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Posts (55)

May 22, 2018 · Gallbladder surgery in Digestive Health

Hi @tvashon. I am sorry you are having so many problems. I had my gall bladder removed last September with almost no issues. I can tell you I was tired for months and now can't eat greasy foods without some problem. Because of all your combined diagnoses, I would suggest you get all of your different doctors together, either in a conference call or in person to talk about it together. I would think there would be someone at the hospital or clinic that could coordinate such a meeting. It is important to tell them all at once what you are experiencing. Maybe together they could come up with some solutions for you.
Wishing you much luck, health and solutions.

Mar 7, 2018 · Gallbladder surgery in Digestive Health

I lost weight before my gall bladder surgery. After the surgery I maintained the weight until I was able to eat more and eat more often. Since last September I have put on about six pounds. But, again, I wasn't able to eat much before the surgery. I hope that's helpful.

Dec 31, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Back Atcha!!!! Happy New Year!!

Dec 14, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi @fernandoparce, You have a lot of good questions. I would agree that you should go to the NIH link that @hopeful33250 posted for you. Lots of good information there. Sounds like your CT Scan was clear, as was your Xray. Did they tell you they saw a “misty messentary”? To answer some of the questions, I don’t know much about question 1.
2) The diet I followed when I was diagnosed was the FODMAP diet. https://www.dietvsdisease.org/diy-low-fodmap-diet/#A_low_FODMAP_diet_is_very_restrictive_and_designed_to_be_temporary That was very helpful to me.
3) You can have MP without having cancer. Cancer was a concern of mine, as well, because of family history. I do not have cancer.
4) The weight loss will stop when you’re able to eat again. Small meals/snacks several times a day work best. You don’t want to overeat, you’ll just feel bloated and sick. Try not to eat until you feel full.
5) I took Prednisone for about 3 months. It helped a lot. The only side effect I had was some hair loss. But my hair grew back when I stopped taking it. I’m sure there are other drugs you can take.
6) Besides the Prednisone, I was just really careful what I ate and how much I ate. I had a lot of poached eggs. No fried foods at all. That, I have to say, is and was the hardest change to make. I love fried chicken and french fries.
Please talked to your doctor about your gall bladder. After being diagnosed with MP, I went through all the treatment and a year later I didn’t feel well again. It turned out to be gall bladder polyps. Had someone shared that with me, I would have checked my gall bladder sooner. I had my gall bladder out Sept. 27th. I’ve been feeling much better.
I hope some of this is helpful. I know having a rare disease is scary. But if there was ever a time to have MP, now is the time. There is so much new research out there. The mesentary has just been discovered as being an organ all its own, instead of a “bridge” between other organs. So there’s lots to read about about. Google, Google, Google. Arm yourself with questions for your doctor. Don’t let them tell you it’s nothing. Just keep researching and asking questions.
Take Care,

Dec 1, 2017 · Gallbladder surgery in Digestive Health

I’m so glad you saw your surgeon. I hope you feel better soon.

Dec 1, 2017 · Gallbladder surgery in Digestive Health

Exactly. If my experience helps someone, I’m more than happy to share.

Dec 1, 2017 · Gallbladder surgery in Digestive Health

Hi Roisemaire. I am sorry you had to have gallbladder surgery. Was your surgery laparoscopic? I am about 8 weeks post surgery. I had some pain at 4 weeks. Some achy-type pains, some shooting pains. I called the doctor and was told that was expected. After the surgery, your nerves have to “wake up” as they are reattaching and rerouting themselves. It is certainly uncomfortable to say the least. I didn’t experience nausea. I was very careful with what I chose to eat. I didn’t eat anything high fat (cheese, ice cream, cream cheese, etc). I ate a lot of rice, potatoes, baked chicken or turkey. I ate a lot of eggs and introduced vegetables like spinach and other leafy greens at four weeks. I had four small incisions that took a while to heal. I had to be careful what kind of clothes I wore so that they wouldn’t tear at the sutures. Getting up from laying down was tough, but finally got better around 4 weeks. I’m a pretty good patient, but not a patient patient. You know what I mean? Remember, you’ve had surgery, whether it was laparoscopic or otherwise. Your body goes into “shock” for lack of a better term. If you are having a lot of pain and a lot of nausea best advice I have for you is to call your doctor or surgeon’s office. They can give you something for the nausea. I didn’t use any narcotics during the surgery or for pain killers afterward. I don’t metabolize narcotics very well. If you are taking pain killer (opioids) that may be contributing to your nausea. At 8 weeks post surgery I am feeling really great. I’m eating what I want (except for fried foods, fried chicken specifically, darn it!!). I am eating smaller portions. I find that eating to the point where I feel “full” makes me feel sick instead of sated.
I hope what I’ve written has helped you. I am here if you have any more questions. Thank you, Coleen, for connecting us.