My last post here was in August. Since then my wife has continued to decline physically and cognitively. She barely shuffles when she walks and even then she has to stop every 5′-10′. When she walks she holds on to the walls, the railings for balance I guess or safety. She says she loves me but she says that to the PSW’s who care for her too so I don’t feel very special about her saying that to me. She is now on pureed food. She is unaware of her bodily actions-she often puts her feet up on the dining table at meals. She lays on her bed with her feet on the footboard, and feet on the pillows.
Every rare once in a while she will utter something so candid, so common sense that I wonder “where did that come from?” Obviously there is still a person in there, I just wish I could coax more of her out when I am with her. I am so stressed watching her when she doesn’t know I am there. Seeing her reach out to anyone who comes near. Speaking to them as if she knows them or they her. Most of her verbalization is gibberish, sometimes she will actually say complete words like: “Yes, No, OK, Alright, Let’s go!” and a few others. Right now because she cannot communicate about herself it was discovered (at my insistence) she has a UTI. And after 2-3 weeks that UTI is now made up of 2 E-Coli bacteria for which she is receiving an antibiotic.If she could tell us about her discomfort this may have been caught earlier. I suspect with 6-12 months her mobility will be reduced to being transferred to a chair of some type. I have given up hope and I am now resigned to watch her sink into a situation no human being should have to endure.