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6 days ago · Looking for others with Pituitary Adenoma in Brain Tumor

Hi, @ladydove417 I hope this email finds you well. I was reading what you wrote. My husband I was diagnosed with Pituitary Adenoma,Also look like he was starting to have Cushings Syndrome,after 5 years and many test,my husband did his surgery. First thing I will tell you is Never settle for 1 opinion, I took my husband 3 Neurologist,2 endocrinologist. Until we found perfect doctors I dont know where you live but where I live we have University Of Miami (UHEALTH). Sometimes you need to go some place else to get better opinion,but if you cant . I will give you his doctors name and maybe you can find doctor in your area that are similar like my husbands. I will tell you keep a binder all report,and CDs all your labs,MRi,Cat Scan, anything you have done. All medications given also. His endocrinologits is Dr Atil Kargi and his Dr Ronald Benveniste neurologist surgeon. My husband had high blood pressure, he was gaining weight,swelling around his stomach,headaches,he even started have visual problems,and sugar was trying to turn to diabetes. It is a very hard process,lots of emotions. I will tell you this my husband was complaining dull headaches so I made 1 appoinment with regular neurologist and he told him and I was there "so you can stop crying and whinning,I'll send you for a cat scan,because you are to young to have anything'. Oh boy when the result came in,he didn't know how to talk to us or look at us. We new what the result was prior ro him telling us because we had picked up copy of the results and before he said anything I was already looking for another doctor. Please dont lose hope,you need to stay persistant and if a doctor tells you have nothing and you feel uncertain get another opinion. I know some insurance makes it hard but you need to talk to them and unfortunately have to pay out your own pocket. I send you hugs and prayers.My last advice is look for God and let him guide you and leave your worries to him and he will come thru for you,like my husband did and my children and I are very grateful,because my husband is with us today.

Wed, Mar 13 12:16pm · Looking for others with Pituitary Adenoma in Brain Tumor

Hi, Sandy I hope you are doing well. I dont know where you live but, University of Miami and Jackson Hospital took care my husband Dr kargi endocrinologist and Dr Bienveniste neurosurgeon are mu husband doctor . My husband spend 5 years under treatment and when he started showing signs blood pressure, sugar level rising, weight gain and and not improving he decided have surgery, it has been 8 months seems his surgery and he has been taken off all medicines. He is doing great and I hope maybe you can go see his doctors for a second, third or fourth opinion it's all worth it. May God be with you and I will put you in my prayers.

Feb 3, 2017 · #MayoClinicNeuroChat on Brain Tumors in Brain Tumor

Hi, can you tell me if their is any new procedure,or treatment for patients that have PITUITARY Adenoma. My husband was diagnosed, but he is not ready for surgery.

Jun 1, 2016 · Balance and falling a lot in Brain & Nervous System

Could be vertigo,could be medication side effect,your neck . You should
speak to your doctor to check imbalance your ear or cervical spine issues.
Good luck

May 31, 2016 · Balance and falling a lot in Brain & Nervous System

So that adenoma has also cause another illness, cushing disease. It so
important to get more than one opinion.

May 31, 2016 · Balance and falling a lot in Brain & Nervous System

Hi, your story brings back to when my husband. He went to neurologist
because he was having headaches,very unsual for him. He went to eye doctor
everything was normal, so when we went to him,he said it was nothing.

We told him send him ct scan or mri. He said no,but we insisted (here said
to shut you up,and so you stop crying like a baby alright)

He Ct scan it showed something, then he send him Mri that gave diagnosis of
PITUITARY ADENOMA.

May 25, 2016 · Looking for others with Pituitary Adenoma in Brain Tumor

Was the decision of the treatment Co joined with endocrinologist and
neurosurgeon. That’s how we are doing it. He got diagnosed also cushing ‘ s
Disease,and your husband
.

May 25, 2016 · Looking for others with Pituitary Adenoma in Brain Tumor

Hi Shells.

I wanted to ask, did you and your husband seek more than one opinion. Do
you live here in Miami,Florida.
We have been monitering for 2 years but the doctor said,not to prolong it
anymore. Even though his MRI’s show is stable and has not grown. We go to
University of Miami/Jackson Memorial Hospital. maybe you should get another
opinion.
Endoctinologist check on my husbands cortisone level by spit and blood test.