Member has chosen to not make this information public.

Posts (604)

Nov 10, 2018 · Meds for cardiomyopathy / heart failure. in Heart & Blood Health

@tahoetaylor All of us sit in a pile of dog poop some time. I don't have what you have (I think) but if you are looking for something to read, my story is at httjps://bit.Ly/1w7j4j8 'Amyloid and Old Karl' . You might find something to laugh about, I suppose. Anyway, hang in there, and keep pushing back at the medicos.

Oct 4, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@walesewicz Gosh, that sounds familiar. After two surgeries which failed miserably, I decided to try something different. It is simple, but needs to be done every day. Lay flat on your back, without a pillow. Start by bringing your knees, one at a time, as far toward your chest as you can. Do as many as are comfortable, then do another group late in the day. After a month or so, just repeat, then lift each leg about six inches and make little circles. Do what is comfortable. Then repeat tomorrow. It will tighten your belly muscles, which are the muscles which support your spine. It may take a few months, so don't hurry it past being comfortable. Oh, and walk if you want, but only as far as is comfortable.

Oct 4, 2018 · Doctors mistake watch out. in Autoimmune Diseases

@techi Hi, Lisa. That sort of treatment really takes the hope out of our medical systems, but it happens every day. for about 8 years I have been telling doctors that I have some sort of autoimmune that is eating up my insides. The Cardi here reported that I was a psycho, so the major clinic here refused to see me again. Now an independent Pharma (Ambrygen) now has diagnosed me with RYR2 and FKTN, plus others. One result of these is muscular dystrophy..Then a couple days ago I lifted my foot off the ground so I could get into my car. That sprained, pulled, tore my knee soft tissues. So I went to the ER. Told the doc. He basically said, "Take a couple aspirins and……." sent me home with a knee brace and a walker. "Call another doctor in a few days if you still have pain." Thinking of you. Old Karl

Oct 1, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@rabbit10 I have had neuropathy over most of my body for about 20 years, I am now 78. I have several types of autoimmune, including rheumatoid arthritis, muscular dystrophy, Cardiomyopathy, cerebral amyloid encephalopathy, headaches, cornea lattice failure, purpura, Gelsolin, Cardiac arrythmia, Spinal stenosis with nodules, several organ cancers, Kidney failures, breaking teeth, pancreomegaly, cardiomegaly, multiple strokes and heart attacks and other stuff. I took gabapentin, Lyrica, etc. The only thing that has helped is Walmart Equate generic super-tylenol PM 8 pills a day, and Sipping Raw Apple Cider Vinegar with honey and turmeric. At least I can sleep now.

Sep 22, 2018 · Will I have a heart attack or stroke? in Heart & Blood Health

Here is an article everyone should be aware if. It talks about a form of Amyloidosis but is important for every person with and disorder or is a caregiver for such a person.

Sep 22, 2018 · Stiff Heart - diastolic heart failure in Heart & Blood Health

@thankfulalways Lots of rest. Side Effects? get lazy, I suppose. It is an autoimmune, and up to now incurable and fatal.


@boomerexpert It is simple. If you get hereditary Gelsolin Amyloidosis, you will, as part of it, get an "amorphous (shapeless) deposit of dead protein prions (cells) in the top of your head. This will make you depressed and easily angered. It will affect everything you do. The source is the Gelsolin program and clinic at the University of Helsinki in Finland. Finland is apparently where Gelsolin started, and the Vikings spread it around the world.

Sep 22, 2018 · Will I have a heart attack or stroke? in Heart & Blood Health

@jackiekos A1c is a test that gives your glucose reading for the previous few months. It is much more relevant and accurate than the simple glucose strip monitoring. Most pros will tell you that 5.6 is the top acceptable range, but I feel good about keeping it under 6.5 now. You can have your own A1c meter, but the docs prefer you don't. Job security.