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Posts (488)

Apr 1, 2017 · Use of essential oils for transplant patients in Transplants

@amandajeffersaz, @rosemarya and @keggebraaten– Hello!! I apologize for not seeing this post and replying earlier.

I cannot give you any advice for using Essential Oils for medical or transplant purposes.

However, personally I do dabble in the use of oils in my own home. There are therapeutic grade oils. From what I have learned so far- there are lots of different grades of oils, distilling processes and ways to use oils. Essential Oils are really popular right now but I have read quite a few stories on people not using them correctly. Some oils are very potent and need to be used with a carrier oil or will burn your skin, some shouldn't be blended together, some shouldn't be put on the skin at all, some can be diffused into the air. I have to stress how important it is to do your research and know what you are using before using, applying or diffusing. I hope this helps a little. I will say using lavender at night for relaxation and peaceful sleep has become a regimen in our house. Good luck with your research!

Mar 10, 2018 · Post Interferon Syndrome in Infectious Diseases

Hello @ldestella, Welcome to Mayo Clinic Connect. I'm so sorry to hear that you are struggling with post symptoms. That sounds really rough.

Here is a link to discussion already taking place on sjogrens- https://connect.mayoclinic.org/discussion/sjogrens/?pg=3#comment-61786. There you will meet members @cmtg, @kyjeanne and @chicagomichelle– all members discussing how they were diagnosed and how they are coping with their sjogrens diagnosis.

I would also like to pass on some information on Common variable immune deficiency (CVID) on the MayoClinic.org page- https://www.mayoclinic.org/diseases-conditions/common-variable-immunodeficiency/care-at-mayo-clinic/mac-20355824. I hope this is helpful information for you.

Jun 14, 2017 · Telephone consult in Visiting Mayo Clinic

Hello @tomewilson,

As I understand it, Mayo Clinic is not offering virtual consultation for patients that are brand new to Mayo Clinic. There are some consults taking place virtually within the system. They are used for return visits and I'm not quite sure of the logistics.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

@caklady and @ginpain– Welcome!

@ginpain Here is a link to the American Medical Association’s doctor finder https://apps.ama-assn.org/doctorfinder/home.jsp. You can enter your zip code and find a physician or specialist in your area. or Have you considered traveling to one of our Mayo locations?

@caklady, great information! Thank you for sharing your thoughts and experience. Does your doctor think that your numbers will come down even more? What has your treatment consisted of?

Sep 4, 2017 · Metastatic Breast Cancer: Whole brain radiation side effects in Breast Cancer

Hi @karenatmayo. so sorry that you are feeling so miserable. I'm sending some virtual "brighter days" wishes your way.

Here are some resources about brain radiation side effects
– Oncolink http://bit.ly/2lMl78j
– Cancer Research UK http://bit.ly/2lg01lG

@chuck58201, @irishel and @lindalb have discussed radiation and treatment. I hope they will join us in discussion and relate to you what their experiences were.

Sep 14, 2017 · Superior Semicircular Canal Dehiscence in Ear, Nose & Throat (ENT)

Hello @freckleface! Thank you for starting this topic and Welcome! We are happy to have you here. I'm sorry you have been dealing with this.

Mayo Clinic Connect is the perfect place for you to connect with others on a similar medical journey. It always feels better to connect with someone who has "been there". Any information shared here will be of great help to another member some day.

I would like to introduce you to others that have experienced similar symptoms as dizziness. Please meet, @makenzie1, @ryman, @tomsaunders and @gailb. I hope they can share some tips on how they coped with the dizziness.

While we wait for others to join the conversation- here is one patient's experience called "Unraveling the Mystery of Semicircular Canal Dehiscence Syndrome" from https://sharing.mayoclinic.org/2013/01/15/unraveling-the-mystery-of-semicircular-canal-dehiscence-syndrome/

@freckleface, can you share a little more about yourself? How long have you been dealing with symptoms?

Nov 25, 2018 · Any advice for tapering off oxycodone and/or OxyContin? in Chronic Pain

Hi @patrick17, what is it you're taking pain meds for?

May 9, 2019 · Clicking noise in ear in Ear, Nose & Throat (ENT)

Hello, @lolly906. Are you working with an ENT to address your hearing loss? Protecting your residual hearing is something you can talk about with a specialist. She/He would also be able to address the clicking you are experiencing. I'm interested to hear what you find out.