@teresa, Volunteer Mentor – My response to @jdb – @trouble4343 – was credited as a reply by hopeful3250. Sorry! this is from trouble4343. Can it be fixed? And maybe expanded to say the "actual name" of the section on knee surgery?
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Mon, Sep 2 4:07pm · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease
Mon, Sep 2 3:18pm · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease
Please read the responses to knee surgery before you have the knee replaced. It is nothing to "look forward to". Much heart ache and wondering!
I am talking about another Mayo section, like the Parkinsons section, that has 100's of responses in negative statements. (Worse than negative, if you can imagine.)
I have had 6 knee surgeries – four about knee replacement and two for other reasons. I am in constant pain from those related to TKR (the shortened form of "the knee replacement!). Was diagnosed with Parkinsons some years ago, and stopped taking the carbidopa-levodopa when we found it wasn't working. We found out the tremor in my right hand are "essential tremor" so no Parkinsons med would work for that (no other med works for extended periods of time, either).
Good luck, Hate to find folks like me — dual diagnosis, if you will! Please read the TKR section before you have it done.
Let me tell you my story. I have had six knee surgeries ( 2004, 2006, 2008, 2011, and 2017) all on the same knee! I have had 4 different Docs. The pain has gone from bad to worse and none of the Docs have suggested anything about working on the scar tissue – most have just given *pain pills* of the bad kind and given me some type of shot in the knee (I guess I should say I now get a shot in the other knee as well – it is now bone on bone, and crying out for replacement which I an not ready for right now!) I have walked with a brace with walker for 6 months – and now I use a walker full time and suspect there will be no recommended change.. Every step hurts, Sometimes I head for the pill bottle but mostly just live with it. I had PT to the max and generally was at 90+ a little better degrees and they said that was all I got. I am a 75 year old lady living in a nursing home and no one knows what to do with me besides giving me the pills!
My Doctor would call what you have "Essential Tremor". I have it. My hands only shake with I want them to work, like eating or writing. My Doctor said if I was just sitting still and I had a tremor, that was PD.
I had right knee replacement surgeries in 2002 and 2004 and 2006 and 2008. Then in 2011 I broke the large bone in my upper leg and they put in a bar (and scar) from hip to knee and on October 5, 2017 I tripped and broke the fibula in a difficult place to find, but it was broke and after surgery (In which the surgeon couldn’t find any bone to work with in the knee area) I am in a heel to groin brace and I am not allowed to step on it for 3 months so am in a TCU where I live, Never had to worry about scar tissue. In some respects I wish I had, maybe life would be different. At 74, I fear I may be stuck in a wheelchair because my leg will be so weak after 3 months of no use or exercise. I may also be stuck in a wheelchair because the surgeon didn’t give me a very high chance of success considering how he was forced to connect the two areas, UGH – My cousin says UGHS should be changed to HUGS, but I have a bit of trouble doing that! trouble4343