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Tue, Sep 24 12:13pm · PMR Anyone? in Autoimmune Diseases

Thanks, John. I will check these out!

Tue, Sep 24 9:31am · PMR Anyone? in Autoimmune Diseases

Thank you John for getting this moved to another discussion for more views- what is this discussion thread under? He takes 5 mg, one in a.m. & one in p.m. He is now taking 1 in a.m. & 1/2 in p.m. On visit to rheumatologist last week he ordered a lot of bloodwork. Not sure what he is looking for…..

Tue, Sep 24 9:31am · PMR Anyone? in Autoimmune Diseases

Thanks, John. I always review his labs. It's very odd, I don't believe his SED rate has ever been very high. He also has an elevated CPK level (he has had this for a number of years). Our dermatologist, who also treats patients with PMR, advises that none of his PMR patients have an elevated CPK level. He seems to indicate worry about this….. However, the rheumatologist doesn't seem concerned.

Tue, Sep 24 9:31am · PMR Anyone? in Autoimmune Diseases

Is there anyone in this group that was initially diagnosed with PMR and, after several years of not being able to lower prednisone dosage, been diagnosed with ANOTHER ILLNESS?
My husband was diagnosed with PRM 4 years ago and prescribed prednisone. He has tried many times to decrease the prednisone, but each time he has the severe all over body aching returns within 30 minutes of lowering his dosage. (he is on 5 mg bid) His rheumatologist has now expressed concern about his long term usage of the prednisone and has now put him on Hydroxychloroquine (plaquenil) which he has taken before and had to quit due to extreme fatigue. Doctor also mentioned methotrexate but decided against prescribing it due to husband's elevated liver count.
Thank you for any and all replies.

Tue, Sep 24 8:18am · Sepsis & Medical Questionnaires: When can I stop answering yes? in Intensive Care (ICU)

Congratulation on being 2 years post sepsis! My husband came very close to death 4 times w/sepsis. I am curious- does your infectious disease doc have you on suppression therapy? My husband has been on Pen VK going on 3 years now to keep sepsis abay.

Mon, May 13 3:26pm · Back issues causing problems with feet and legs in Spine Health

Thank you for the post. Not looking forward to surgery, but with degenerative discs I don't know what other option there is.

Mon, May 13 6:28am · Back issues causing problems with feet and legs in Spine Health

He does have deteriorated discs in his back. I, too, am a bit leary of this diagnosis as this same doctor told him back in 2009 that his foot issue was a genetic disorder and could be fixed with surgery and when I said to him, "you don't think this is a genetic issue?" his replied, "oh no". That sent up red flags immediately. My husband has other issues that make surgery somewhat risky & my thought is that this doctor just doesn't want to do surgery on him and is passing him off to another doctor……

Mon, May 13 6:23am · Back issues causing problems with feet and legs in Spine Health

Thank you for the reply. He has been to an orthopedic doctor who advises foot turning out is due to weak muscles/tendons which, he says, is caused by back issues. He doesn't have bunions. He has a large callus on side of foot due to his walking on the side of the foot.