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Fri, Aug 9 8:19am · Helpful Devices for MAC in MAC & Bronchiectasis

Do you need prescription to get it? Where can you order it? Thanks! Cila

Tue, Jul 30 9:47pm · MAC nodules in MAC & Bronchiectasis

Hello fdixon63, i feel for you and I have been there with the Dr. in Montgomery Al. I too have Bronchiectasis and MAC and took the big 3 for 18 months. I look for a good pulmonologist there but can’t find any. There all in one group. My name is cila and you put your number on private message and I will call you. Blessings and hug to you.

Oct 28, 2018 · The psychological aspect of dealing with bronchiectasis and MAC. in MAC & Bronchiectasis

Terri M, What kind of saline do you used? Is there a generic or brand name of that? Also,have not have any e-mails from the group in a while. Did I get disconnected to the group? I got a call from my ID doctor saying I got 100 colonies. She said she will put me back on meds. I don't fell like too but I have been felling sick and tired, shortness of breath. Sometimes my back hurts too. Thank you so much!! Cila

Sep 8, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

lch713 I buy purified water and boil it. I carry my drinking water everywhere I go.If you use Brita filter make sure to boil it for 10 minutes. Cila.

Jul 30, 2018 · We are so much more than our disease.... in MAC & Bronchiectasis

Hi Terri, just got a call from NJH about the result of my sputum text. I got 40 colonies and intracellulare. They want me send another sputum just to make sure I had the intracellulare. Its make me feel depressed when I do everything they tell me to do. Is this the kind of bacteria that Katherine had? Do you know anyone who has this bacteria? Thanks ! Cila

May 31, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

jkiemen, I know how you feel b/c I have MAC and bronchictasis and its not easy not to think about the disease but sometimes we need to get it out of our mind. It will get better and trust the Lord and He will get you trough to this. I will put you in my prayer and the Lord will give you His Blessing. Cila

May 19, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello cowgirlmt, been at NJH and first visit it about 10 days or 2 weeks. They check everything on your body. They are good over there. I have Bronchiectasis and MAC. MY Dr. here put me on 3 meds then after a year I had new nodules and he add another antibiotic. I took them for 18 months. When I saw Dr. at NJH she told to stop taking them. The meds made me sick on my stomach. I just came back from there last month. I do breading exercise, inhaling saline and physical exercise. Just wait and they will let you know about your appt. and you call them and ask question. I will have you in my prayer just hang in there. God Bless you and guide you. Cila

Apr 12, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you nick, I really appreciate your advised. I check the video and get the x-ray done. I noticed when eat bread get a lot of mucus. the mucus is on my throat I though mucus is coming from lungs. Anyway, I'm trying to clear the mucus and also I get so tired easy. Thanks again and Blessing to you. Cila