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Posts (52)

1 day ago · CARCINOID CA - NOW CALLED NET'S (Neuroendocrine Tumors)- in Neuroendocrine Tumors (NETs)

thank you – just watched hours of you tube videos on NET. What was your PERSONAL response – nausea, fatigue, recovery?

2 days ago · CARCINOID CA - NOW CALLED NET'S (Neuroendocrine Tumors)- in Neuroendocrine Tumors (NETs)

I am due to return to Mayo in April for followup and talk of PRRT. Can you tell me what it is like?

2 days ago · CARCINOID CA - NOW CALLED NET'S (Neuroendocrine Tumors)- in Neuroendocrine Tumors (NETs)

I am @gaylejean. I have never signed up for any area on Mayo Connect EXCEPT the NET one and I keep getting other stuff

Nov 20, 2018 · My son's neuroendocrine tumor in Neuroendocrine Tumors (NETs)

@hopeful32250 I reviewed the list of Mayo NET Specialists and my doctors name is not on it (Dr. Henry Pitot). Now this bothers me.gaylejean

Nov 1, 2018 · Embolization in Neuroendocrine Tumors (NETs)

A thin catheter through the groin under light sedation. Has anyone else had this done and what was their experience?

Nov 1, 2018 · Embolization in Neuroendocrine Tumors (NETs)

I had an embolization on 9/26 and am due to schedule another one. The procedure went well. With my "touchy" stomach (doesn't like antibiotics or pain medicine so was nauseous and stayed two nights in the hospital. I feel pretty good now – some days I am really tired with no energy.

Oct 2, 2018 · NET - Insulinoma in Neuroendocrine Tumors (NETs)

I, too, have NET (Ileum), along with several METS. I have been going to Mayo since April, 2002, for labs, scans, MRIs, surgery, office visits. I just had bland embolization of one larger tumor on my liver. Sounds like we need to have a personal conversation.