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Jun 4, 2018 · What Pets Can Do: Health and Healing in Just Want to Talk

I work with a hospice group the used dogs with their patients – another group that uses them

May 17, 2018 · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

My Doctor would call what you have "Essential Tremor". I have it. My hands only shake with I want them to work, like eating or writing. My Doctor said if I was just sitting still and I had a tremor, that was PD.

Nov 6, 2017 · scar tissue after knee replacement in Joint Replacements

I had right knee replacement surgeries in 2002 and 2004 and 2006 and 2008. Then in 2011 I broke the large bone in my upper leg and they put in a bar (and scar) from hip to knee and on October 5, 2017 I tripped and broke the fibula in a difficult place to find, but it was broke and after surgery (In which the surgeon couldn’t find any bone to work with in the knee area) I am in a heel to groin brace and I am not allowed to step on it for 3 months so am in a TCU where I live, Never had to worry about scar tissue. In some respects I wish I had, maybe life would be different. At 74, I fear I may be stuck in a wheelchair because my leg will be so weak after 3 months of no use or exercise. I may also be stuck in a wheelchair because the surgeon didn’t give me a very high chance of success considering how he was forced to connect the two areas, UGH – My cousin says UGHS should be changed to HUGS, but I have a bit of trouble doing that! trouble4343

Apr 2, 2017 · Socialization and Parkinson's Disease in Parkinson's Disease

I understand the point in the brain that relates to Parkinson’s is very close to the point in the brain that relates to depression and bipolar disorder, I learned this info from reading some of my insurance policy which says my company won’t do the Parkinson’s operation on me because I have bipolar disorder. I don’t know if it relates to speech.

Jan 26, 2017 · Questions about Azilect as a mono therapy for Parkinson's in Parkinson's Disease

I used to take a MAO I for bipolar depression and the list of foods I couldn’t eat (or drink) was LONG!

Jan 26, 2017 · Questions about Azilect as a mono therapy for Parkinson's in Parkinson's Disease

Gave it the ‘old college try’ but like all the other meds that end in “olol” after 5-6 weeks they stopped working and I’m shaking badly and looking again. I just might see if I can go through the same “olol’s” I did before but if they work at the beginning, I’ll switch to a different one before they stop working.

Dec 29, 2016 · Socialization and Parkinson's Disease in Parkinson's Disease

Just found this article in another on-line site I subscribe to. Don’t know how to send just the citation, so I am copying it all and putting it at the bottom of my short statement. The article doesn’t speak directly to PD, but it is about friends and family leaving and also suggests some alternatives. It suggests a support group. trouble4343

“We may not look sick, but turn our bodies inside out and they would tell different stories,” Wade Sutherland.

Invisible Illness: When Others Can’t See Your Pain
Life with a chronic condition like fibromyalgia or chronic fatigue syndrome can be frustrating in many ways, including the fact that your physical pain isn’t visible from the outside. People living with invisible illnesses have to sometimes convince others of their symptoms.
By Wyatt Myers
People who break their arm, throw out their back, or experience another form of injury may be in rough shape, but others can see their injury and understand their limitations.
But for the millions of people who are living with arthritis, fibromyalgia, chronic fatigue syndrome, and other forms of pain that are “invisible illnesses,” explaining what’s wrong is another side effect of their condition. Not only do you have to put up with challenging, often painful, and sometimes debilitating conditions every day, but on top of that, you may have to face skepticism from people — friends, family, and co-workers, as well as strangers — who don’t understand what’s wrong with you.
The Challenges of Invisible Illnesses
This was certainly the case for Allison Bigman, a New Yorker who has lived with chronic fatigue syndrome for more than 15 years. Her symptoms were so overwhelming at first that she had trouble managing them. Lack of understanding of the pain she was going through meant that she had to quit her job. Then, she noticed that many of her friends stopped calling or stopping by. “The disease changes you, and many people just don’t understand it and can’t handle seeing you that way,” says Bigman.
The social isolation and challenges faced by Bigman are not unique among people with fibromyalgia, chronic fatigue syndrome, or similar health issues. These conditions can be difficult to prove, and workers’ compensation and personal injury cases can become “expert versus expert,” with no one winning. And people with invisible illnesses frequently get a lack of sympathy from family members and doctors alike.
Unfortunately, doubt is not the only uphill battle that people with “invisible illnesses” like fibromyalgia, chronic fatigue syndrome, and arthritis have to climb. Peter Bongiorno, ND, a naturopathic physician with InnerSource Health in New York City, says that they often have to fight simply to get access to handicap services or even help from their doctor. “Oftentimes doctors will recommend the patient visit a psychiatrist, their partners tell the patient to basically ‘learn to deal,’ and bosses and co-workers view the patient as a chronic complainer,” he says.
This lack of belief in the illness can affect people financially as well. “Some unscrupulous insurance companies use this medical confusion to avoid paying people the health and disability insurance benefits they paid for,” says Jacob Teitelbaum, MD, director of the Fibromyalgia and Fatigue Centers and author of Pain Free 1-2-3: A Proven Program for Eliminating Chronic Pain Now. “This can leave people impoverished as well as crippled.”
How to Help Others Understand Your Illness
There are a few steps you can take to turn doubters into believers when facing the challenges of invisible illnesses like fibromyalgia, chronic fatigue syndrome, arthritis, or other types of chronic pain.
Start with your doctor. The solution is quite simple, says Dr. Teitelbaum. “If you have to convince your physician you have a real disease, you are seeing the wrong physician. Holistic physicians or pain specialists belonging to the American Academy of Pain Management are more likely to be familiar with these conditions.”
Try talking to your co-workers and loved ones. Bigman had success in explaining what was wrong with her by having the people in her life read up on the medical literature about her condition.
Invite a loved one to attend a doctor’s appointment with you. “Sometimes, if they can hear it from a doctor that you are suffering from chronic fatigue syndrome, that will help them accept and start to understand what’s wrong with you,” she says.
Bigman’s attempts to make her family understand her chronic fatigue syndrome were successful. She now relies on the help of many friends and family members and is working closely with several doctors to manage her illness and recover from it.
Still, she adds that even if your loved ones begin to understand your invisible illness a little better, they can never completely relate to what you are going through. That’s why finding a support group of people with your same condition can be so helpful. Ask your doctor about support groups in your area or check online for more information.

Dec 28, 2016 · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

johnjames, Colleen connected your name and mine, I think because I have been involved in the PD/mental health combination for quite awhile: Bipolar Disorder for some 40+ years and PD for who knows how long. I think of them as the two “rulers of my life” – and I am not always sure which one is on top. We talk about stigma a lot with mental health, but what PD people ‘receive’ from their friends is about the same thing! Really the only thing you can do is get to the point where you know “you are the one in charge of you” and what the others think is really their problem. It is easy (and I know it first hand) to pull back and just remain alone, but being the ‘only one in charge of you’ when you pull back, the ‘only one you are hurting” is also your. Want to talk more, just let me know! Trouble4343