@gingerw Perfect! I love the "five wishes booklet", indicated ones desires…I have yet to write my obituary but will do it as soon as things slow down a bit…just back from a nice vacation with my dear wife. Thanks for sharing!
@ibern and @IndianaScott
As for “end of life” preparation, assuming the usual legal “mumbo jumbo” has been done, most of us overlook the obvious.
A friend who lost her husband unexpectedly, came up with a “Survivors List”. It helps account for those obvious day to day things that we take for granted; but fail to think what those left behind will encounter once we are gone. If your spouse pays the bills, where are the records kept? Put it in the list! What are the utility shut off requirements for winter? Add to the list! Who to contact for the yard care? Add to the list…etc., etc.,
We have done a pretty comprehensive “Survivors List” and placed a copy in our safe deposit box at the bank, provided a copy for our kids and our financial planner and lawyer.
If you would like a redacted generic list, let me know and I will be happy to put one together and send it.
Best of luck to all of us who are dealing with serious health issues…thank God we found Mayo Connect where we can share our anxieties and experiences with others!
So sorry to hear about your prognosis.
Stay positive and pray!
My wife (stage 4 lung cancer) was told “4 months…maybe longer” in July, 2016…
She is still with us! She has a great quality of life and we attribute it to her Mayo team, strong faith in God, and a positive attitude…
Tue, Feb 12 7:19am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer
Hi @lisdorn…can you tell us the doctor's name in Maryland? My wife's oncologist left Mayo and went there. We would like to stay in touch with him.
Tue, Feb 12 7:13am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer
Wow…that's great! See there…never give up!
I'm late comming into the discussion, but FYI, my pulmonologist ordered a "sniff test" when he suspected a paralysed diaphram last June. Have you had this done? Its a XR Fluoro proceedure with contrast where they watch the diaphram as you "sniff"…
I am having similar issues with congestion since going on the Resmed CPAP machine summer of 2018..I attribute it to an alergy to the silicoln mask materials, but not sure. It seems that when I replace the mask I immediately get the congestion for a week or so…hardly able to talk.
I have used the SoClean 2 since I first went on the machine last summer.
When I confronted the pulmonologist with the issue, he sent me to an ENT doc, who in turn prescribed an antibiotic whcih I took for 2 weeks and added Zantac to my tray of tablets…seems like a guessing game to me!! The problem subsided for awhile, but is still troubling.
Interestingly, the Pulmonologist told me to turn up the machine's humidity setting…a week later, the sleep clinic nurse called as a followup and she told me to turn off the humidity!!!???? When I turned it off the congestion subsided some, but still there today.
Biggest concern is my wife is a lung cancer patient and she went through a similar run around with pulmonologists, gastro docs etc., before we finally went to Mayo and found the underlying problem was LUNG CANCER!