain, "Claims that dimethyl sulfoxide is effective for treating various types of arthritis, ulcers in scleroderma, muscle sprains and strains, bruises, infections of the skin, burns, wounds, and mental conditions have not been proven."
@marthajean, is your arthritis pain increasing and that is why you are considering or inquiring about other potential relief sources?
Hello @anangelintheroo, welcome to Connect. Did you mean for the photo you shared to be your profile picture? If so, I can help fix that as the photo was shared in the post rather than your profile image. We have a lot of members here on Connect talking about hip replacements, but would you mind sharing a bit more about what ANA over 10,000 indicates? Is that something that is going to affect your upcoming hip replacement?