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Posts (124)

Nov 24, 2019 · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

@mignon . I was hoping that @kamama94 would respond, and she has – beautifully! I do not have any particular advice at the moment. I do hope you will let us know what Mayo has to say so that we can contribute practical suggestions. For example, @kamama94 has a neat cookbook available to help you with diet, etc. I'm 80, have lost a kidney and breast to cancer, and this spring, was diagnosed with type 2 diabetes. Like you, I asked the doctor how come diabetes now. He said it's hereditary, but I doubt it. Anyhow, my kidney is Stage 3. I'm now learning to juggle three diets. As I like to say, I can eat anything so long as it's not food!!! Strangely enough, my health problems, while annoying, do not cause me any serious stress. Think that might be because I'm also caregiver to my husband, who has Dementia – a really terrible disease. Don't have time to worry too much about any one thing. My goal is to care for my husband as long as possible, and when I no longer can, we've a stack of crossword/coloring/puzzle books we plan to bring with us to the nursing home!! Need some quality colored pencils, if anybody can suggest a brand! Seriously, I do think the busier one is, the better off one is. Exercise of some sort, diet, family, friends, life! Today was a beautiful autumn day, and there are only two months and 29 days until the first broadcast of a Cardinal baseball game, and even though I'm a Cub fan, I can't wait to listen. You'll be in our thoughts and prayers. This much I can promise – whatever happens at Mayo, you'll be surrounded by lovely, caring folk, and really, it won't be as bad as our imagination tells us. Take care!!!

Nov 7, 2019 · Is flu shot recommended for Stage 3 CKD patient? in Kidney & Bladder

@fiesty76 . Have now had three flu shots with stage 3 CKD with no problem. Is there a reason you are questioning getting a flu shot?

Oct 31, 2019 · Diet woes. Too many conflicting diets. in Diabetes/Endocrine System

@rosemarya Now, that's a neat list! Does Mayo have one for CKD, or, even better, a combined CKD/diabetes list? I find I can't keep both lists in my memory bank, so I'm constantly having to Google different dietary items. Will print out the diabetes plan and cross out no-nos!!! Thanks so much!

Oct 27, 2019 · Waiting for scan results. Is this part of scanxiety? in Cancer: Managing Symptoms

@azkidney57. Not in any way an area I'm knowledgeable about, but it seems to me that your terrible discomfort with the MRI would qualify you to receive meds given to those who are claustrophobic. Worth discussing with your doctor.

Oct 26, 2019 · MRIs after Nephrectomy in Kidney & Bladder

@azkidney57. My friend Karen's cancer was not found until she started having physical symptoms. She is now on chemo for colon and liver cancer. I hate MRIs, but I thought about Karen as I was having an MRI a couple of weeks ago. The results came back with no evidence of disease, for which I am very thankful. It's two years since my cancerous kidney was removed, and while I have chronic conditions I must deal with, I am relatively healthy. Karen isn't doing well at all, and although she has survived a year longer than first predicted, the chemo is taking its toll. I had a bad time of it through diagnosis and surgery, and, as I said, I hate that MRI, but given the alternatives, I'm really rather fortunate. One can do quite well with only one kidney – just be sure and treat it kindly with diet, water, exercise, etc. Take care, everybody.

Oct 22, 2019 · GFR after nephrectomy in Kidney & Bladder

@azkidney57. At two years post surgery, I feel as good as I did prior to my surgery. However, I am considered to have chronic kidney disease, Stage 3(b). My GFR is 54. Unless you begin to show worsening symptoms, don't think you need to be concerned right now about diet. I do avoid foods which have high concentrations of phosphorous, potassium, or sodium, such as avocados, and spinach, but no one has suggested a strict diet. Do not know your age, but any surgery at any age is tough on your body. I was told that I'd be back to normal in six weeks, and that was true, except that I tired more easily. Truth is, it takes a full six months to even a year to return to total "normal." Your doctors will require you to have six month checkups for a while, and should they spot anything, you'll be advised. At any rate, don't think you need to worry. Take care.

Oct 16, 2019 · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

@carnes. @jeanice. As I have only recently been diagnosed with kidney disease and diabetes, I would agree with you about how confusing is the information about diets. The two recipes I am sharing with you were born of necessity and have been approved by my doctors and dietitian. I am sharing them with you to help you in your particular situation. I have been eating them every day for six months for breakfast and lunch because I have no choice (I have lost approximately 20 pounds). Prior to developing my two new diseases, I was already limited in my diet choices by Irritable Bowel Syndrome. I hope these recipes help you until you are better able to arrange your own diet choices, but would urge you to check with your doctor/dietitian as to whether they are suitable for you. @kamama94's recipes are wonderful, but I am told I do not at this time have to adhere to such a strict diet. However, when I need to, I will. I do use the information she provides to help plan my dinner menus. You will note that I include dairy, eggs, and fish – I do not adhere to a vegan diet, and based on my research, the dairy, eggs and fish are appropriate for all but the most strict renal diet. The excess liquid from canned products should be drained, but I do not use low sodium tuna, which is usually albacore, because there are other problems with that type of tuna. Cooked chicken would be a good choice to substitute for the fish. I also use a small amount of butter for flavoring the eggs, and again, for me, that's not a problem. A substitute might be EVOO, or mayo, etc.

For breakfast or lunch: Three tablespoons low fat cottage cheese ; one-half cup diced cauliflower rice, onions, bell peppers (red, green or yellow), or radishes; one-half cup chopped fruit – apples, cranberries, grapes, pineapples or strawberries; one-half can (3 oz.) of chunk light tuna in water, sardines, or salmon. Mix and enjoy. Amounts can be increased but start with the minimum. Ingredients can also be mixed, as in peppers and cauliflower. If you are on a vegan diet, not sure what one would substitute for the tuna. Protein is important.

For breakfast or lunch: Two slices bread, toasted; one egg dropped into boiling water and cooked 12 minutes or longer; butter. Toast one slice bread, spread with butter; remove egg, slice off top, and place one-half egg on bread. Egg is enjoyed hot. Toast second slice and repeat. I then eat some sugar snap peas. Please note that I am on a very strict diet, but not a vegan diet. With the eggs, I would suggest choosing fruits and or vegetables (perhaps summer squash or lettuce and tomato) from a recommended list. I limit my serving size to around one-half of a cup and opt to have more variety. After checking the sites @kamama94 suggested, you might be able to make better choices, or ones that are more appetizing. Dinner is my hardest meal of the day as physically I cannot make two separate meals for my husband and myself.

Take your time, and learn all you can. You will find your way, especially with the help of a dietitian. My kidney/diabetes problem arose in the last couple of years, and I am now 80. One has to be tough, I've found, to be a Senior Citizen. Let us know how you are doing, and please be kind to yourself. One suggestion – if you are really hungry between meals or miss desert, two snacks I would recommend – with doctor's approval – are a teaspoon of low-fat peanut butter, perhaps spread on Apple slices, and sugar-free applesauce on toast!!

On the subject of salad dressings, I do not use salad dressings because I can't eat vinegar or citrus. What I do enjoy is a side of rather strong-flavored shredded cheese, such as blue cheese. A tiny quantity, taken with each bite, adds substantial flavor, I think.

Oct 16, 2019 · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Wonder if Mayo has posted any of their tips and tricks?