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Posts (59)

Wed, Oct 30 2:57pm · Possible NET with No Evidence of Tumor: Mediastinal Mass in Neuroendocrine Tumors (NETs)

Dr. Edward Greeno at the U of M is a neuroendocrine specialist

Wed, Oct 23 7:14pm · Poorly differentiated High Grade Neuroendocrine Cancer vs other in Neuroendocrine Tumors (NETs)

I was diagnosed with neuroendocrine carcinoid in 2002. In all of the years since I have had CT scans and a few MRI's, but NEVER a PET scan, Ki67, octreoscan or any of the usual diagnostic scans. Anyone have a clue as to why??

Wed, Oct 2 8:52pm · Neuroendocrine Cancer Support Group in Neuroendocrine Tumors (NETs)

I live in Minnesota and will be in another meeting during the time this meeting is going on and would like the nutrition information.

Tue, Oct 1 1:07pm · What topics do you want for the Neuroendocrine Support Group? in Neuroendocrine Tumors (NETs)

I, too, am very interested in learning more about nutrition/diet to know what to eat or not eat with my NETS of the small intestine. I have a conflict with the Thursday, Oct 3, 5:30 EST informational meeting. Is is possible to get a transcript of this meeting, please?

Tue, Sep 24 4:46pm · Welcome to the NETs Group! Come say hi. in Neuroendocrine Tumors (NETs)

What is this doctor's name and where in Iowa does he practice?

Tue, Sep 24 10:28am · Neuroendocrine Cancer Support Group in Neuroendocrine Tumors (NETs)

Is it possible to get a printed transcript. I am very interested in this topic – have issues related to it. Thanks!

Tue, Jan 29 12:14pm · CARCINOID CA - NOW CALLED NET'S (Neuroendocrine Tumors)- in Neuroendocrine Tumors (NETs)

I have educated myself on the PRRT process. I am most interested in your PERSONAL experience, i.e.recovery time, nausea, weakness, etc. etc.

Mon, Jan 21 9:38am · CARCINOID CA - NOW CALLED NET'S (Neuroendocrine Tumors)- in Neuroendocrine Tumors (NETs)

Get to the right doctor/facility – there are still options out there for treatment