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May 7, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

All I can say is that I was never treated for CLL, My CLL turned into other Blood diseases and for that I had chemo.
Fortunately for me, my body has not undergone any major changes such as lymph node or spleen increases.
On the negative side however, I contracted ITP (low platelet count), the after a very stressful situation I contracted MDS (Low blood counts in all three blood lines – white for infections, red for anemia and platelets for blood coagulation).
For MDS I had to have a port put in because my chemo was to be 5 days a month instead of the one day a month I had for ITP.
Well, I contracted either a Staph or MRSA infection and had to be hospitalized for 5 days.
Chemo’s biggest complaint by all patients regardless of which cancer or chemo they get is fatigue.  In my case my Poly-Neuropathy (both feet and legs, not from diabetes) was affected so much that I could hardly walk without pain, plus the fatigue.
What I do know is that if chemo is not an option, they can remove the spleen, it really doesn’t affect your health.  But I am not a Doctor, so you’ll have to talk to a real Oncologist.

Apr 27, 2016 · I have Myelodysplastic Syndrome (MDS) spawned from ITP in Blood Cancers & Disorders

  Try these tips to avoid social isolation during cancer By Sheryl M. Ness, R.N. April 19, 2016
In past blogs, we’ve talked about the stigma associated with cancer. This week I’d like to focus on another aspect of living with cancer — social isolation. If you’ve been diagnosed with cancer, you may know exactly what I’m talking about. I hear about it almost daily. Cancer treatment can affect your ability to eat, talk, and have the energy to be social in a way that is vital to supporting who you are as a person. Side effects from surgery, chemotherapy and radiation may be intense over long periods of time.
Some physical changes are obvious, such as hair loss and visible scars. At times you might be too fatigued or just uncomfortable to put yourself out there for a social outing. Anyone with cancer can feel a sense of social isolation. However, this can be more intense for some groups. Treatment for head and neck cancer patients for example, causes changes in the mouth and throat that can affect a person’s ability to swallow, talk and control secretions.
Those with leukemia may need to be isolated from others during chemotherapy prior to and during a bone marrow transplant. Those with chronic cancer or advanced cancer often face constant treatment without any sort of break from side effects.Researchers studying this topic with cancer survivors have found that social isolation can increase anxiety, stress, depression and emotional distress.
If you’re a caregiver, your time and energy may be so focused on taking care of your loved one that your social life may also be impacted. Think about all of the aspects of life that are social in nature, such as going to work, eating out, talking with friends, traveling, meeting for coffee … the list goes on and on.
Staying connected when you’re living with cancer is important. Getting support and social contact might look different during this time. Here are a few ideas to keep your social connections during times when you find it physically or emotionally difficult.

– Connect with friends virtually via tools such as Facebook, Skype, Instagram, blogs or Caring Bridge.
– Instead of attending a large social gathering, reach out to one or two friends for support and connection.
– If you’re not ready to eat out with others, let them know you’d rather join them after dinner — try sipping on a cup of herbal tea and catch up this way.
– Keep it simple — focus on social outings with people that bring you energy and a sense of happiness. It’s OK to say no to other invitations that don’t fit for you at this time.
– Schedule outings when you usually have the most energy.

Sheryl M. Ness, R.N.

Apr 27, 2016 · I have Myelodysplastic Syndrome (MDS) spawned from ITP in Blood Cancers & Disorders

From The Publication “8th Annual Cancer Guide” 
Article Title – Dealing with Emotions
(You really should read the entire article – it’s short)
Page 20 – bottom right side
The Negative of Positive Thinking
As the patient begins to tell others about their diagnosis they could feel pressure from others to maintain a positive attitude (you know go to Senior Centers, blah, blah, blah), which can be especially difficult when patients are scared, anxious, afraid of catching a disease or not feeling well, etc.
False optimism is not only unrealistic but an unnecessary burden to the patient.  There is no solid evidence that emotional outlook affects survival, yet people unaffected by cancer often expect and encourage the patient with the disease to stay positive despite how the patient is really feeling.
Patients reaction to cancer (including other multiple health problems) differ greatly.  People should remember that it’s the patient’s experience and there is no need for the patient to feel they have to please others (idiot relations) by the way they cope with their feelings.
If you think that all of this hasn’t caused me stress, then your not sitting where I am sitting.  It’s disgusting to know that there are many people whose families have abandoned them.  As I talk with different Cancer Support Agencies, all I hear from them is that this problem happens a lot and basically they talk about this problem (no family support) all day long to other cancer patients.  That’s one of the biggest reasons that they exist. 
Doctors have no time for this and of course inexperienced Social Workers are helpless.  There’s nothing like talking to someone who knows first hand what I am going through.
I still haven’t found that person who lives alone, however I am not stopping in my quest to find someone like that.  Having a Spouse who cares is “priceless”.  My Spouse committed suicide 2 years ago because she didn’t want to take care of anymore, even though I took care of her a lot especially after her hip replacement surgery (her first ever surgery).  She was the worst patient I have ever been around. 

Apr 27, 2016 · I have Myelodysplastic Syndrome (MDS) spawned from ITP in Blood Cancers & Disorders

Sorry about the late post, but now have Basal Cell Carcinoma on my hand that needs to be cut out completely.
I never go out in the sun without being covered up, but this could have been started along time ago, according to the Dermatologist.
It seems never to end, I do have to wait until next week for my monthly Oncologist visit to get approval and get the latest CBC.  Also, I used to suffer from B-12 deficiency and nobody could figure it out for 1 1/2 – 2 years, so I have mild aphasia as a result.  I was on my way to Dementia until I started taking these B-12 pills that you could only get from the Vendor.  They have worked, thank goodness.
However, now I am loosing 200 points on my B-12, last month was the second time this year this has happened (January was the other time).  I am waiting to see if this is a trend or just another unexplained anomaly.
Being alone and abandoned by my so called “family” who thinks they know everything about Cancer because they know a patient or two.  I now refer to them (just 2 brothers) as relations as in they are related by blood but they basically don’t care.

Apr 23, 2016 · I have Myelodysplastic Syndrome (MDS) spawned from ITP in Blood Cancers & Disorders

I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL).

Now I don’t know if this the correct group, however I am alone and don’t have any support system including family that could care less.