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Posts (5)

Apr 30, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi. Thanks for asking about my situation. I don’t have one single person I can talk too and I am so stressed out. The meds I am supposed to have started taking are as follows:1)AZITHROMYCIN 500 MG 2 TABS 3 X WEEK2) RIFAMPIN 500 MG 2  TABS 3 X WEEK3) ETHAMBUTOL 1200 MG 3 X WEEKSThe last one is for nausea & vomiting called ” ondansetron” 8mgI spoke with the doctors & pharmacist and they said I would be very sick by throwing up, diarrhea, dizzy & vision problems. The pharmacist said it wasn’t going to be easy at all. I am my parents caregiver & I have an adult handicap son who depends on me for everything. I am so worried I will be so sick I won’t be able to take care of anyone, and worried I will be so sick I won’t be able to go do everyday things like grocery shopping, doctor appointments. I am seriously thinking of not taking it and just putting my life in Gods hands. I already am so overwhelmed I haven’t slept in 3 days. This is too much, and all I do is secretly cry in the bathroom or in the garage. I just am beside myself.Thanks, Cheri  

Apr 29, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi. This is only my 2nd time writing on this site. I have been diagnosed with MAC about a month ago, and now see a pulmonologist & a infectious disease Dr. I start my cocktail of meds on 5-2-16. Actually, I should have started them this week, but I am having such panic attacks that I am waiting until Monday, I am sooo scared. I am a caregiver to my elderly parents who are sick and an adult (34) yr old son who is handicap. I am afraid I will be too sick to take care of them. I have never been this scared in my life. I have decided if the meds, all 4 to start with make me to ill, I am going to stop taking them. I can’t imagine being so sick for the next 18 months. I think I would rather die. I am just a mess and cry constantly. Ok, I won’t bring my problems to this anymore. I just needed to get this off my chest. SCARED!!!!!

Apr 24, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi. Thank you for your advice. I have trouble in the past with taking meds and that is one reason why I am so scared. I wonder if I will be able to take care of my parents and my son who is handicap. I am so scared that I find myself crying all the time. I will find out Tuesday more info when I go to this doctor.Thanks again. Good luck!Cheri

Apr 24, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you Katherine for your advice. I am just sick about this and find myself constantly crying. I don’t usually get sick, and if I do I try to hide it especially from my son who is disabled. I just hope I am strong enough to be able to take care of y parents and my son. I just wonder what would happen if I choose not to take the meds? I will just talk to this doctor on Tuesday. Again thank you for your feedback. Bless you!

Apr 23, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello. I am new to this. I am a 55 yr old woman, who is a caregiver for my ill parents and an adult handicap son. I was recently diagnosed with MAC and I see a Infectious Doctor on the 26th. I am so scared about the treatment. I have heard the reaction to the meds are worse then the disease. I am afraid I won’t be able to take care of my family. I do not have anyone to help and I am in this alone. I really just want to know if the side effects are as bad as my pulmonary Doctor said. I am thinking about not talking the meds. Anyone have any suggestions? Scared.. 4-23-16