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Sat, May 11 7:43pm · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

I CAN'T THANK ALL OF YOU ENOUGH FOR YOUR INPUT AND I AM CALLING OUR DR ON MONDAY TO SEE WHAT CAN BE DONE ABOUT MY HUSBAND'S CHOKING…..HE SPENDS MOST OF HIS TIME IN THE BATHROOM TRYING TO GET THE PHLEGM OUT OF HIS THROAT…..THEY TOL D HIM IT WAS CAUSED BY THE NUTRITION HE IS TAKING SIX TIMES A DAY……

Fri, May 10 6:39pm · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

THANK YOU FOR POSTING THAT, JAKE,,,,,,,,,,I READ IT MANY TIMES AND IT'S SO TRUE. JAN

Fri, May 10 5:47pm · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

OMG, MY HEART ACHES FOR YOU…YOU HAVE BEEN THROUGH HELL ON EARTH….I KNOW WHAT YOU MEAN ABOUT THE PATIENT NOT REALIZING THE PRESSURE THE CARE GIVER IS UNDER….I APPRECIATE ALL THE GREAT SUGGESTIONS…….MY HUSBAND SLEEPS IN A RECLINER AS HE CAN'T BREATHE IN BED…..HE HAS BEEN CHOKING LATELY UNTIL HE RETCHES….SCARES THE BEJESUS OUT OF ME, BUT IT IS CAUSED BY HIS FEEDINGS…ONCE HE BRINGS UP THE PHLEGM HE IS OK AGAIN FOR AWHILE…ONE DAY AT A TIME, SWEET JESUS……..I THINK THAT'S HOW THE SONG GOES……….ALLEGRO (JAN)

Fri, May 10 7:41am · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

THANK YOU FOR YOUR CONCERN, RM,,,,IT HELPS TO KNOW OTHERS CARE ABOUT A COMPLETE STRANGER…….

Fri, May 10 7:36am · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

YES, ONE IS A PARAMEDIC AND THE OTHER A HIGH SCHOOL PRINCIPAL, AND MY DAUGHTER WORKS FOR A DR….SO I AM TRULY BLESSED..OUR FOURTH CHILD LIVES IN SEATTLE WITH HIS FAMILY AND TRIES TO GET HOME WHENEVER HE CAN…..THEY HELP IN EVERY WAY THEY CAN, BUT HAVE BUSY LIVES OF THEIR OWN….THEY ARE DEVASTATED ABOUT THEIR DAD AND TREASURE EVERY MOMENT THEY HAVE WITH HIM…LIKE I SAID GOD IS IN CHARGE NOW……..THANK YOU FOR ASKING,,,,,,,,,JAN

Thu, May 9 5:29pm · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

I CALL ONE OF OUR BOYS WHEN HE FALLS, AND THEY ARE WONDERFUL ABOUT HELPING OUT…BUT THEY HAVE JOBS AND FAMILIES TO TEND TO ALSO, AND I FEEL MOSTLY RESPONSIBLE FOR HIS WELFARE.HOME HEALTH HAS BEEN A BIG HELP ALSO, AND THEY SEEM TO BE ABLE TO GET THRU TO HIM WHEN I CAN'T…I GOT OUT TODAY FOR THE FIRST TIME IN THREE WEEKS AND HAD AN APPT. WITH THE HAIR SALON.IT WAS LIKE HEAVEN FOR ME….MY OLDEST SON TOOK OVER AS HE WAS FREE THIS AFTERNOON……..WHAT A NICE NEEDED BREAK………..

Thu, May 9 8:35am · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

Your letter has already helped in so many ways…I know I take on too much responsibility but I feel that he is not able to and it's my job as his wife………for better or worse…..and believe me, some days it can't get any worse…..He is a very stubborn man who refuses to believe that ALS is going to beat him…he is still able to use a walker but falls often,,,,,when I am alone I can't pick him up and have to call someone to help…

Wed, May 8 8:56pm · Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease in Caregivers

it really does help to be able to vent once in awhile….at least it makes me feel like I am not alone…..I hate to sound like I am complaining because I am really not…it's just that it gets so frustrating at times, especially when you feel so darn helpless……so thank you for letting me use this format to vent …..I so appreciate it……….Jan