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Jun 23, 2016 · does anyone have Dermatomyositis? I'm going for my muscle biopsy. in Autoimmune Diseases

I know exactly what you are going through. I went ,for years, back and forth to numerous doctor’s only to discover I had an autoimmune deficiency disease, called, Polymyositis. Had biopsy on right thigh, because I could not get out of bed one morning because I couldn’t feel my right leg. I slid out of the bed to the floor and crawled using my arms to propel myself. The pain was horrible.Then an hour later my leg was fine. My wife dragged me to the doctors, 🙂 ( men we are stupid ) And so started my journey of endless and ” I can’t find anything wrong” dance, that finally ended with a savvy young doctor, who found the problem. So when my polymyositis is not in remission it’s, some exercises and steroids, only temporarily, until it’s back in remission, which could be days or weeks.
No cure, for this, but I can say, that I have been in remission, for 5 years now! (crossing fingers) That’s all I can do.
John

Jun 9, 2016 · Lung volume in Lung Health

Thank you for the kind words. They do not fall on deaf ears.
John

Jun 9, 2016 · Lung volume in Lung Health

Katherine,
You are such an inspiration. Now I understand something about your condition and like they say “never assume anything”.
I didn’t understand, my fault, what MAI/MAC was all about and just assumed you had, end stage emphysema. I like being “taken to school”, as they say, 🙂 because I didn’t realise, the many different kinds of afflictions of the pulmonary system there are.
So you opened my eyes and I’ am grateful.
Your lung capacity probably doesn’t have any relevance to my condition..
Thank you for making me slow down and read more, carefully and comprehencelly; a must, when researching.
You have a wonderfull day, Katherine. God bless.
John

Jun 8, 2016 · Lung volume in Lung Health

Thank you for your reassuring words. I will keep you in my prayers, along with all the inflicted people in the world.
I have been working with a physical therapist twice a week. I have a set of easy, but effective exercises that I do daily. It has made me so much better, physically and mentally. It gave me self-confidence and ,some, much needed , peace of mind.
Will you share with me what your lung capacity is? If not, I understand.
You have a good day for yourself and God bless you.

John

Jun 1, 2016 · Lung volume in Lung Health

Thank you for sharing your story. I will ponder what you said especially the “It is like being in a canoe between two islands”.
I’ll remember this.
Thank you and God bless.
John

May 23, 2016 · Lung volume in Lung Health

Thank you for your thoughtful response. I will be going for a battery of lung tests on May 31, 2016 and will better understand what 15% lung capacity means in the overall scheme of things, as it relates to my empyema.
I’ll will keep you posted and again thank you.
John

May 23, 2016 · Lung volume in Lung Health

Thank you for your thoughtful response. I will be going for a battery of lung tests on May 31, 2016 and will better understand what 15% lung capacity means in the overall scheme of things as it relates to my empyema.
I’ll will keep you posted and again thank you.
John

May 19, 2016 · Lung volume in Lung Health

My lung volume is 15%. I didn’t ask doctor what this means out of fear, about a week ago. All he said was its “bad “. I left office and I am fearful to really research this. Please respond positively ( you know what I mean) what should I expect?