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Posts (94)

1 day ago · Meniere's Disease in Ear, Nose & Throat (ENT)

Diagnosed with Menieres almost 50 years ago. My ENT put me into the Menieres group only recently. My original diagnosis was that my vertigo was caused by an allergy to wheat, corn or oats. Rather than do extensive testing, I was told to go to a low salt diet, and truly, that has worked. My problem now is hearing. I've developed tinnitus and have mild to moderate hearing loss in both ears. The hearing problem in my Menieres ear, however, has the added problem of occlusion – the noise from brushing my teeth, for example, makes it impossible to hear anything. I can find nothing on occlusion, and when my audiologist placed a $6,000 hearing aid in my ear, I knew that wasn't the right choice for me. It's been suggested that my problem is indeed caused by Menieres, but I can find no information anywhere on the subject. Just wonder if anyone has any information that would be of help. I do need a hearing aid of some sort – don't have a clue what it should be.

3 days ago · First change in over three years and no idea why in Diabetes/Endocrine System

This is going to sound really odd, and I'm sure everyone will have a conniption fit at Mayo, but please, folks, hear me out.

Over the years, I've been involved with folks who were ordered to quit smoking by their doctors. With one exception, they suffered greatly. Watching them, I decided I would never push anyone to do something so absolutely painful for their "own good." There's a quality of life factor here that's to me more important than "wellness." Am I advising folks not to quit smoking? Absolutely not! I quit for a couple of years, but as my problems mounted, the desire to return to smoking grew, causing uncomfortable cravings. Remembering my promise, I decided to have one cigarette every day at the same time. Now, no matter what calamity strikes at, say, 11:00 a.m., I know that in 11 hours, I get to have a cigarette. Just one. Unlike others who have been forced to quit, there are no cravings for the rest of the 24-hour period, nor have I had to turn to alcohol or some other bad-for-me substance.

My pcp is gong-no for the Mediterranean Diet for diabetes. I asked if my small piece of cinnamon toast (made with sweetener) was allowed. Absolutely not, he said. Why? Cause it's not on the Mediterranean Diet. I think not. Same holds true for my Stouffer Pot Pie. When problems are overwhelming me and I'm unable to prepare a meal from scratch, I make it for dinner. Oh, and my dietary restrictions include chronic kidney disease, diabetes, and gastrointestinal problems.

If one has one cigarette and coughs up blood, obviously one has a zero tolerance for smoking and shouldn't have even one cigarette. If swallowing a particular substance puts one in ICU, then don't do it. Common sense is at work here, I hope. "One" does not mean "one gallon" of ice cream, nor does it mean two would also be okay.

It seems to me that you, Carol, have put terrible pressure on yourself to be perfect. Perfection is highly overrated, unachievable, and probably won't work. Strict and in control? Maybe, but I kind of doubt it since us humans are flawed that way, don't you know?

Hope your endo has an explanation, but I know you know just how complicated our bodies are. I do understand where you're at in your thinking. After my last colonoscopy, I vowed never to have one again cause the prep made me sooo sick. Dr. Gupta called this week to schedule a colonoscopy, and I said no. I 'm 80, with a whole litany of medical problems, anyone of which can probably be fatal at any time. Meanwhile, the cooks at TGIF worked with me to reduce the carb level of the Cajun Chicken and Shrimp Pasta, which I love. My pcp would be horrified, but every once in a while, I enjoy myself with a dinner out not on the list.

Please be kind to yourself and take care. And please know we will be thinking about you and hope you are able to get some answers. If it's convenient, let us know what the doctor says.

Sun, Jun 23 11:14pm · What's it like to get a biopsy for IgA nephropathy? in Kidney & Bladder

Kidney biopsies are for the most part routine. I've never had one, because when I was brought to the ct scanner (used to show the radiologist your kidney), the radiologist gave me her opinion of the risks involved as opposed to the benefits. My risks negated the biopsy, so I declined to have one and it turned out to be the right choice. Ultimately, my kidney was removed along with a cancerous tumor. Please note that great care is taken when they do these tests, and I would not hesitate to have a biopsy on my remaining kidney. You have a right to know exactly what the procedure is and whether or not any risks are involved. Questions should be directed to your nephrologist and your radiologist. You should be concerned, of course, but not worried or scared. I would insist on another appointment where your worries can be addressed. I also "fired" my urologist for his failure to handle my justifiable concerns. Good luck and report back to us.

Tue, Jun 18 7:20pm · 3rd stage kidney disease and diet in Kidney & Bladder

Have seen the dietitian, who talked and gave me literature about the diabetes, but said very little about CKD and diet. So, back to my pcp and nephrologist. I do believe I've learned more from kamama than any of my doctors, and I've got a few. Thanks for your kind thoughts.

Sun, Jun 16 2:53pm · Taking vitamin C as a supplement in Kidney & Bladder

@kamama94. Took your recipes with me to the dietitian – she was very impressed but her opinion is I'm not at the point of a strict diet yet. Promised I'd share any food recommendations I receive – just one chickpea pasta. Doesn't sound good, but we'll see!!!!

Sun, Jun 16 2:44pm · Taking vitamin C as a supplement in Kidney & Bladder

jakedduck1. Wow! You've given me some homework to do and I appreciate it – especially about the magnesium! Lots of questions now!!!

Sun, Jun 16 1:49pm · Taking vitamin C as a supplement in Kidney & Bladder

Thanks, kamama94 and jakedduck1, for the information. Because of dietary problems, I don't have a good, consistent source of vitamins and minerals, so I also take a multi-vitamin multi-mineral and A REDS 2 (a supplement prescribed by my optometrist and designed to help with the ill effects of diabetes). The amounts in these other supplements plus my time release means I'm close to 2000 mg per day. I can see I'm probably too high on Vitamin C, but think the "eye vitamin" is important. Think juggling between diabetes and ckd is not going to be a piece of cake, which I surely would enjoy right now!!!

Sun, Jun 16 11:47am · Taking vitamin C as a supplement in Kidney & Bladder

My new dietitian has recommended NO vitamin C supplements if one has kidney disease. I have for years taken 500 mg time released vitamin C and suspect it has helped me to avoid colds. Has anyone been told to avoid vitamin C?