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May 13, 2016 · Treatment options for Dysautonomia in Autoimmune Diseases

I was diagnosed with this in 2014 and am having a hard time dealing with this ontop of all my other medical conditions

May 13, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

May 13, 2016 · Autonomic Neuropathy - Looking to talk with others in Autoimmune Diseases

Hi! I just have to tell you that you are not alone. I’m 33 almost 34 and was a major athlete my entire life and I was also diagnosed with Autonomic neuropathy in 2015 at the Mayo Clinic in Scottsdale and I am also getting ready to go through chemotherapy for my thyroid gland and was diagnosed with Hashimoto’s in 2015 as well, along with many other medical conditions. I hate that I am not even 34 years old and dealing with all of this medical stuff and it’s really hard for me to explain to friends and family members about my health and I haven’t been able to work in almost 5 years! I have not tried Cymbalta, but that’s because my heart won’t let me and I hate having to rely on heavy doses of narcotic painkillers and worry about running out and going through withdrawals NOT because I’m addicted to them but because after being on them for so so many years my body is definitely dependent on them. I have such bad bone pain and muscle aches and spasms and I have had 16 surgeries including hip and knee replacements. I also have EDS or Elhers-Danlos Syndrome and I can’t help but worry that I brought a lot of my serious chronic health problems on myself after being way too hard on my body for decades being too underweight and pushing myself way too hard in many sports; even though I know I didn’t really cause all of my problems.