Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (5)

Oct 4, 2016 · Managing fibromyalgia in Bones, Joints & Muscles

Welcome Jenn, that’s great you found a good pain dr, I haven’t been that lucky todate. My PT ordered a walker and as a 67 year old I really didn’t want to use it but It really helps with the back pain. i can walk much further and when it hurts my walker has a seat so I can sit. once the pain eases I can walk again for a short distance. I’m with you on the flu like symptoms and stomach pain. I just had a bunch of tests done on my gastrointestinal tract to be sure there wasn’t something else going on. Lucky or not, everything looks normal so it’s most likely the fibro. I have a sister who died of pancreatic cancer about 1 1/2 years ago so they wanted to be sure that wasn’t the issue. The weather brings on my flu symptoms and since I live in the northeast, we get lots of weather!
Good luck

Jun 28, 2016 · Managing fibromyalgia in Bones, Joints & Muscles

Hi! I’m so happy to hear from someone else who has these symptoms. i seem to feel worse with barometer changes, especially downward. I also get vertigo, nausea, irritable bowel and bladder along with all the symptoms you listed. I’ve been talking with my doctors for a year now about this. They just don’t seem to have any answers. From the research I’ve done it seems all they can do is treat the symptoms. I’ve been taking 2 prilosec every morning. It has reduced the stomach pain but not the nausea, which I have everyday. so PCP has finally agreed to send me to gastroenterologist. My sister who also has Fibro has stomach issues as well and her gastro doc gave her different meds that seem to work. She lives too far away for me to use her doctors. Fortunately for her, she doesn’t get the complete heavy flu symptoms but gets enough of it. Good luck!

May 17, 2016 · Chronic pain - Let's talk in Chronic Pain

This sounds good to me. I wish you lived here but online support is good. It’s so hard when everyone tells you to just walk and “JUST” walking in very painful. i can only go less than a block. But I need motivation to try to move more.I have fibromyalgia, CFS, osteoarthritis among other issues. I really struggle with the pain and fatigue but can push to function at a low level, but what gets me down is the flu like symptoms. No one seems to even care about this. How would they like to wake up everyday feeling like they are at the worst of the flu?
Anyway, did you start walking yet and has anyone else joined you?

May 11, 2016 · Managing fibromyalgia in Bones, Joints & Muscles

Hi everyone,
My docs haven’t mentioned Gabapentin, but I think my sister takes it for fibro. I’m staying away from the narcs so does this really help? Web searches I’ve done don’t really mention fibro as a condition they prescribe this for but they do mention nerve pain. The stimulant I mentioned..Modafinil…is helping a little, i’ve asked my doc to increase the dosage and we’ll see how that helps. It helps with the fatigue and helps keeping me awake and functioning at a higher level which I’m very grateful for. I’m working hard at addressing my sleep issues so I can help reduce the fatigue. Now if we could only find something that could treat the flu sick symptoms that seem to go along with barometer changes in the weather. Does anyone else have these issues?
I’m also walking with a knee brace on my left knee and use a walker as i have an inflamed IT band on my right side. This is really a drag for a once very active “jock” personality!
I’m also realizing how much stress affects the level of pain I’m experiencing! A few stressful events over the last couple weeks really put me into a well of pain, sick, unable to think straight. I’m giving the mindful meditation a more serious consideration as a combatant to this. has anyone else tried mindful meditation? I was taught to do this at the pain management clinic I attended.

Mar 23, 2016 · Managing fibromyalgia in Bones, Joints & Muscles

I have also been diagnosed with Fibromyalgia. My dr sent me to a pain management program for Fibro and there we were taught to deal with stress via mindful meditation and were strongly encouraged to stay active and exercise. I too wake up most morning feeling like I have the flu…headache, stomach ache and nausea, body aches, irritated bowels and bladder, weak, fatigued, etc. It’s hard enough to cope with the fibro pain..mostly in my arms and back…but feeling so sick so much of the time is really depressing. The fatigue is what we have been addressing lately. I’m using a bi-pap machine and have just switched to a hospital bed with a cushy thick foam mattress and am now getting a good 8 hour sleep. But I still fall back to sleep within the first hour i get up and need a nap later on in the day as well. I used to be hyper-active, always on the go…hard to deal with the changes. Now my dr gave me a stimulant to help with the fatigue and it seemed to help for about a week, now I’m not so sure as I’ve been so tired these last couple days. Of course living in the northeast, the weather changes have been brutal this winter. I’m very affected by the barometer. I tried Cymbalta…it didn’t help and I only gained weight on it. Not willing to try Lyrica as it also contributes to weight gain. I’ve gained so much this past year due to inactivity and now my pre-diabetes has developed into diabetes. It just seems to never end.