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4 hours ago · foamy urine. in Kidney & Bladder

@bdade59. About the foamy urine and protein. This foam is LIVER produced protein which has died and begun the decay process, not dietary as from eating too much protein. The kidneys then do not extract the dead protein as they should. The foam on the urine is easy to note. Mine is almost always at least 1 cm (1/2 inch) thick on the toilet water, and sometimes up to 3 cm. If you can watch carefully, and perhaps catch the urine in a clear container you will see that the urine may have a very fine foamy texture. I record the general depth of the foam each morning. It is a mark of some Amyloidosis Light Chain difficulty, and should never be ignored. It is rarely dehydration or full bladder. https://www.OncLive.com says the Amyloidosis Serum Free Light Chain (sFLC), coupled with the 24 hour urine collection will give a very good reading on the state of our liver and kidneys. The sFLC is very accurate at the protein output at this level. The older tests are good only at much higher levels. The acceptable level of daily hepatic protein output is UNDER (<) 0.5 grams. Above that level reside many diseases. But do not use any lab or test not extremely accurate at the lower levels. oldkarl

4 days ago · Problem with Tongue in Autoimmune Diseases

I lost both my senses of smell and taste a few years ago. Since then I have learned that this is, among other things, sign and symptom of several forms of Amyloidosis, including Gelsolin (Finnish). I was told it was Sjogren's, and it is that syndrome. However, the root is most likely one of the many forms of amyloidosis. It probably won't shorten your life any, but don't take a job as a chef.

4 days ago · Heart Disease: Let’s Talk About the Emotional Side in Heart & Blood Health

Angiev18, Yes, I did have, and to some extent still do, have local docs who have treated me to the best of their ability. However, in order to do that they had to defend me from some major labs, some get-rich-quick medicos, and assorted quacks. But when I show them the list of signs and wonders, most of them just sort of turn away to defend themselves. My symptoms at age 15 were chest pain and ankylosing spondilitis (I know now.). Middle age, three heart attacks, heart caths every few months. Now, it is the heavy stuff. Heart failure with recovered Ejection Fraction, organomegaly of every interior organ, cerebrum protein deposits showing transmissible Spongiform Encephalopathy, purpura on eyelids, toes, macular skin, cancers of thyroid, pancreas, prostate, lungs, esophagus. Cracking and breaking up teeth, massive eosinophil, flattened area across bridge of nose, chalaisis of eye socket and face, lower lip swelling, Am i doing ok now? Good question. I am still alive, but I can tell I am weakening rapidly. Lot of RA in hands and legs. Well, that's the heavy stuff. Heart wall thicknesses up to 17-18 MM, well past the 12 mm standard. Cutis laxa. Putting out about 2.5-3.0 G of hepatic protein per 24 hours. Leatherized urinary valve requires catheter 6-8 times per day. Most important, I am a fan of OMIM from Johns hopkins, I read everything I can get from Helsinki Univ. Hospital, Mayo, Boston Amyloidosis. And I tell everyone where they can find the info. Anyway, and I have diabetes 2, and get the good shoes from Priority. And put my books and stuff out there for folks to find and read.

5 days ago · Heart Disease: Let’s Talk About the Emotional Side in Heart & Blood Health

@lailaamin , One of my life-long problems is HCM. Mine was first diagnosed at about age 15. I am now 80, and still have it, but I know now it is part of my systemic hereditary Gelsolin (Meretoja's, Finnish Amyloidosis), with RyR2 and FKTN and some other stuff. Now this is not to say this might be your problem as well, just that it is mine, complete with a couple dozen stents, total 30 heart caths, 2 CABG with 7 repair sections. Every organ, tissue and liquid I have has been impacted by this. Anyway, a low-carb diet, hi-exercise regimen, along with a constant growth of knowledge of what I have has been a lifesaver for me. Frankly, I have had to do most of it on my own, because of the emotional cost of the failed medical care we all seem to receive. Only the various images (CT, X-Ray, Echo, MRI, ECG, etc) have actually been trustworthy, so I rely in this evidence and some very good lab work from Mayo, Alnylam, Ambry Genetics for functional diagnoses. But even that is argued against by doctors who are extremely jealous of the top labs. So I completely agree there is a terrible emotional toll on HCM and other cardiology patients. I have had to struggle with temptations of suicide many times, to each time I have to go back to the materials I have collected over the years that show the reality of my issues. I bought Dr. Gertz big book on Amyloidosis, so several big clinics refused to see me any more because I had consulted with Minnesota Mayo. Well, actually, I did drive by a building of theirs about 40 years ago. Getting old with HCM and all the other signs of Gelsolin is not a pleasant life.

Fri, May 29 1:04pm · foamy urine. in Kidney & Bladder

Tylenol folks say most dietary kidney damage is done by acetaminophen, both the good stuff, and the fake. The big problem is over-eating acetaminophen. I take a lot, but no more than the directions on the container indicate.

Fri, May 29 12:59pm · foamy urine. in Kidney & Bladder

Eating too much protein is very rarely the issue. This is almost always dead/dying liver-formed protein. The protein is formed, mis-folds, forms another, and dies within a couple hours or so. It can then be deposited in any tissue in the body as prions, or be deposited in any liquid waste. If your body is excreting more than a half-gram of protein in 24 hours, you are moving into dangerous territory. The Bindings Site Serum Free Lite Chain assay, coupled with the 24-hour urinary protein measurement, should give very good analysis. But you must be careful. There are too many scrap-paper labs out there, mostly owned by doctors, which do not have the rights or the equipment to do the sFLC or the 24-hour, so they fake up something else, and say "Oh, it's OK. This person is going to die anyway." ALWAYS be sure the lab is licensed. I use ARUP in Salt Lake City, mostly, but there others with great records, such as Boston, Emory, Duke, MD Anderson.

Thu, May 28 5:42pm · Mysterious shortness of breath in Lung Health

@tamaracaitlin You are right to push on your doctor. I have compiled a list of about 250 symptoms and medical signs which would point toward my autoimmune disease, and I have been medically diagnosed with about 200 of them including blood work, urine, various scans, etc., I have tried to get one of the 1-AAA labs to do molecular diagnostics with me, and they have so far refused. They have said that "Even if we diagnose it, there is no cure and no treatment for what you appear to have, (Gelsolin) so it does not matter anyway." Shows you the quality of health care in Oregon.

Thu, May 28 11:17am · The best AIC goal for type 2 diabetics in Diabetes/Endocrine System

@hadit17 I recently stumbled across a little tool that is a real blessing for us D-2 folks. I signed up for one of the little non-needle-prick stickers. I have to replace the sensor every 14 days, but that is minimal bother. And each time I read my own numbers, four times each day, I look carefully at the pattern for the previous few hours, or a day or even up to 90 days. Then I try to adjust my glucose pattern to do a better job of keeping the numbers on goal. I am sure the insurance folks like it better than the strips because it is actually cheaper, ($1.00 per day or less for as many readings as you may want), does a much more accurate job, sends the numbers to the doc, and is actually proof that I read my numbers. The only down side is learning to leave the little thing alone so it does not fall off before the 14 days are up. But I am getting better. And the ability to see in real time what my GL pattern looks like is worth its weight in Bugs Bunny Carats.