About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (74)

Wed, Nov 20 6:32pm · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

It is my understanding with temporal, you have pain in your temples, headaches jaw pain,and other aches. For GCA, I had no symptoms and it just means that the cells are large. My GCA was discovered during surgery and before that I was totally unaware I had anything. John Bishop can probably explain this better.

Wed, Nov 20 1:14pm · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

I have only GCA which causes no symptoms. It was found during open heart surgery at Mayo in 2016. For GCA, I have been on prednisone and methotrexate. Tapered off the prednisone but continue to take methotrexate. Luckily , I have had little to no side effects from either med. I do not have temporal arthritis which does cause symptoms. However, the meds are similar. The meds seem to take care of any symptoms rather quickly. I hope the best for you. Just want you to know that life can still be the same even with these two diseases.

Wed, Nov 13 6:02pm · open heart surgery phobia in Heart & Blood Health

Thank you, mrsjaxx727. If you have more questions, please ask.

Wed, Nov 6 10:49pm · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Yes, quite sure you will see 75. Most doctors will not operate until it is a 5 as there is usually no danger until then. I had open heart surgery at Mayo because mine was over 5. Found out accidentally that mine was a 5+. Yours is growing very slowly. Best to you and no need to worry for now.

Wed, Aug 7 12:10pm · Can Temporal Arteritis Symptoms be Caused by Medication in Autoimmune Diseases

Alas I am unable to help as I take methotrexate for Giant Cell Arteritis. It is an anti- inflammatory drug. I have taken this since August of 2016 and have had little to no side effects. Carol

Wed, Aug 7 10:04am · Ascending Aortic Aneurysm & Stage 1 Diastolic Dysfunction in Aortic Aneurysms

We travel about 400 miles to Mayo from Illinois. It has not been a problem to be away from there as after the first year which involved 2 post op checkups, I now go once a year. Because I take methotrexate for giant cell arthritis, I have my blood checked every 3 months but this can be done at home. I am much closer than you so I understand your dilemma of whether or not to move.
BTW, Dr Pochettino is the best, I think.
Carol

Wed, Aug 7 8:51am · Ascending Aortic Aneurysm & Stage 1 Diastolic Dysfunction in Aortic Aneurysms

My surgery was done by Dr Pochettino at Mayo in May of 2016. As I have said, I got along well. Surprisingly, the pain was easily tolerable and for me, it was the drains afterword that gave me discomfort but they come out after 5-8 days. Good luck, Deby!
Carol

Mon, Aug 5 9:16pm · Ascending Aortic Aneurysm & Stage 1 Diastolic Dysfunction in Aortic Aneurysms

If you have questions, I would be happy to try to answer them. I had an aneurysm bigger than 5cm. At that size, surgery is indicated. At the age of 72, I had open heart surgery to repair the aneurysm at Mayo. I really got along fine after the surgery and was back to feeling very good within 2 weeks. Then I did rehab starting after 4 weeks and have had no problems. At the time of the surgery I also had giant cell arthritis which was treated with prednisone and an anti- inflammatory. All has gone well. Best to you, Carol