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Posts (126)

5 days ago · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

@fiesty76 and @2011 panc. The coronavirus has thrown a large monkey wrench into my diet. It helps to know I'm not alone. Since my husband has Alzheimer's, food preparation is my sole responsibility. Since I'm also high risk for the virus, I'm dependent on delivery for groceries. Unfortunately, our stores continue short on deliverable items. So, I juggle a kidney/diabetes/IBS diet while trying to find something my husband will eat. But I think we are all tough folks and, with a little cheating, we'll make it. Take care, everyone!

Mon, Mar 23 5:30pm · Morning glucose test - higher when cold? in Diabetes/Endocrine System

Thanks for the information. Warning to folks like me who don't write things down: it's "Ceylon" and shouldn't be considered the same as other cinnamons, including one called, I think, Saigon cinnamon, whose taste I did not enjoy.

Nov 24, 2019 · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

@mignon . I was hoping that @kamama94 would respond, and she has – beautifully! I do not have any particular advice at the moment. I do hope you will let us know what Mayo has to say so that we can contribute practical suggestions. For example, @kamama94 has a neat cookbook available to help you with diet, etc. I'm 80, have lost a kidney and breast to cancer, and this spring, was diagnosed with type 2 diabetes. Like you, I asked the doctor how come diabetes now. He said it's hereditary, but I doubt it. Anyhow, my kidney is Stage 3. I'm now learning to juggle three diets. As I like to say, I can eat anything so long as it's not food!!! Strangely enough, my health problems, while annoying, do not cause me any serious stress. Think that might be because I'm also caregiver to my husband, who has Dementia – a really terrible disease. Don't have time to worry too much about any one thing. My goal is to care for my husband as long as possible, and when I no longer can, we've a stack of crossword/coloring/puzzle books we plan to bring with us to the nursing home!! Need some quality colored pencils, if anybody can suggest a brand! Seriously, I do think the busier one is, the better off one is. Exercise of some sort, diet, family, friends, life! Today was a beautiful autumn day, and there are only two months and 29 days until the first broadcast of a Cardinal baseball game, and even though I'm a Cub fan, I can't wait to listen. You'll be in our thoughts and prayers. This much I can promise – whatever happens at Mayo, you'll be surrounded by lovely, caring folk, and really, it won't be as bad as our imagination tells us. Take care!!!

Nov 7, 2019 · Is flu shot recommended for Stage 3 CKD patient? in Kidney & Bladder

@fiesty76 . Have now had three flu shots with stage 3 CKD with no problem. Is there a reason you are questioning getting a flu shot?

Oct 31, 2019 · Diet woes. Too many conflicting diets. in Diabetes/Endocrine System

@rosemarya Now, that's a neat list! Does Mayo have one for CKD, or, even better, a combined CKD/diabetes list? I find I can't keep both lists in my memory bank, so I'm constantly having to Google different dietary items. Will print out the diabetes plan and cross out no-nos!!! Thanks so much!

Oct 27, 2019 · Waiting for scan results. Is this part of scanxiety? in Cancer: Managing Symptoms

@azkidney57. Not in any way an area I'm knowledgeable about, but it seems to me that your terrible discomfort with the MRI would qualify you to receive meds given to those who are claustrophobic. Worth discussing with your doctor.

Oct 26, 2019 · MRIs after Nephrectomy in Kidney & Bladder

@azkidney57. My friend Karen's cancer was not found until she started having physical symptoms. She is now on chemo for colon and liver cancer. I hate MRIs, but I thought about Karen as I was having an MRI a couple of weeks ago. The results came back with no evidence of disease, for which I am very thankful. It's two years since my cancerous kidney was removed, and while I have chronic conditions I must deal with, I am relatively healthy. Karen isn't doing well at all, and although she has survived a year longer than first predicted, the chemo is taking its toll. I had a bad time of it through diagnosis and surgery, and, as I said, I hate that MRI, but given the alternatives, I'm really rather fortunate. One can do quite well with only one kidney – just be sure and treat it kindly with diet, water, exercise, etc. Take care, everybody.

Oct 22, 2019 · GFR after nephrectomy in Kidney & Bladder

@azkidney57. At two years post surgery, I feel as good as I did prior to my surgery. However, I am considered to have chronic kidney disease, Stage 3(b). My GFR is 54. Unless you begin to show worsening symptoms, don't think you need to be concerned right now about diet. I do avoid foods which have high concentrations of phosphorous, potassium, or sodium, such as avocados, and spinach, but no one has suggested a strict diet. Do not know your age, but any surgery at any age is tough on your body. I was told that I'd be back to normal in six weeks, and that was true, except that I tired more easily. Truth is, it takes a full six months to even a year to return to total "normal." Your doctors will require you to have six month checkups for a while, and should they spot anything, you'll be advised. At any rate, don't think you need to worry. Take care.