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Jul 12, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Can you recommend a doctor at Mayo who specializes in CMML?
Thanks
Jzier

Jul 12, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Hi Colleen — My diagnosis is CMML – chronic myeloid monocytic leukemia. It is different from CML and CML.
It is a rare diagnosis so it is difficult to get info on possible treatments, etc. My oncologist is waiting for a trial
Study called ABT 199. But we have been waiting for months. Meanwhile I am not on any treatment and being
supported with blood tranfusions. I am concerned that the illness is probably progressing. My white counts have
been going up. My Dr says don’t worry about. But, of course, I am. Any ideas?

May 23, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Thank you for your speedy response. Can you also tell me if there are any specialists dealing with this illness at Mayo?

May 22, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Hi Colleen
Thank you for your response.
Please note that my illness is CMML.
The leukemias that you list – CLL & CML are different illnesses. Do you have info that refers to CMML?

Thanks

May 22, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

I have CMML. I was diagnosed 5 years ago.
I did four years of IV chemo – Dacogen. Then did 6 months of trial study drug Tosedostat. I had negative reactions to Tosedostat and was taken off the study in February 2016.
Currently not doing any treatment. Blood transfusions every 2 weeks for low hemoglobin.
I would like to find out what studies – if any – are available at Mayo. I am also wondering if there are any immunotherapy studies that may help with this illness.
Thx for your help.