About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (6)

Nov 11, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

We contacted Dr. Pardi, who, through a few contacts, put us in touch with Dr. Raymond Cross at University of Maryland Medical Center. He is GI doc with a primary focus on inflammatory bowel disease and has one other patient with MP. He may be a place to start.

Oct 28, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Sorry you are part of this group. This is a great place to find support as everyone is fighting the same battle. My husband has MP, was diagnosed in May of this year. Since then, we have had his PCP say it was a “controversial” diagnosis, and his GI not really believing it. The PCP even told ME to do the research and let him know what I find. I started contacting doctors and found one doctor in Baltimore who would treat him (had one other patient), but then our insurance changed and this doctor is no longer in network. Currently fighting to get him seen for continuing care (found an case manager to help). Unfortunately, with this disease you need to be your own advocate and researcher. Best of luck. We are hear for you if you have any questions.

Oct 23, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

My husband was diagnosed with MP in May of this year. His PCP said it was a “controversial” diagnosis, and his GI was not responsive. Since we live an hour from both DC and Baltimore, I started trying to find a doctor who was familiar with MP. Finally found one, but our insurance changed and this doc was no longer in network. Needless to say, the moral of the story, do not give up. Keep pushing. This is a REAL condition, and your pain is very real. What works for one person, may not work for the next person, so, you need to keep trying. I have found that raw fruits and vegetables cause my husband discomfort, so he eats primarily cooked fruits and veges. Basically, looking for things that are easier to digest works for him. Good luck, and don’t give up!

Jun 1, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you, @billindc . I guess we are all trying to find our way through this.

Jun 1, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you. I just sent a message to Billindc. Hoping we can connect and exchange info.

Jun 1, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello. My husband was just diagnosed with MP this past weekend. We have gone for years with the pain, nausea, vomiting, etc. When it gets real bad, we go to the ER where they rule out heart, drug him up for the pain, then send him home, often still vomiting, with instructions to follow up with GI. Fortunately we had a new young doc this past weekend in the ER who suggested MP, which was confirmed with the CT. He has had CT scans in the past which have “not shown anything definitive”, but now I wonder if they were just not looking in the right place. We are in Frederick County, Md, and were wondering if there was anyone in Baltimore or DC studying/familiar with MP. Have you had any luck? Thanks for your help.