What clinic/hospital are you at? I mean city? You definitely should see someone, I have acquired hydrocephalus with a VP programmable valve. I have a great neurosurgeon at La Crosse Mayo clinic.
Definitely would be helpful as well, to contact the Hydrocephalus Association. There Web address is hydroassoc.org. I hope this helps! I tried to start a support group in La Crosse but had little to no serious people wanting to join the group, or assist me.
I have found the hydrocephalus association extremely helpful